2012
DOI: 10.1007/s13187-012-0434-0
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Pilot Intervention Outcomes of an Educational Program for Biospecimen Research Participation

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Cited by 37 publications
(43 citation statements)
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“…In addition, the donation rate for open events was significantly higher than for the educational programs (55 vs 36 %); this may reflect more of a methodological expediency difference than a choice by participants. Kiviniemi et al (2013) also found a significantly higher participation rate for community fairs versus educational programs; χ 2 (1) = 9.44, p < 0.05. There is a time element involved with the number of participants waiting at any one time to donate blood and the maximum capacity for processing specimens per hour in the mobile laboratory.…”
Section: Discussionmentioning
confidence: 88%
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“…In addition, the donation rate for open events was significantly higher than for the educational programs (55 vs 36 %); this may reflect more of a methodological expediency difference than a choice by participants. Kiviniemi et al (2013) also found a significantly higher participation rate for community fairs versus educational programs; χ 2 (1) = 9.44, p < 0.05. There is a time element involved with the number of participants waiting at any one time to donate blood and the maximum capacity for processing specimens per hour in the mobile laboratory.…”
Section: Discussionmentioning
confidence: 88%
“…As shown in prior studies, being asked to participate is essential, and the convenience of participating at the community level is important, rather than having to seek out the opportunity at a research center (Hagiwara et al 2014;Kiviniemi et al 2013). Regardless of information transfer method (i.e., open event or structured group education), transparency in explaining the process and what is being asked of the participant, as well as providing examples of research that are relevant to the community or population of interest, is critical in engaging diverse disease-free (i.e., without a cancer diagnosis) adults in biospecimen donation Tong et al 2014).…”
Section: Limitations/strengthsmentioning
confidence: 99%
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“…The participation of African-Americans in biospecimen research is low despite the disparate cancer burden in this population (Luque et al 2012;Kiviniemi et al 2013). Results from studies utilizing qualitative data from focus groups suggests that some perceived barriers related to biospecimen donation might be related to lack of information or knowledge on biospecimens/biobanking, fear of collection procedures, and general mistrust of researchers.…”
Section: Introductionmentioning
confidence: 99%