Piloting a psycho‐education program for parents of pediatric cancer patients in Malaysia

Abstract

This PeP, the first of its kind in Malaysia, has significantly increased levels of knowledge among parents of seriously ill children which may point towards the potential for these services to increase coping in Malaysian PoCwC.

Barriers to psychological care among primary caregivers of children undergoing hematopoietic stem cell transplantation

“…Parallel work has not been done in caregivers of pediatric patients. A close comparison is acceptance rates of psychological intervention research studies for caregivers of pediatric cancer patients, which are low to modest (23% to 54%) in some studies [14–17] and high (75% to 92%) in others [18–20]. Reasons for not participating include lack of time [16, 19, 21], feeling overwhelmed [19], competing medical care priorities [22], and not wanting to separate from the child [14].…”

Pocket book of anxiety for parents of children with acute lymphoblastic leukemia

“…17 However, these results different to studies conducted by who did psychoeducation program to parents with children of cancer in Malaysia. 11 In his research revealed that there is a decrease in anxiety in the intervention group, but the decrease was not statistically significant. The difference in the results of this study can be caused by many things, including the differences in anxiety instruments used in collecting the data.…”

Anticipatory Guidance and Psychoeducation as a Standard of Care in Pediatric Oncology

“…Five articles, including one systematic review and two RCTs, indicated that psychoeducational interventions improve patient and caregiver knowledge about disease and treatment . Bradlyn et al concluded that acquisition of health‐related knowledge in children is best facilitated by modalities that are highly interactive and individualized.…”

“…Data on other health‐related outcomes were less consistent, with some studies reporting improvements in outcomes like anxiety, depression, pain, disease‐related skills, caregiver well‐being, self‐efficacy, and adherence . Others reported no differences or changes in nausea, stress, psychological problems, or quality of life (QoL) …”