Physiotherapy Home Exercise Program for Haemophiliacs

Pierstorff, K.; Seuser, A.; Weinspach, S.; Hj, Laws

doi:10.1055/s-0031-1275337

Cited by 10 publications

(21 citation statements)

References 22 publications

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“…Furthermore, a study by Pierstorff and colleagues found a significantly reduced bleeding tendency as well as slight improvements in flexibility and balance in children with haemophilia following an individualized home exercise programme. Motion analysis parameters including gait and squat were not improved (LE 4) . A recent review of studies which assessed exercise as an intervention considered the benefits for PWH as improved strength, proprioception, range of movement of joints and lean body mass, together with a reduced frequency of bleeding (LE 4) (see recommendations in Table ).…”

Section: Physical Benefits Of Exercisementioning

confidence: 99%

The benefits of exercise for patients with haemophilia and recommendations for safe and effective physical activity

Négrier¹,

Seuser²,

et al. 2013

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Most health care professionals involved in the management of people with haemophilia (PWH) believe that exercise is beneficial and its practice is widely encouraged. This article aims to demonstrate that appropriate exercise (adapted to the special needs of the individual PWH) may be beneficial for all PWH through improved physical, psychosocial and medical status. Based on evidence gathered from the literature, many PWH, particularly those using long-term prophylaxis or exhibiting a mild/moderate bleeding phenotype, are as active as their healthy peers. PWH experience the same benefits of exercise as the general population, being physically healthier than if sedentary and enjoying a higher quality of life (QoL) through social inclusion and higher self-esteem. PWH can also gain physically from increased muscle strength, joint health, balance and flexibility achieved through physiotherapy, physical activity, exercise and sport. Conversely, very little data exist on activity levels of PWH in countries with limited resources. However, regarding specific exercise recommendations in PWH, there is a lack of randomized clinical trials, and consequently formal, evidence-based guidelines have not been produced. Based on published evidence from this review of the literature, together with the clinical experience of the authors, a series of recommendations for the safe participation of PWH in regular physical activities, exercises and sport are now proposed. In summary, we believe that appropriately modified programmes can potentially allow all PWH to experience the physical and psychosocial benefits of being physically active which may ultimately lead to an improved QoL.

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Section: Physical Benefits Of Exercisementioning

confidence: 99%

The benefits of exercise for patients with haemophilia and recommendations for safe and effective physical activity

Négrier¹,

Seuser²,

et al. 2013

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“…Resistance exercise improves bone mass and can reduce pain and disability in patients with osteoarthritis [34]. In the field of hemophilic arthropathy, resistance exercise together with coordination and endurance training is important to improve joint stability and to control exaggerated end-range of motion joint movements, thereby reducing the risk of injuries, falls and hemarthroses [1, 9, 13–15, 17–19, 35–42, 79]. According to the World Federation of Haemophilia guidelines [1], adapted physical activity with a focus on strength, coordination, physical function and overall fitness is therefore recommended [1, 43].…”

Section: Introductionmentioning

confidence: 99%

Establishing an online physical exercise program for people with hemophilia

Wagner

Seuser²,

Krüger

et al. 2019

Wien Klin Wochenschr

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SummaryBackgroundHemophilia is a congenital bleeding disorder with an estimated frequency of 1:10,000 births. Repeated joint bleeding is a hallmark of the disorder and leads to painful hemophilic arthropathy. Regular exercise can help improve joint stability and function, reduce the risk of injury and bleeding and improve physical fitness and quality of life. This method paper describes an online training concept aiming to offer access to appropriate exercise instructions for people with hemophilia who are not able to attend regular training at a hemophilia center.MethodsThe online exercise program is accessible through the homepage of the Department of Physical Medicine, Rehabilitation and Occupational Medicine of the Medical University Vienna as well as through scanning a QR code printed on information material using a smart phone or tablet.ResultsThe program contains exercises to improve mobility, coordination, muscular strength and flexibility. A brief introduction is given by a hematologist, a pediatrician and a physiatrist. An introductory video informs about contraindications and essential precautions, such as medical attendance and sufficient factor therapy to consider before starting the training. Another video gives advice on the exercise composition. The demonstrated exercises are explained by a physician and are available for adults and children. To individualize training recommendations and offer further diagnostic tools and physical treatment options as necessary, the Department of Physical Medicine, Rehabilitation and Occupational Medicine of the Medical University of Vienna will establish consultation hours for people with hemophilia.ConclusionAs hemophilia is an orphan disease, patients are mainly treated in specialized centers. For patients who live far from these centers or have limited access to a training there for other reasons, the physical medicine consultation hour and the implementation of online exercise instructions offer individually adapted exercise information for a regular home-based training to benefit from increased physical fitness and joint stability.

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“…Evaluation of German patients', relatives', physicians' and nurses' attitudes towards prioritisation in haemophilia A revealed that major decision-making criteria were maintenance of mobility, social responsibility and the prospect of a long working life span [ 10 ] . Facing the high therapy costs for haemophilia, all measures, which show the potential to improve quality of life in haemophilia patients and to reduce bleeding frequency, should be promoted in the fi rst place [ 27 ] . Rising healthcare costs in times of scarce funds have resulted in a request for increasingly high levels of evidence in reimbursement decisions to guarantee high quality medical care.…”

Section: Treatment Of Children With Severe Haemophilia a And Inhibitomentioning

confidence: 99%

Treatment of Children with Severe Haemophilia A and Inhibitors: a Health Economic Evaluation for Germany

et al. 2013

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Physiotherapy Home Exercise Program for Haemophiliacs

Cited by 10 publications

References 22 publications

The benefits of exercise for patients with haemophilia and recommendations for safe and effective physical activity

The benefits of exercise for patients with haemophilia and recommendations for safe and effective physical activity

Establishing an online physical exercise program for people with hemophilia

Treatment of Children with Severe Haemophilia A and Inhibitors: a Health Economic Evaluation for Germany

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