Place and Provision of Palliative Care for Children With Progressive Cancer: A Study by the Paediatric Oncology Nurses’ Forum/United Kingdom Children's Cancer Study Group Palliative Care Working Group

Abstract

Preference for home death expressed by families in our study is similar to others, but the proportion of children actually able to die there is higher. Home death is facilitated by this model. Key components are POONSs, pediatric palliative and/or oncology specialist, and general practitioner. Professional roles change during PC and after death. An ongoing role for the oncology team in bereavement support is highlighted.

A enfermagem nos cuidados paliativos à criança e adolescente com câncer: revisão integrativa da literatura

“…(10) 3) A percepção de profissionais de enfermagem sobre os cuidados paliativos ao cliente oncológico pediátrico fora de possibilidades de cura: um estudo na abordagem fenomenológica das relações humanas (11) 4) Symptoms in the palliative phase of children with cancer (12) 5) Supportive and palliative care needs of families of children who die from cancer: an Australian study (13) 6) Parents' perspective on symptoms, quality of life, characteristics of death and end-of-life decisions for children dying from cancer (14) Eur J Oncol Nurs. No Quadro 2 apresenta-se a síntese dos artigos incluídos na presente revisão integrativa.…”

“…Descrever o modelo de assistência em cuidados paliativos desenvolvido pelas equipes de centros de oncologia do Reino Unido que permite a morte em casa das crianças com câncer avançado (10) .…”

“…O estudo aponta a importância do trabalho em equipe e cuidado domiciliar no processo de morte (10) .…”

Solid and liquid modernity: A comparison of the social geography of places to die in the UK and Australia

“…The stated preference for dying at home in both states (Vickers et al, 2007;Gomes et al, 2011;PCA, 2012) may be qualified, or reconsidered if the practicalities of receiving care are also considered alongside a statement of preference. We are not suggesting that practicalities of the home built environment will, or should dissuade people from their preference for home, but simply that understanding the social geographies of the built environment and indeed the other geographies explored here can help people to make a informed choice, about where they die, and help all parties to better understand the associated risks of the location of care.…”

“…In both the UK and Australia, an expressed preference for home as preferred place of death is identified (Vickers, Thompson, Collins, Childs, & Hain 2007;Gomes, Calanzani, & Higginson, 2011;Palliative Care Australia [PCA], 2012) and indeed, a common measure of quality in PEoLC services is congruence between preferred and actual place of death, particularly in the provision of care in domestic dwellings (Burge et al, 2015). These simplistic quality measures of hospital or home can be contrasted with the complexity of delivering and receiving care in different settings.…”