Pilot trial of “Epi-school” group psychosocial education program for patients with epilepsy and their relatives in Japan

Kuramochi, Izumi; Oga, Koko; Iwayama, Takayuki; Miyawaki, Yuko; Ishihara, Tomoki; Kobayashi, Sayaka; Yoshimasu, Haruo

doi:10.1016/j.yebeh.2020.107545

Cited by 9 publications

(14 citation statements)

References 16 publications

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“…A psychosocial education program for patients with epilepsy has shown improvements in knowledge 25 . In contrast, the participation rate of patients in self‐help groups and educational lectures was at a modest 5.8% in this survey.…”

Section: Discussioncontrasting

confidence: 57%

“…A psychosocial education program for patients with epilepsy has shown improvements in knowledge. 25 In contrast, the participation rate of patients in self-help groups and educational lectures was at a modest 5.8% in this survey. The low participation rate in these programs may be due not only to the lack of awareness but also to the concentration of facilities and locations in the greater Tokyo area.…”

Section: Knowledge Of Patients With Epilepsy and The Potential For Se...mentioning

confidence: 55%

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A study of factors influencing self‐stigma in people with epilepsy: A nationwide online questionnaire survey in Japan

et al. 2022

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Objective: Epilepsy carries a significant stigma. While there is some evidence that self-stigma accompanies a lack of knowledge about epilepsy, there are no studies in Japan. This study aimed to determine factors contributing to selfstigma in Japan. Methods:We conducted an online questionnaire survey. Three hundred and ten patients completed the questionnaire (mean age of 47.8 ± 11.9) in contrast to the total registered users on the questionnaire site as 28 315 from Jul 29 to Aug 2, 2021. We asked about demographic variables, satisfaction with treatment, limitations in life, support status, seizure frequency, the Epilepsy Self-Stigma Scale (ESSS), the Rosenberg Self-Esteem Scale (RSES), and the Epilepsy Knowledge Scale (EKS). We conducted the statistical analysis on self-stigma, self-esteem, knowledge of epilepsy, and seizure frequency associations by Spearman's rank correlation.

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Section: Discussioncontrasting

confidence: 57%

Section: Knowledge Of Patients With Epilepsy and The Potential For Se...mentioning

confidence: 55%

A study of factors influencing self‐stigma in people with epilepsy: A nationwide online questionnaire survey in Japan

et al. 2022

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“…We currently run a psychosocial education program for epilepsy patients and their supporters. 32 A previous study showed that lower perceived stigma in parents of children with epilepsy was associated with more positive feelings, fewer worries, and more family leisure activities. 16 Having accurate information about epilepsy is related to lower self‐stigma; the ESSS could be used as a self‐stigma evaluation tool in the development of psychosocial education programs.…”

Section: Discussionmentioning

confidence: 96%

Development and validation of the Epilepsy Self‐Stigma Scale

et al. 2021

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“…This scale has three answer categories (“true,” “false,” or “I do not know”) and the percentage of correctly answered items is used as the total score. The Japanese version of this scale has been used in several studies on epilepsy in Japan 31–33 . One item of the original Epilepsy Knowledge Scale, which refers to driving (“If persons with epilepsy drive, they must inform the driving authorities about their condition.”), is not used in the Japanese version due to differences in road traffic laws in different countries.…”

Section: Methodsmentioning

confidence: 99%

“…In Germany, where this study was conducted, a psychosocial education program for epilepsy patients called MOSES was implemented, 30,31 and in Japan, an initiative called Epi-School has been implemented based on this program. 32 Even though the studies did not look at epilepsy, there have been many reports of interventions to help people with mental illness feel less self-stigma. 48 First, all techniques use psychoeducation and knowledge to dispel mental disease misconceptions, similar to educational programs for PWE.…”

Section: Usefulness Of Questionnaires For Clinical Applicationmentioning

confidence: 99%

Assessment of self‐stigma in epilepsy: Validation of the German version Epilepsy Self‐Stigma Scale (ESSS‐G)

et al. 2023

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ObjectiveSelf‐stigma is the internalization of unfavorable public perceptions, which people with epilepsy (PWE) frequently experience. PWE with strong self‐stigma have low self‐esteem and are less likely to engage in treatment behavior. The Epilepsy Self‐Stigma Scale (ESSS) has been developed and validated in Japan. We translated the ESSS into German for this study to examine its reliability and validity.MethodsWe created the German version of ESSS (ESSS‐G) based on the original Japanese version. From May to October 2022, we recruited out‐ and inpatients from Bethel Epilepsy Centre, University Hospital for Epileptology, for psychometric evaluation. Inclusion criteria were an age of ≥18 years, sufficient reading and speaking skills in German, and the ability to comprehend the German questionnaires. Participants also completed the Rosenberg Self‐Esteem Scale (RSES), Neurological Disorders Depression Inventory for Epilepsy (NDDI‐E), Generalized Anxiety Disorder 7 (GAD‐7), Epilepsy Knowledge Scale, and items on “overall quality of life (QOL)” and “overall health” (items from QOLIE‐31).ResultsOne hundred twenty‐eight of 146 patients asked to participate granted informed consent and completed the study questionnaire (87.7% response rate). 115 cases were analyzed since 13 did not match the inclusion criteria. The analysis revealed a single factor explaining 49.2% of the total variance. All factor loadings were >0.40, and the reliability was high (Cronbach's α = 0.80). Higher ESSS total scores were associated with higher anxiety (GAD‐7, r = 0.54, P < 0.001) and depression (NDDI‐E, r = 0.45, P < 0.001), lower self‐esteem (RSES, r = −0.41, P < 0.001), overall QOL (r = −0.40, P < 0.001), and overall health (r = −0.35, P < 0.001), but not with knowledge about epilepsy (r = 0.03, P = 0.770). In Germany, females, younger individuals, patients with earlier seizure onset, and those with generalized epilepsy had significantly higher self‐stigma.SignificanceThe German version of the ESSS proved reliable and valid. It allows to evaluate the efficacy of treatment strategies in lowering self‐stigma and conducting intercultural comparisons of epilepsy self‐stigma.

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Pilot trial of “Epi-school” group psychosocial education program for patients with epilepsy and their relatives in Japan

Cited by 9 publications

References 16 publications

A study of factors influencing self‐stigma in people with epilepsy: A nationwide online questionnaire survey in Japan

A study of factors influencing self‐stigma in people with epilepsy: A nationwide online questionnaire survey in Japan

Development and validation of the Epilepsy Self‐Stigma Scale

Assessment of self‐stigma in epilepsy: Validation of the German version Epilepsy Self‐Stigma Scale (ESSS‐G)

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