PhotoVoice is a feasible method of program evaluation at a center serving adults with autism

Krutt, Hannah; Dyer, Lindsay; Arora, Ayesha; Rollman, J. Brian; Jozkowski, Amanda C.

doi:10.1016/j.evalprogplan.2018.02.003

Cited by 10 publications

(10 citation statements)

References 11 publications

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Section: Methodsmentioning

confidence: 99%

“…A pilot photovoice study was carried out to explore the feasibility of planning, the effectiveness of executing the method and the identification of possible methodological blocks to participant adherence. 32 It included a mother of a 6‐year‐old child with CZS, who participated individually in the training stage, using the same methodology and applications intended for the broader participant group. The pilot aimed to explore the understanding, and relevance of the questions selected for the focus group, and estimate the duration of the interview, for this reason, it was carried out with the purpose of aligning the methodology.…”

Section: Methodsmentioning

confidence: 99%

See 1 more Smart Citation

The burden of global outbreaks: Photos of the daily lives of children with congenital Zika syndrome during the COVID‐19 pandemic

de Lima Nascimento Coutinho,

Feldner,

Coelho

et al. 2023

Health Expectations

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IntroductionIn Brazil, more than 3500 children with congenital Zika syndrome (CZS) face difficulties participating in activities of daily living, which may be aggravated by health emergencies, such as the COVID‐19 pandemic. Participation could be defined as the individual's involvement in daily life situations, and participation restrictions are problems that may arise in involvement in everyday situations.AimTo explore the daily lives of children with CZS during the COVID‐19 pandemic using photographic narratives captured by mothers and discuss possible strategies to improve participation results.MethodsIn this participatory action research, seven young Brazilian mothers acted as co‐researchers using photovoice to describe the experiences of their children with CZS (from 2 to 5 years old). Also, mothers contributed to validate the contents. The research was conducted online and included the following steps: pilot study, recruitment, individualized training, sociodemographic interview, photovoice training, photo taking, focus group for contextualization, data transcription and analysis and validation of analyses by the mothers.ResultsContent analysis revealed five categories that influenced the participation of the children: participation preferences, family relationships, access to healthcare, access to education and social isolation. Regarding participation preferences, mothers reported their children's desire to play with peers and family members and have autonomy. Mothers described the family environment as a happy, peaceful and safe place for the children. Lack of therapy was perceived to negatively impact the health of children; thus, treatments were considered essential for child development. Access to education included accessibility of remote education and a perceived lack of infrastructure and pedagogical preparation. Last, social isolation due to COVID‐19 directly affected the daily lives and behaviour of the children, interrupting therapies and medical appointments.ConclusionThe photos and narratives captured several aspects of the daily lives of children with CZS impacted by the COVID‐19 pandemic, reinforcing the importance of considering the negative effects of social isolation and offering education and social assistance to promote participation and integral health.Patient/Public ContributionConsistent with a participatory action research framework, Mothers acted as co‐researchers and participated in all stages of the research, especially in validating the data analysed by the researchers.

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Section: Methodsmentioning

confidence: 99%

Section: Methodsmentioning

confidence: 99%

The burden of global outbreaks: Photos of the daily lives of children with congenital Zika syndrome during the COVID‐19 pandemic

de Lima Nascimento Coutinho,

Feldner,

Coelho

et al. 2023

Health Expectations

View full text Add to dashboard Cite

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“…Photovoice is both a technique and a process, first developed by Wang and Burris (1997) and used in the field of community development to help create change by giving a voice to those who are not often heard (Krutt, Dyer, Arora, Rollman, & Jozkowski, 2018). Photography and discussion were used during the youth exchange to enable self-expression, reflect on experiences, promote critical dialogue for evaluation, and further program development led by the youth.…”

Section: Photovoice Methodsmentioning

confidence: 99%

Being in nature together: Photovoice of an Icelandic youth nature club

Aquino¹

2019

matk

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“…Photovoice is based on selfefficacy, and its focused and cooperative structure can, for example, empower youth to talk about their health care experiences and bridge intergenerational gaps of understanding (Lightfoot et al, 2019;Pace & Gabel, 2018). Less commonly, Photovoice is also a valid tool for use in program evaluation as is the case in evaluating the impact of home visiting programs on families and individuals (Vaughn et al, 2009), assessing the effectiveness of a community health initiative aimed at addressing obesity (Kramer et al, 2013), and examining participant perspectives of a communitybased program working with adults with autism (Krutt et al, 2018). Further studies also found that the Photovoice methodology generates critical consciousness and active grassroots participation resulting in opportunities for reflection, critical thinking, and active engagement (Carlson et al, 2006).…”

Section: Background On Photovoicementioning

confidence: 99%

A Novel Application of Photovoice in a Statewide Home Visiting Evaluation

Agu

Rojas

Foti

et al. 2021

American Journal of Evaluation

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Photovoice is an empowering, qualitative, community-based participatory research method that engages participants to take photographs and reflect on their meanings. We employed a novel application of a Photovoice-inspired methodology to evaluate perinatal home visiting services. This article describes the feasibility and utility of remote implementation of a Photovoice-inspired project in one state’s federally funded Maternal, Infant, and Early Childhood Home Visiting Initiative. The initial project aimed to identify aspects of parenting roles/identities, goals, and home visitor–client relationship that can be leveraged to improve program engagement and retention. Training materials were sent to home visitors who acted as liaisons with parents. Reflective interviews about this photo-elicitation method conducted with parents, home visitors, and the evaluators following the project revealed that informational materials were beneficial to understanding the process. Home visitors were noted as gatekeepers and key motivators. Trainings, flexibility, timely communication, and logistics should be considered when remotely implementing Photovoice.

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PhotoVoice is a feasible method of program evaluation at a center serving adults with autism

Cited by 10 publications

References 11 publications

The burden of global outbreaks: Photos of the daily lives of children with congenital Zika syndrome during the COVID‐19 pandemic

The burden of global outbreaks: Photos of the daily lives of children with congenital Zika syndrome during the COVID‐19 pandemic

Being in nature together: Photovoice of an Icelandic youth nature club

A Novel Application of Photovoice in a Statewide Home Visiting Evaluation

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