Planning, commissioning and delivering bespoke short breaks for carers and their partner living with dementia: Challenges and opportunities

Caulfield, Maria; Seddon, Diane; Williams, Stephen R.; Jones, Catrin

doi:10.1111/hsc.13533

Cited by 3 publications

(3 citation statements)

References 32 publications

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“…The organization … Reaching out [48,65,66,69,70,73] …proactively ensures that dyads have information on services. Screening* [17,57] …assesses whether a dyad is eligible for the respite services, but also for other services.…”

Section: Characteristics Definitionmentioning

confidence: 99%

“…Coordinating care* [18,43,44,49,51,54,55,57,58,64,70,78] … manages the respite services for the dyad. Continuing care [17,18,44,48,49,53,55,57,58,64,65,67,69,77] … assures that the respite services are in continuity with other services.…”

Section: Definitionmentioning

confidence: 99%

“…Summary -Characterization of flexible at-home respite: Approachability[17,21,24,48,53,57,61,65,66,69,70,73,77] …”

mentioning

confidence: 99%

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WHO, WHEN, HOW: a scoping review on flexible at-home respite for informal caregivers of older adults

Viens,

Éthier,

Provencher

et al. 2024

BMC Health Serv Res

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Background As the world population is aging, considerable efforts need to be put towards developing and maintaining evidenced-based care for older adults. Respite services are part of the selection of homecare offered to informal caregivers. Although current best practices around respite are rooted in person centeredness, there is no integrated synthesis of its flexible components. Such a synthesis could offer a better understanding of key characteristics of flexible respite and, as such, support its implementation and use. Methods To map the literature around the characteristics of flexible at-home respite for informal caregivers of older adults, a scoping study was conducted. Qualitative data from the review was analyzed using content analysis. The characterization of flexible at-home respite was built on three dimensions: WHO, WHEN and HOW. To triangulate the scoping results, an online questionnaire was distributed to homecare providers and informal caregivers of older adults. Results A total of 42 documents were included in the review. The questionnaire was completed by 105 participants. The results summarize the characteristics of flexible at-home respite found in the literature. Flexibility in respite can be understood through three dimensions: (1) WHO is tendering it, (2) WHEN it is tendered and (3) HOW it is tendered. Firstly, human resources (WHO) must be compatible with the homecare sector as well as being trained and qualified to offer respite to informal caregivers of older adults. Secondly, flexible respite includes considerations of time, duration, frequency, and predictability (WHEN). Lastly, flexible at-home respite exhibits approachability, appropriateness, affordability, availability, and acceptability (HOW). Overall, flexible at-home respite adjusts to the needs of the informal caregiver and care recipient in terms of WHO, WHEN, and HOW. Conclusion This review is a step towards a more precise definition of flexible at-home respite. Flexibility of homecare, in particular respite, must be considered when designing, implementing and evaluating services.

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Section: Characteristics Definitionmentioning

confidence: 99%

Section: Definitionmentioning

confidence: 99%

See 1 more Smart Citation

WHO, WHEN, HOW: a scoping review on flexible at-home respite for informal caregivers of older adults

Viens,

Éthier,

Provencher

et al. 2024

BMC Health Serv Res

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Understanding Break Needs, Break Experiences and Break Outcomes over the Care-giving Career: A Narrative Approach

Caulfield

Seddon

Williams

et al. 2022

The British Journal of Social Work

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UK social care policy recognises the importance of short breaks for sustaining care-giving relationships; however, there is limited understanding of how unpaid carers’ break needs evolve in response to the degenerative course of dementia and how these are supported. Using narrative analysis, the stories of thirteen spousal carers for people living with dementia were used to construct an experiential description of the care-giving career, in which spousal carers evolving break needs, experience of accessing breaks and desired break outcomes were explored. The care-giving career was marked by the continual adaptation and acceptance of acute and gradual changes to the care-giving relationship which influenced breaks needs. Irrespective of when in the care-giving career, the process of deciding upon a meaningful break was relational and emotive, emphasising the relevance of relational support to aid transitions to breaks of mutual value. With the deepening cognitive impairment of the person living with dementia, spousal carers encountered difficulties in achieving breaks due to relational and service factors. The conceptualisation of care-giving as a series of shifting configurations underlines the necessity for ongoing and skilful practitioner engagement to help unpaid carers consider ‘what matters’ to them, and proactively respond to changes in ‘what matters’.

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Coconstructing a Flexible At-Home Respite Model For and With Caregivers of Older Adults: A Living Lab Approach

Viens,

Carrier,

Leclerc

et al. 2024

Home Health Care Management & Practice

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At-home respite services seem too rigid to meet the needs of older adults and their caregivers. It is critical to develop service flexibility, as it allows for personalized care, adapted to health conditions, preferences, and evolving needs. While no prior studies used coconstruction methods to increase flexibility, this study could offer a better understanding of flexible respite for stakeholders. Using a living lab approach, this article aimed to (1) empirically determine the characteristics of this type of respite model and (2) document the levers and obstacles to consider for its implementation. Starting from a pre-existing flexible respite model named ANAAIS, the research team led workshops and interviews. First, the team carried out 2 workshops (TRIAGE and persona-scenario) with a total of 3 caregivers and 8 homecare professionals or managers. Second, a team member conducted interviews with 3 caregivers and 6 homecare professionals or managers. Content analysis was used on the data. The stakeholders coconstructed a Québec version of ANAAIS, a web application allowing caregivers to request an affordable respite, at the time wanted, and offered by a qualified care worker, through a simple application. Levers and barriers to its deployment are linked to the model’s characteristics as well as its internal and external context. For example, relations and connexions were perceived as a lever to deployment, while the lack of resources was considered an obstacle. This living lab project showed the feasibility and pragmatism of coconstructing a flexible and applicable respite service model.

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Planning, commissioning and delivering bespoke short breaks for carers and their partner living with dementia: Challenges and opportunities

Cited by 3 publications

References 32 publications

WHO, WHEN, HOW: a scoping review on flexible at-home respite for informal caregivers of older adults

WHO, WHEN, HOW: a scoping review on flexible at-home respite for informal caregivers of older adults

Understanding Break Needs, Break Experiences and Break Outcomes over the Care-giving Career: A Narrative Approach

Coconstructing a Flexible At-Home Respite Model For and With Caregivers of Older Adults: A Living Lab Approach

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