Methods:A questionnaire was distributed to 331 parents and carers of inpatients and outpatients at The Children's Hospital at Westmead, Sydney in 2015. It consisted of 37 questions in eight sections, including the child's medical condition, whether parents searched, where parents searched, why parents searched, use of information found, assessment of information and assistance with searching. Most questions used tick-box responses, with a small number of free-text questions. Responses were tabulated and described by frequencies and percentages. Associations between participant demographics and survey responses were examined using chi-square tests.Results/Outcomes: In total 308 (93%) questionnaires were returned. Most participants (90%) reported searching for medical information about their child's health. Of these, 96% searched the internet and of these 63% used a smartphone. The most common reason for searching before seeing the doctor was to prepare questions. The most common reasons for searching after seeing the doctor were to know more and because participants had more questions. Only half (57%) ascertained whether an information source was reliable. Most (69%) wanted guidance on searching and 77% wanted help assessing reliability.There was strong evidence of a difference in responses between the age of participants and the device used to search. Older participants were more likely to use a computer (P < 0.001) and younger participants were more likely to use a smartphone (P < 0.001). There was no evidence of an association between propensity to search and participant demographics. However, parents who perceived their child's medical condition to be serious were more likely to search after seeing a doctor because they had 'more questions after thinking about what the doctor said' (P = 0.003).Conclusions: Almost all parents search online for medical information about their child's health but most are unsure whether the information they found was trustworthy and are hesitant to act on or present it to their child's doctor. Health professionals should be aware that parents search for information, and could incorporate this into discussions during medical consultations to dispel potential misunderstanding and provide guidance on searching. Background: Focal cortical dysplasia is a malformation of cortical development. It is the most common cause of medically refractory epilepsy in the paediatric population. 1 We would like to present a case of young boy with intractable epilepsy due to focal cortical dysplasia.
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Methods:The content of this report was compiled by a retrospective review of electronic medical records and investigations. Written consent was obtained from the patient's parents.Case Report: This young boy presented at the age of 13 with a generalised seizure with focal onset. On reviewing the history, he was having episodes of numbness and posturing of the right arm from the age of nine. He was also struggling at school with moderate learning impairment. EEG confirmed focal epilepsy. MRI w...