Physical, psychological, social, and spiritual aspects of end-of-life trajectory among patients with advanced cancer: A phenomenological inquiry

Lee, Geok Ling; Ramaswamy, Akhileswaran

doi:10.1080/07481187.2018.1541944

Cited by 31 publications

(56 citation statements)

References 39 publications

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“…Further research into family members' perception of their care recipients' pain should be conducted in order to create better instruments that capture these factors. For instance, phenomenological research could be conducted to understand caregivers' concerns in greater detail, in the same way patients' concerns were understood [62].…”

Section: Psychometric Properties Of the Nafc-c (Efa)mentioning

confidence: 99%

Validation of the Needs Assessment of Family Caregivers-Cancer scale in an Asian population

et al. 2020

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Background: The Needs Assessment of Family Caregivers-Cancer (NAFC-C) scale is shown to have adequate psychometric properties in assessing family caregiver needs during the cancer journey and its psychometric properties have been studied only in Western populations. This study sought to validate the NAFC-C in an Asian population for wider applicability. Methods: Participants (n = 363) completed questions on sociodemographics, the Depression Anxiety Stress Scale, the Zarit Burden Interview, the Caregiver Quality of Life Index-Cancer scale, and the NAFC-C. Results: Results revealed good internal consistency, test-retest reliability, and concurrent validity of the NAFC-C. Confirmatory factor analysis did not demonstrate a good fit of the NAFC-C in our sample. Exploratory factor analysis revealed a similar factor structure in this study's population. Further reliability and validity analyses with the EFA factor structure demonstrated similar reliability and validity assessments. Conclusions: The NAFC-C is shown to be applicable in an Asian population. It would be a useful instrument for determining family caregivers' needs and to inform future interventions to address those needs and improve or maintain quality of life in both patients and their caregivers.

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Section: Psychometric Properties Of the Nafc-c (Efa)mentioning

confidence: 99%

Validation of the Needs Assessment of Family Caregivers-Cancer scale in an Asian population

et al. 2020

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“…Psychosocial care encompasses services and therapies ranging from education interventions that systematically convey information to patients to intensive face‐to‐face counselling interventions. Studies of patients with advanced cancer receiving palliative care have found that psychosocial care, comprising psychological, social, informational, communication, and spiritual support, represented a large proportion of patients' needs . Thus, rigorous evaluation of current psychosocial interventions is necessary to provide evidence‐based clinical recommendations to health care providers and patients.…”

Section: Introductionmentioning

confidence: 99%

“…Studies of patients with advanced cancer receiving palliative care have found that psychosocial care, comprising psychological, social, informational, communication, and spiritual support, represented a large proportion of patients' needs. 3,4 Thus, rigorous evaluation of current psychosocial interventions is necessary to provide evidence-based clinical recommendations to health care providers and patients. Several reviews have examined the effectiveness of psychosocial interventions for advanced cancer.…”

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confidence: 99%

Psychosocial interventions for advanced cancer patients: A systematic review

2019

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Objective Psychosocial care for advanced cancer encompasses a wide range of interventions that help patients make life‐changing decisions, manage debilitating symptoms, confront impending mortality, and improve other patient outcomes. Psychosocial care is becoming increasingly available to advanced cancer patients; however, an overview of the various types of interventions is lacking. Methods The current review systematically examined randomised‐controlled trials of psychosocial interventions for advanced cancer patients from January 2007 to June 2018. MEDLINE, CINAHL Plus, PsycINFO, and Scopus databases were searched, and a total of 68 studies were included in the review. Results We found a range of psychosocial interventions studies and grouped them based on six theoretical/clinical approaches: cognitive behavioural therapy based; meaning enhancing; dignity, life review, and narrative; other counselling; education only; and music, writing, and others. The different psychosocial interventions had significantly varied characteristics (eg, format, duration, and resources used) to address issues faced by advanced cancer patients. There is compelling evidence for the use of meaning‐centred psychotherapy to improve meaning and quality of life and use of question prompt lists and communication skills training to improve communication with health care providers. Conclusions Some psychosocial interventions are further along in establishing evidence for effectiveness. Our findings demonstrate a growing capacity within the field to meet the psychosocial needs of advanced cancer patients. Lessons and direction in clinical practice and future research endeavours are discussed.

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“…Although in the early stage after the cancer diagnosis was disclosed, most of the informed persons were not able to accept the reality right away, however, with a carefully preparation instructed by the SPIKES strategy, we avoided bringing unnecessary distress and anxiety to the informed person during the cancer diagnosis disclosure. We helped the informed person to overcome the stages of the negative psychological emotions (e.g., "tumor psychological shock period", which was characterized by obvious anxiety, fear, and other negative emotions [30]; the stage of defense and denial which was characterized by fear of death, being scared of radiation, chemotherapy, and surgery, and worrying about medical costs [31]; and the stage of reluctant acceptance, which was characterized by the acceptance of their roles as cancer patients or the caregivers of cancer patients [32,33]) with a positive attitude, thus the informed person was able to transit through the stages of negative psychological emotion within a short period.…”

Section: Discussionmentioning

confidence: 99%

Cancer Diagnosis Disclosure and Quality of Life in Elderly Cancer Patients

2019

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Informed consent and patient autonomy rights require an optimal cancer diagnosis disclosure strategy to be used to update the patients and caregivers with the bad news. However, a cancer diagnosis disclosure may arouse anxiety and distress which increase patients’ and caregivers’ psychological burden. This study aims to explore the influence of cancer diagnosis disclosure on the quality of life in elderly cancer patients and their caregivers, and to introduce an effective way to disclose cancer diagnosis. A total of 120 participants were randomly selected in the study. The Medical Coping Modes Questionnaire was used to select informed person. The SPIKES was used to guide the disclosure procedures. The informed patients’ or caregivers’ quality of life were evaluated by the Generic Quality of Life Inventory-74 or Caregiver Quality of Life Scale before and after the cancer diagnosis disclosure and at the discharge time. After cancer diagnosis disclosure, no significant change was found on the quality of life of the informed person. With multiple psychological interventions implemented, a significant increase was noticed on the quality of life of the informed person. Applying the cancer diagnosis disclosure strategies and psychological intervention were essential to improve cancer patients’ and caregivers’ quality of life.

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Physical, psychological, social, and spiritual aspects of end-of-life trajectory among patients with advanced cancer: A phenomenological inquiry

Cited by 31 publications

References 39 publications

Validation of the Needs Assessment of Family Caregivers-Cancer scale in an Asian population

Validation of the Needs Assessment of Family Caregivers-Cancer scale in an Asian population

Psychosocial interventions for advanced cancer patients: A systematic review

Cancer Diagnosis Disclosure and Quality of Life in Elderly Cancer Patients

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