PICU Follow-Up Clinic: Patient and Family Outcomes 2 Months After Discharge*

Ducharme‐Crevier, Laurence; La, Kim-Anh; François, Tine; Gerardis, George; Beauchamp, Miriam H.; Harrington, Karen; Roumeliotis, Nadia; Farrell, Catherine; Toledano, Baruch; Lacroix, Jacques; Pont‐Thibodeau, Geneviève Du

doi:10.1097/pcc.0000000000002789

Cited by 40 publications

(42 citation statements)

References 46 publications

Supporting

Mentioning

Contrasting

Order By: Relevance

“…23 Children and families recovering from a critical illness are at-risk for medical and psychological morbidities that persist beyond PICU hospitalization. 9…”

Section: Discussionmentioning

confidence: 99%

“…10 11 12 13 Pre-pandemic, almost one-third of families reported symptoms of stress and anxiety related to the illness and PICU stay of their child. 9 The impact of the pandemic on this already-vulnerable population is not known. 14 15…”

Section: Introductionmentioning

confidence: 99%

“…8 The PICU follow-up clinic at CHU Sainte-Justine (CHUSJ) follows children who have survived a critical illness. 9 Pre-pandemic data demonstrated that 2 months after PICU discharge, 53% of children had at least one post-PICU morbidity such as sleep disturbance, fatigue, feeding difficulty, or behavioral change. Close to 70% of children under 5 years old had mild-to-severe developmental delay and 20% of school-aged children had a delay in schooling.…”

Section: Introductionmentioning

confidence: 99%

“…Close to 70% of children under 5 years old had mild-to-severe developmental delay and 20% of school-aged children had a delay in schooling. 9 PICU survivors, therefore, represent a pediatric population that is highly dependent on health care, extrafamilial and community support for the ongoing treatment of their recovery.…”

Section: Introductionmentioning

confidence: 99%

“…[10][11][12][13] Pre-pandemic, almost one-third of families reported symptoms of stress and anxiety related to the illness and PICU stay of their child. 9 The impact of the pandemic on this already-vulnerable population is not known. 14,15 The goal of this study was to describe the impact of the COVID-19-related lockdown on the physical and psychological well-being of PICU survivors and their families, including health, quality of life, and access to medical resources and extrafamilial support.…”

Section: Introductionmentioning

confidence: 99%

See 4 more Smart Citations

Impact of the Covid-19 Pandemic on Children and Families in PICU Follow-Up Clinic

Barcat

Pont‐Thibodeau

Jutras

et al. 2022

J Pediatr Intensive Care

Self Cite

View full text Add to dashboard Cite

The novel coronavirus disease 2019 (COVID-19) pandemic disrupted the lives of many families, especially those of children with chronic health problems. Little is known about the impact of this pandemic on the health and well-being of critically ill children and their families after their discharge from pediatric intensive care unit (PICU) hospitalization. This study describes the repercussions of the COVID-19-related lockdown on the physical and psychological wellbeing, quality of life, and access to resources of PICU survivors and their families. This was a prospective cohort study of children and families followed at the Centre Hospitalier Universitaire Ste-Justine PICU follow-up clinic from October 2018 to February 2020. Families were contacted by phone to complete validated questionnaires (Pediatric Quality of Life Inventory, Hospital Anxiety and Depression Scale) and to evaluate the impact of the COVID-19 pandemic on their access to medical care and extrafamilial support. Fifty-five families were contacted between November and December 2020. Quality of life scores were 88.1 ± 16.9 and 83.8 ± 13.9 for physical and psychosocial aspects, respectively. Symptoms of anxiety and depression were detected in 23.6 and 3.6% of respondent parents, respectively. A significant proportion of families reported canceled or delayed health care appointments (65.5%) and difficulty with medication access (12.7%). Twenty-five families (45.5%) reported a significant decrease in income. We could not identify any statistically significant predictors for lower quality of life scores. Difficulty accessing medical care was associated with higher symptoms of anxiety and/or depression in parents on multivariate analysis (p = 0.02). In conclusion, the COVID-19 pandemic has had a significant negative impact on PICU survivors' access to medical resources and extrafamilial support.

show abstract

“…23 Children and families recovering from a critical illness are at-risk for medical and psychological morbidities that persist beyond PICU hospitalization. 9…”

Section: Discussionmentioning

confidence: 99%

Section: Introductionmentioning

confidence: 99%

Section: Introductionmentioning

confidence: 99%

Section: Introductionmentioning

confidence: 99%

Section: Introductionmentioning

confidence: 99%

See 3 more Smart Citations

Impact of the Covid-19 Pandemic on Children and Families in PICU Follow-Up Clinic

Barcat

Pont‐Thibodeau

Jutras

et al. 2022

J Pediatr Intensive Care

Self Cite

View full text Add to dashboard Cite

show abstract

Severe Pediatric Neurological Manifestations With SARS-CoV-2 or MIS-C Hospitalization and New Morbidity

Francoeur,

Alcamo,

Robertson

et al. 2024

JAMA Netw Open

View full text Add to dashboard Cite

ImportanceNeurological manifestations during acute SARS-CoV-2–related multisystem inflammatory syndrome in children (MIS-C) are common in hospitalized patients younger than 18 years and may increase risk of new neurocognitive or functional morbidity.ObjectiveTo assess the association of severe neurological manifestations during a SARS-CoV-2–related hospital admission with new neurocognitive or functional morbidities at discharge.Design, Setting, and ParticipantsThis prospective cohort study from 46 centers in 10 countries included patients younger than 18 years who were hospitalized for acute SARS-CoV-2 or MIS-C between January 2, 2020, and July 31, 2021.ExposureSevere neurological manifestations, which included acute encephalopathy, seizures or status epilepticus, meningitis or encephalitis, sympathetic storming or dysautonomia, cardiac arrest, coma, delirium, and stroke.Main Outcomes and MeasuresThe primary outcome was new neurocognitive (based on the Pediatric Cerebral Performance Category scale) and/or functional (based on the Functional Status Scale) morbidity at hospital discharge. Multivariable logistic regression analyses were performed to examine the association of severe neurological manifestations with new morbidity in each SARS-CoV-2–related condition.ResultsOverall, 3568 patients younger than 18 years (median age, 8 years [IQR, 1-14 years]; 54.3% male) were included in this study. Most (2980 [83.5%]) had acute SARS-CoV-2; the remainder (588 [16.5%]) had MIS-C. Among the patients with acute SARS-CoV-2, 536 (18.0%) had a severe neurological manifestation during hospitalization, as did 146 patients with MIS-C (24.8%). Among survivors with acute SARS-CoV-2, those with severe neurological manifestations were more likely to have new neurocognitive or functional morbidity at hospital discharge compared with those without severe neurological manifestations (27.7% [n = 142] vs 14.6% [n = 356]; P &lt; .001). For survivors with MIS-C, 28.0% (n = 39) with severe neurological manifestations had new neurocognitive and/or functional morbidity at hospital discharge compared with 15.5% (n = 68) of those without severe neurological manifestations (P = .002). When adjusting for risk factors in those with severe neurological manifestations, both patients with acute SARS-CoV-2 (odds ratio, 1.85 [95% CI, 1.27-2.70]; P = .001) and those with MIS-C (odds ratio, 2.18 [95% CI, 1.22-3.89]; P = .009) had higher odds of having new neurocognitive and/or functional morbidity at hospital discharge.Conclusions and RelevanceThe results of this study suggest that children and adolescents with acute SARS-CoV-2 or MIS-C and severe neurological manifestations may be at high risk for long-term impairment and may benefit from screening and early intervention to assist recovery.

show abstract