Pessoas com deficiência no caminho da democracia participativa

Abstract

This article aims to discuss the social participation of disabled persons and the exercise of social control in the specific Organizations, Associations, Groups and Council of the segment. For this, the study builds a relationship between: understanding about disability, the issue of representativeness and the role of this segment in the struggle for rights and in the social control of public policies. And it brings as a key reading the conceptions of participatory democracy, social control; the different perspectives of understand the deficiency and the conceptions of Hannah Arendt for public and private space. This is an exploratory study carried out with organizations OF and FOR disabled persons, through semi-structured interviews with coordinators and presidents; participant observation of meetings and assemblies; documentary research on municipal and national laws and decrees, municipal conferences on education, health and social assistance, statutes, folders, minutes and leaflets produced by the Organizations and through the construction of a field diary. The results and discussions approach the reality of a specific municipality, however, are also marked by the national context of the struggle organized by the rights of disabled persons. The social representations of disability, coupled with the dynamics of the functioning and management of the Organizations and the changes in the social movements formed in the streets, in the public and private spaces, present, at the same time, weaknesses and potentialities in the defense and strengthening of the participation of disabled persons in decision-making processes.

Enquadramento da temática da inclusão de pessoas com deficiência no trabalho em Jornal de grande circulação do estado do Paraná de 1991 a 2006

“…The inclusion in the work depends on the dissemination of a comprehensive view on the nature of the process, in which the PWDs as anyone, can work if the barriers to their participation are eliminated (Santos, 2016). This is a larger social issue with the confrontation of which depends on the engagement of different social actors and institutions (not just the individual effort and overcoming of people with disabilities) (Ávila-Vitor & Carvalho-Freitas, 2012;Neves-Silva et al, 2015;Silva & Oliver, 2019).…”

“…Although the analysis in this text especially shows a critical view on the role of this media for social inclusion at work, the fact that it deals with the theme is a positive thing. The media discourse depends on what are the sources of the journalists -specialists, activists, social actors (Penteado & Fortunato, 2015) -and, therefore, in the case of this article, the discourse on the inclusion of PWDs may be influenced by the participation of people and movements in defense of social inclusion (Silva & Oliver, 2019), like the treatment of print media on the problem of autism (Rios et al, 2015).…”

“…Another positive aspect was to show the importance of campaigns, programs, and action by public bodies to ensure that the Law is accomplished and the right to work for the PWDs respected, as exemplified by what Hammes & Nuernberg (2015) in the action for inclusion in the PWDs labor market in Florianópolis. However, given the tendency to decrease the action of the State and its protection organs at work (Patruni Filho, 2019), the role of organizations in defense of the social inclusion of the PWDs (Silva & Oliver, 2019) and the media becomes determinant to keep the issue on the political agenda and influence the effectiveness of public policies, especially in the current political context.…”

Representação Social Sob A Perspectiva Das Pessoas Com Deficiência

“…Sendo assim, começaram exigir do Estado a construção de modificações nas políticas públicas, com o intuito de equiparar e garantir oportunidades de direitos indispensáveis. Para tanto, requeriam a inclusão social e a visibilidade desse segmento afim de que pudessem ser protagonistas de sua própria história 13 . A fala a seguir ilustra a temática: Este participante representa a fala de muitos entrevistados, uma vez que, as PcD aderem a movimentos de militância com intuito de conhecer mais sobre seus direitos e de usufruí-los.…”

Social participation as a possible way forward for social and occupational justice

“…Without theoretical foundations or grounded in the human sciences, in the area of health, public policies, paradigms, approaches, and care models, occupational therapists present social participation with multiple theoretical, practical, and institutional contours. In this way, social participation corresponds to the relationships of coexistence between people, family members, peers, and groups; freedom of movement and access to spaces; engaging in activities (or occupations) of everyday life (Berger et al, 2013;Lopes & Matsukura, 2018;Pritchard et al, 2015); and engagement in public and political life (Silva & Oliver, 2019a;Sosa et al, 2015). In other cases, it is synonymous with inclusion; it results from or is part of the processes of social inclusion, at school and work (Alves et al, 2016;Aoki et al, 2018); it corresponds to attachment and belonging to social support networks (Bolaños et al, 2017;Prudente et al, 2018) and the performance of social roles (Faria-Fortini et al, 2017;Hersch et al, 2012).…”