Physical Activity among Navajo Cancer Survivors: A Qualitative Study

Bea, Jennifer W.; Heer, Hendrik D. de; Valdez, Luis; Kinslow, Brian; Yazzie, Etta; Lee, Mark C.; Nez, Pearl; Dalgai, Shelby; Schwartz, Anna L.

doi:10.5820/aian.2502.2018.54

Cited by 7 publications

(16 citation statements)

References 19 publications

Supporting

Mentioning

Contrasting

Order By: Relevance

“…Following critical appraisal, all studies were of sufficient methodological quality to remain included (see Online Resource 4 ). Twenty-three studies included patients only [ 32 – 54 ]; 10 studies included healthcare professionals [ 55 – 64 ]; two studies included patients, caregivers and healthcare professionals [ 65 , 66 ]; and one study included patients and family members/friends [ 67 ]. Qualitative studies involved interviews ( n = 18) [ 32 , 35 – 38 , 41 , 44 , 45 , 49 , 58 – 66 ], focus groups ( n = 7) [ 40 , 42 , 50 , 51 , 53 , 55 , 56 ] or a mixture of the two methods ( n = 5) [ 39 , 43 , 52 , 57 , 67 ].…”

Section: Resultsmentioning

confidence: 99%

“…Twenty-three studies included patients only [ 32 – 54 ]; 10 studies included healthcare professionals [ 55 – 64 ]; two studies included patients, caregivers and healthcare professionals [ 65 , 66 ]; and one study included patients and family members/friends [ 67 ]. Qualitative studies involved interviews ( n = 18) [ 32 , 35 – 38 , 41 , 44 , 45 , 49 , 58 – 66 ], focus groups ( n = 7) [ 40 , 42 , 50 , 51 , 53 , 55 , 56 ] or a mixture of the two methods ( n = 5) [ 39 , 43 , 52 , 57 , 67 ]. Five mixed methods studies included questionnaires and interviews/focus groups [ 33 , 34 , 46 , 47 , 54 ], and one included questionnaires, interviews and accelerometer data [ 48 ].…”

Section: Resultsmentioning

confidence: 99%

See 1 more Smart Citation

Barriers to and facilitators of physical activity in adults living with and beyond cancer, with special emphasis on head and neck cancer: a systematic review of qualitative and mixed methods studies

Doughty

Hill

Riley

et al. 2023

Support Care Cancer

View full text Add to dashboard Cite

Purpose Physical activity can improve health outcomes for cancer patients; however, only 30% of patients are physically active. This review explored barriers to and facilitators of physical activity promotion and participation in patients living with and beyond cancer. Secondary aims were to (1) explore similarities and differences in barriers and facilitators experienced in head and neck cancer versus other cancers, and (2) identify how many studies considered the influence of socioeconomic characteristics on physical activity behaviour. Methods CINAHL Plus, MEDLINE, PsycINFO, Scopus and Cochrane (CDSR) were searched for qualitative and mixed methods evidence. Quality assessment was conducted using the Mixed Methods Appraisal Tool and a Critical Appraisal Skills Programme Tool. Thematic synthesis and frequency of reporting were conducted, and results were structured using the Capability-Opportunity-Motivation-Behaviour model and Theoretical Domains Framework. Results Thirty qualitative and six mixed methods studies were included. Socioeconomic characteristics were not frequently assessed across the included studies. Barriers included side effects and comorbidities (physical capability; skills) and lack of knowledge (psychological capability; knowledge). Having a dry mouth or throat and choking concerns were reported in head and neck cancer, but not across other cancers. Facilitators included improving education (psychological capability; knowledge) on the benefits and safety of physical activity. Conclusion Educating patients and healthcare professionals on the benefits and safety of physical activity may facilitate promotion, uptakeand adherence. Head and neck cancer patients experienced barriers not cited across other cancers, and research exploring physical activity promotion in this patient group is required to improve physical activity engagement.

show abstract

Section: Resultsmentioning

confidence: 99%

Section: Resultsmentioning

confidence: 99%

Barriers to and facilitators of physical activity in adults living with and beyond cancer, with special emphasis on head and neck cancer: a systematic review of qualitative and mixed methods studies

Doughty

Hill

Riley

et al. 2023

Support Care Cancer

View full text Add to dashboard Cite

show abstract

“…They were uncertain about or had negative experiences with Western medicine, including a sense of cultural misalignment with the treatment environment. A full summary of methods and major themes from the qualitative phase, organized according to the PEN-3 and HBM constructs, may be found in Bea et al (2018Bea et al ( , 2019.…”

Section: Key Themesmentioning

confidence: 99%

Development of a Culturally Relevant Physical Activity Intervention for Navajo Cancer Survivors

Heer¹,

Bea²,

Kinslow³

et al. 2019

Collaborations: A Journal of Community-Based Research and Practice

Self Cite

View full text Add to dashboard Cite

Despite well-documented benefits of physical activity for cancer survivors, few interventions have been developed for Native American cancer survivors, the population with the poorest survival rates of any group. This paper describes the development and cultural adaptation of a physical activity intervention for Navajo cancer survivors using Intervention Mapping (IM). IM procedures were guided by the PEN-3 (Perceptions-Enablers-Nurturers) and Health Belief Models and informed by a qualitative study with 40 Navajo cancer survivors and family members. For each theoretical construct (perceived benefits, barriers, enablers of healthy behaviors, etc.), a measurable objective was identified. These objectives were then matched with intervention strategies. The IM process indicated the need for a highly culturally sensitive environment (site and providers), culturally acceptable measurements and materials, and integrating cultural and environmental activity preferences. Program objectives aligned directly with these areas. Intervention strategies included: (a) collaboration with providers sensitive to historical/cultural context and environmental barriers; (b) cultural adaptation of surveys, non-invasive physical measurements, no biospecimen storage; (c) materials, terminology and symbols embracing cultural values of return to harmony; (d) physical activities that are flexible and aligned with cultural preferences and environment/travel issues (e.g., outdoor walking; community and homebased options; portable, inexpensive resistance equipment; local resources; family/friends participation and more community cancer education); (e) clinical adaptations by site and symptoms. This study is the first to document the process of adaptation of a physical activity program for Navajo cancer survivors. Objectives and strategies incorporated via IM are expected to foster sustainability and enhance uptake, satisfaction, and adherence.

show abstract

“…Therefore, a cancer exercise intervention tailored to the Navajo people was developed and pilot-tested. The intervention, called Restoring Balance , was aligned with American College of Sports Medicine guidelines for cancer exercise and was culturally tailored based on focus groups and interviews with Navajo cancer survivors, family, and friends (Bea et al, 2018; Bea et al, 2019; de Heer et al, 2019).…”

Section: Introductionmentioning

confidence: 99%

“…The purpose of this article is to describe the process of consulting with cultural experts from different tribes to expand tribal inclusiveness of the Restoring Balance program and to serve a broader Native American cancer survivor community. Of note, the development of the original Restoring Balance program was guided by qualitative work utilizing the PEN-3 and Health Belief models, as well as Intervention Mapping (Bea et al, 2018; Bea et al, 2019; de Heer et al, 2019). These constructs consider perceptions, knowledge, attitudes, and beliefs, as well as community influences and cultural appropriateness and remained as guiding frameworks throughout the adaptation of the Restoring Balance program, in addition to the very practical elements of multicultural adaptation described herein.…”

Section: Introductionmentioning

confidence: 99%

Formative Evaluation and Adaptation of a Navajo Cancer Survivor Physical Activity Intervention to Serve a Broader Native American Cancer Survivor Community

Bea

Charley

Lane

et al. 2022

Health Promotion Practice

Self Cite

View full text Add to dashboard Cite

Background Although exercise has been shown to improve cancer survivorship in other communities, cancer exercise studies among Native American communities are rare. We sought to adapt a Navajo-tailored cancer exercise pilot program to serve a broader Native American cancer community. Methods Tribal experts representing 10 different Tribal Nations were engaged in small focus groups (n=2–4) to assess program materials for cultural appropriateness and adaptation to expand tribal inclusiveness. Facilitated by a trained Native American interviewer, focus groups were provided a primer survey and then reviewed intervention materials (protocols, incentives, logo, flyers, etc.). Consensus was reached by the research team on all program adaptations. Results The program name, Restoring Balance, layout, graphics, and symbols were considered culturally appropriate overall. Program exercises and biomarker measurements were viewed as valuable to health improvements in the community. Important color, linguistic, and logistic program modifications were recommended to improve cultural alignment. The order of incentive items was revised to highlight restoration and the logo rotated to align with the four corners of the earth, an important cultural element. Linguistic modifications primarily related to prior traumatic research experiences in Native American communities where data had been taken without adequate community benefit or permission. Program emphasis should be on nurturing, added value and giving. Conclusion and Relevance The methodology used for cultural expert review was successful in eliciting adaptations to expand the tribal inclusiveness of Restoring Balance. Culture, as well as historically traumatic research experiences, among Native American populations must be considered when adapting health promotion programming.

show abstract

Physical Activity among Navajo Cancer Survivors: A Qualitative Study

Cited by 7 publications

References 19 publications

Barriers to and facilitators of physical activity in adults living with and beyond cancer, with special emphasis on head and neck cancer: a systematic review of qualitative and mixed methods studies

Barriers to and facilitators of physical activity in adults living with and beyond cancer, with special emphasis on head and neck cancer: a systematic review of qualitative and mixed methods studies

Development of a Culturally Relevant Physical Activity Intervention for Navajo Cancer Survivors

Formative Evaluation and Adaptation of a Navajo Cancer Survivor Physical Activity Intervention to Serve a Broader Native American Cancer Survivor Community

Contact Info

Product

Resources

About