Place of death of adolescents and young adults with cancer: First study in a French population

Montel, Sébastien; Laurence, Valérie; Copel, Laure; Pacquement, Hélène; Flahault, Cécile

doi:10.1017/s1478951509000054

Cited by 21 publications

(67 citation statements)

References 21 publications

Supporting

Mentioning

Contrasting

Unclassified

Order By: Relevance

“…34 Bereaved parents of those aged 16–24 regretted not having the opportunity to talk about end-of-life care with their son or daughter and expressed how this could have helped prepare for their child's death and the bereavement process. 32,42 …”

Section: Resultsmentioning

confidence: 99%

Experiences and Preferences for End-of-Life Care for Young Adults with Cancer and Their Informal Carers: A Narrative Synthesis

Ngwenya

Kenten

Jones

et al. 2017

Journal of Adolescent and Young Adult Oncology

View full text Add to dashboard Cite

To review the qualitative literature on experiences of and preferences for end-of-life care of people with cancer aged 16–40 years (young adults) and their informal carers. A systematic review using narrative synthesis of qualitative studies using the 2006 UK Economic and Social Research Council research methods program guidance. Seven electronic bibliographic databases, two clinical trials databases, and three relevant theses databases were searched from January 2004 to October 2015. Eighteen articles were included from twelve countries. The selected studies included at least 5% of their patient sample within the age range 16–40 years. The studies were heterogeneous in their aims, focus, and sample, but described different aspects of end-of-life care for people with cancer. Positive experiences included facilitating adaptive coping and receiving palliative home care, while negative experiences were loss of “self” and nonfacilitative services and environment. Preferences included a family-centered approach to care, honest conversations about end of life, and facilitating normality. There is little evidence focused on the end-of-life needs of young adults. Analysis of reports including some young adults does not explore experience or preferences by age; therefore, it is difficult to identify age-specific issues clearly. From this review, we suggest that supportive interventions and education are needed to facilitate open and honest communication at an appropriate level with young people. Future research should focus on age-specific evidence about the end-of-life experiences and preferences for young adults with cancer and their informal carers.

show abstract

Section: Resultsmentioning

confidence: 99%

Experiences and Preferences for End-of-Life Care for Young Adults with Cancer and Their Informal Carers: A Narrative Synthesis

Ngwenya

Kenten

Jones

et al. 2017

Journal of Adolescent and Young Adult Oncology

View full text Add to dashboard Cite

show abstract

“…Six articles focused on cancer, 16,17,20,21,23,24 two articles focused on a heterogeneous range of LTIs and LLCs 19,22 and one article focused on HIV. 18 …”

Section: Resultsmentioning

confidence: 99%

“…One assumes that the 31 items of the instrument were direct questions. Montel et al’s 21 statements are based on information elicited in semi-structured interviews. Vickers et al 23 tracked ‘planned POD’ on a monthly basis, presumably as part of medical record keeping.…”

Section: Discussionmentioning

confidence: 99%

Preferred place of death for children and young people with life-limiting and life-threatening conditions: A systematic review of the literature and recommendations for future inquiry and policy

et al. 2013

View full text Add to dashboard Cite

Background:Home is often cited as preferred place of death in the United Kingdom and elsewhere. This position, however, usually relies on data concerning adults and not evidence about children. The latter data are scant, primarily retrospective and from parents.Aim:To review the literature on preference for place of death for children and young people with life-limiting or life-threatening illnesses.Design and data sources:The databases MEDLINE, CINAHL and EMBASE were searched from 2004 to 2012, as well as bibliography, key author and grey literature searches. Policy documents, empirical, theoretical and peer-reviewed studies and conference abstracts were included. Articles were assessed for study quality.Results:Nine studies were included from five countries. Six reported a majority of parents (only one study interviewed adolescents) expressing preference for death at home. Other studies differed significantly in their findings; one reporting 35.1% and another 0% preferring death at home. Some parents did not express a preference. Six of the studies included only parents of children who died from cancer while being treated at tertiary centres that offered palliative care services. Such results cannot be generalised to the population of all life-limiting and life-threatening illnesses. Furthermore, the methods of the studies reviewed failed to accommodate the full range and dynamic character of preference.Conclusion:The evidence base for current policies that stress the need to increase home death rates for children and young people with life-limiting and life-threatening conditions is inadequate. Further rigorous research should collect data from parents, children and siblings.

show abstract

“…Children worldwide continue to die in substantial numbers in the acute care setting rather than at home or in hospice as they and their parents prefer, 3,40-41 but the proportion of Taiwanese pediatric patients with cancer dying in an acute care hospital (74.3%-83.7%) is at the high end of worldwide statistics, behind only France (90.5%). 44 In other countries, the percentages of hospital death for pediatric patients with cancer were 23% to 48% in England and Wales, 45-46 41% to 56% in the United States, 4,6,29,31,37,41 52% to 60% in Germany, 3,47 60% in the Netherlands, 48 61% in Sweden, 49 and 71% in Japan. 2 Furthermore, in contrast to the increasing trend of shifting place of death for pediatric patients with cancer from hospital to home, 2,50 the proportions of Taiwanese patients with cancer dying in an acute care hospital did not change over the 6-year period studied.…”

Section: Discussionmentioning

confidence: 98%

Pediatric End-of-Life Care for Taiwanese Children Who Died As a Result of Cancer From 2001 Through 2006

Tang

Hung

Liu

et al. 2011

JCO

View full text Add to dashboard Cite

Continued chemotherapy and heavy use of life-sustaining treatments in the last month of life coupled with lack of hospice care to support Taiwanese pediatric cancer patients dying at home may lead to multiple unplanned health care encounters, prolonged hospitalization at EOL, and eventual death in an acute care hospital for the majority of these patients. Future research should design interventions that enable Taiwanese pediatric cancer patients to receive EOL care that best meets the individual or the parental needs and preferences.

show abstract

Place of death of adolescents and young adults with cancer: First study in a French population

Abstract: Although progress has been made over recent years in France, there is still considerable room for improvement of palliative care to more effectively meet the needs of young patients and their families at the end of life.

Cited by 21 publications

References 21 publications

Experiences and Preferences for End-of-Life Care for Young Adults with Cancer and Their Informal Carers: A Narrative Synthesis

Experiences and Preferences for End-of-Life Care for Young Adults with Cancer and Their Informal Carers: A Narrative Synthesis

Preferred place of death for children and young people with life-limiting and life-threatening conditions: A systematic review of the literature and recommendations for future inquiry and policy

Pediatric End-of-Life Care for Taiwanese Children Who Died As a Result of Cancer From 2001 Through 2006

Contact Info

Product

Resources

About