Pilot study of a training program to enhance transformational leadership in Spinal Cord Injury Peer Mentors

Ginis, Kathleen A. Martin; Shaw, Robert B.; Stork, Matthew; Battalova, Alfiya; McBride, Christopher B.

doi:10.1038/s41394-018-0065-8

Cited by 14 publications

(4 citation statements)

References 34 publications

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“…We interpreted Casey's approach as being consistent with a person-centered approach to mentoring by focusing their attention on the needs of the mentee. Using a personcentered focus is consistent with previous literature used person-centered theories, such as Self-Determination Theory [3,4] and Transformational Leadership [10,12] to understand SCI peer mentorship. Our results also extend findings from a small body of research focusing on the perspective of the peer mentor where Gainforth et al [11] and Shaw et al [13] highlighted that effective peer mentors appear to adopt a person or client-centered approach.…”

Section: Discussionsupporting

confidence: 74%

“…As illustrated in recent reviews, multiple positive outcomes of receiving SCI peer mentorship have been reported, which include participation in daily and social activities, knowledge, sense of connection, and quality of life [8,9]. However, the majority of research on SCI peer mentorship has primarily focused on the experiences, outcomes, or preferences of this relationship from the perspective of the mentees [3,10], or from mixed STORIED EXPERIENCES OF SCI MENTORS 4 samples [11,12]. Although mentors play a prominent role in fostering the personal and professional well-being of mentees, few studies have focused solely on the perceptions of mentoring from the peer mentors [e.g.…”

Section: Introductionmentioning

confidence: 99%

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An exploration of the roles and experiences of SCI peer mentors using creative non-fiction

Alexander

Caron

Comeau

et al. 2021

Disability and Rehabilitation

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Spinal cord injury (SCI) peer mentors are individuals who, through their lived experiences, offer emotional support and empathetic understanding to others living with SCI to foster positive health, independence, and well-being. This study explored SCI peer mentors' perceptions of their roles and experiences.Materials and Methods: Six paid or volunteer peer mentors participated in semi-structured interviews. We first explored the data using thematic narrative analysis to identify patterns, themes, and narrative types. Next, we analyzed the narrative types using creative analytical practices to construct and refine the stories.Results: Based on our analysis, we developed two stories from a storyteller perspective to present a snapshot of SCI peer mentors' experiences. The first story focuses on a "discovery" narrative from the point of view of Casey who adopted a person-centered approach to mentoring, focusing their attention on the needs of the mentee. The second story focuses on Taylor's experiences with the "dark" side of peer mentorship, which focuses on the psychological toll of being a SCI peer mentor, from discussions about suicidal thoughts with clients to struggling with burnout. Conclusions:Results provided insights for support services regarding the importance of supporting the mental health of mentors to ensure they continue delivering high quality mentorship.

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Section: Discussionsupporting

confidence: 74%

Section: Introductionmentioning

confidence: 99%

An exploration of the roles and experiences of SCI peer mentors using creative non-fiction

Alexander

Caron

Comeau

et al. 2021

Disability and Rehabilitation

View full text Add to dashboard Cite

show abstract

“…A negative outcome that was reciprocal for both mentors and mentees was a lack of connection. Sharing the same disability may not be sufficient for high quality mentorship experiences [ 27 ] and little research exists on the important matching criteria for peer mentorship relationships [ 28 ]. Recently, Gainforth et al described that matching characteristics should be more focused on interest and lived experience, which differs from traditional models matching on level of injury/sex [ 23 ].…”

Section: Discussionmentioning

confidence: 99%

Outcomes of peer mentorship for people living with spinal cord injury: perspectives from members of Canadian community-based SCI organizations

et al. 2021

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“…The sample size was estimated based on the primary outcome measure (Moorong Self-Efficacy Scale [MSES] score) between the groups. In the study conducted by Martin et al [ 40 ], the mean difference in the MSES score at week 12 was normally distributed, with a mean of 1.95 and a standard deviation (SD) of 2.77. A total of 84 patients (42 patients in each group) were required for the study, with a two-tailed α of .05 and a power of 0.80.…”

Section: Methodsmentioning

confidence: 99%

Effects of App-Based Transitional Care on the Self-Efficacy and Quality of Life of Patients With Spinal Cord Injury in China: Randomized Controlled Trial

Liu¹,

Xie²,

Wang³

et al. 2021

JMIR Mhealth Uhealth

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Background Spinal cord injury (SCI) severely impairs the physical and mental health of patients, decreasing their self-efficacy in coping with daily life and quality of life (QOL). In China, a large gap remains between the complex long-term health needs of SCI patients and the current community care system. With the prevalence of mobile terminals, the usage of mobile health apps has the potential to fill this gap by extending qualified medical resources to the families of SCI patients. Our team developed the app Together for the transitional care of home-dwelling SCI patients in China. Objective This study aimed to evaluate the effects of app-based transitional care on the self-efficacy and QOL of SCI patients. Methods Through a three-round Delphi process, an Android app was designed. Both medical staff and patients could access the app. Medical staff used it for providing remote transitional care to SCI patients. Patients used it to view transitional care time and send messages to medical staff. Thereafter, a multicenter and assessor-blinded randomized controlled trial was conducted. Participants (n=98) who had SCI and lived at home following discharge were recruited and randomly assigned to a study group (n=49) and control group (n=49) using a randomized number list in four research centers. Patients in both groups received systematic discharge education before discharge. The study group received five follow-ups conducted by trained nurses through the app, which had four core functions, namely remote assessment, health education, interdisciplinary referral, and patient interaction, at weeks 2, 4, 6, 8, and 12 following discharge. The control group received a routine telephone follow-up conducted by nurses at week 12 following discharge. The outcome measures were the Moorong Self-Efficacy Scale (MSES) and 36-item Short-Form Health Survey (SF-36) scores. Data were collected before discharge (T0) and at weeks 12 (T1) and 24 following discharge (T2). Differences between the groups were tested by repeated measures analysis of variance and simple effect analysis. Results After the follow-up, the total MSES scores in the study group improved over time (T0=67.80, T1=71.90, and T2=76.29) and were higher than those in the control group (T2=64.49) at 24 weeks following discharge (simple effect analysis: F1=8.506, P=.004). Regarding the total SF-36 score, although it was higher in patients from the study group (T2=65.36) than those from the control group (T2=58.77) at 24 weeks following discharge, only time effects were significant (F2,95=6.671, P=.002) and neither the group effects nor the interaction effects influenced the change in QOL (group effects: F1,96=0.082, P=.78; interaction effects: F2,95=3.059, P=.052). Conclusions This study confirmed that app-based transitional care improves the self-efficacy of SCI patients. Nevertheless, QOL improvement is not yet evident. Future investigations with larger sample sizes and longer observation periods are warranted to further verify the effects. Trial Registration Chinese Clinical Trial Registry ChiCTR-IPR-17012317; http://www.chictr.org.cn/showproj.aspx?proj=19828

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Pilot study of a training program to enhance transformational leadership in Spinal Cord Injury Peer Mentors

Abstract: Research supported by a SSHRC Partnership Development Grant.

Cited by 14 publications

References 34 publications

An exploration of the roles and experiences of SCI peer mentors using creative non-fiction

An exploration of the roles and experiences of SCI peer mentors using creative non-fiction

Outcomes of peer mentorship for people living with spinal cord injury: perspectives from members of Canadian community-based SCI organizations

Effects of App-Based Transitional Care on the Self-Efficacy and Quality of Life of Patients With Spinal Cord Injury in China: Randomized Controlled Trial

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