Physiotherapy use and access-barriers in persons with multiple sclerosis: A cross-sectional analysis

Fortunato, Remo; Maas, Nico Arie van der; Biland-Thommen, U.; Kaufmann, Marco; Sieber, Chloé; Kamm, Christian P.; Zecca, Chiara; Gobbi, Claudio; Chan, Andrew; Calabrese, Pasquale; Kesselring, Jürg; Wyl, Viktor von

doi:10.1016/j.msard.2020.102710

Cited by 3 publications

(1 citation statement)

References 27 publications

Supporting

Mentioning

Contrasting

Order By: Relevance

“…However, at the time of data collection in the same study, it was stated that the Self-Reported Disability Status Scale (SRDSS) as a proxy measure to predict EDSS was not yet available, but such a measure could be useful for self-assessment of disability in an online survey setting (Visser et al, 2021). The preference of SRDSS in patient-reported studies in the current literature also shows the necessity and need of the scale (Fortunato et al, 2021;Rodgers et al, 2021a;Rodgers et al, 2021b). For all these reasons, there is a need for concise, reliable and robust tools for self-assessments of disability that offer comparability with the EDSS.…”

Section: Introductionmentioning

confidence: 99%

Validity and Reliability of the Turkish Version of the Self-Reported Disability Status Scale in Persons with Multiple Sclerosis

Bilek¹,

Demir²

2022

Balıkesır Health Sciences Journal

View full text Add to dashboard Cite

Objective:The aim of this study was designed to investigate the validity, reliability, and cultural adaptation of the Turkish version of the self-reported disability status scale (SRDSS). Materials and Methods: This study was designed as prospective, methodological, and cross-sectional. Turkish translation and cross-cultural adaptation of SRDSS was conducted. SRDSS scores were compared with Expanded Disability Status Scale and Patient Determined Disease Steps to test the concurrent validity. The validity and test-retest reliability of the Turkish SRDSS were investigated in 128 persons with MS. Results: A very strong correlation was found between SRDSS and Expanded Disability Status Scale (r=-0.920, p=0.000) and Patient Determined Disease Steps (r=0.857, p=0.000). The mean of the first test of SRDSS was 1.29±0.59, and the mean of the retest test was 1.30±0.61. A very high correlation was found between test and retest (p<0.001, r=0.967). Bland-Altman analysis showed that SRDSS was reproducible with upper and lower limits of agreement of 0.2929 and -0.3089, respectively (bias=-0.008; p=0.566). Cronbach's alpha coefficient was found to be 0.983 (excellent reliability). For inter-rater agreement, the ICC values in the individual test were 0.967 (954 CI; 0.954-0.977). Conclusion: This study showed that the Turkish version of SDRSS is a valid and reliable measurement tool. In cases where Expanded Disability Status Scale cannot be applied, the Turkish version of SRDSS can be used as an alternative assessment method.

show abstract

Section: Introductionmentioning

confidence: 99%

Validity and Reliability of the Turkish Version of the Self-Reported Disability Status Scale in Persons with Multiple Sclerosis

Bilek¹,

Demir²

2022

Balıkesır Health Sciences Journal

View full text Add to dashboard Cite

show abstract

Changes in physiotherapy services and use of technology for people with multiple sclerosis during the COVID-19 pandemic

Jonsdottir

Santoyo-Medina

Kahraman

et al. 2023

Multiple Sclerosis and Related Disorders

View full text Add to dashboard Cite

Awareness and Utilization of Public Physiotherapy Health Care Services to Support People With Multiple Sclerosis: A Health Care Service Audit

Jasin-Pathiranage,

Grech,

Scroggie

et al. 2024

International Journal of MS Care

View full text Add to dashboard Cite

Background: To maximize functioning and well-being in people with multiple sclerosis (MS), physiotherapy consultation is recommended at the point of diagnosis and throughout the disease course. We wanted to determine whether patients with MS being managed through a large metropolitan hospital in Australia accessed physiotherapy input as part of their MS management consistent with evidence-based recommendations and to identify patients’ self-reported physiotherapy requirements, including symptom management, information needs, and service delivery preferences. Methods: Surveys were sent to 597 MS clinic patients, and 160 responded. Data were analyzed using descriptive methods to derive frequencies and percentages. The survey consisted of 16 questions plus 2 optional questions related to sociodemographics (age and postcode). Results: Of 160 respondents, 142 completed all 14 nonoptional questions. One-third of participants (n = 53) were aware of the hospital MS clinic physiotherapy services, with 21.3% (n = 34) saying that they had accessed these services. Conversely, 40.1% of respondents (n = 61) reported having consulted a private physiotherapist. Combined, 52% of respondents reported seeing a physiotherapist. There was a clear preference (94.7%; n = 144) for access to the MS clinic physiotherapy service. The presence of at least 1 current MS-related physiotherapy problem was reported by 82.2 2% of respondents (n = 125). The top ways to access MS-related information were via a specialist MS website (57.6%) and a mobile app (55.6%). Conclusions: There is an unmet need for physiotherapy, and many participants may have foregone services due to unawareness. Improved awareness and uptake of physiotherapy at the point of diagnosis is needed to maximize functioning and well-being in people with MS.

show abstract

Physiotherapy use and access-barriers in persons with multiple sclerosis: A cross-sectional analysis

Cited by 3 publications

References 27 publications

Validity and Reliability of the Turkish Version of the Self-Reported Disability Status Scale in Persons with Multiple Sclerosis

Validity and Reliability of the Turkish Version of the Self-Reported Disability Status Scale in Persons with Multiple Sclerosis

Changes in physiotherapy services and use of technology for people with multiple sclerosis during the COVID-19 pandemic

Awareness and Utilization of Public Physiotherapy Health Care Services to Support People With Multiple Sclerosis: A Health Care Service Audit

Contact Info

Product

Resources

About