PO24-TH-04 Parkinson's disease registry in Thailand launched

Bhidayasiri, Roongroj; Wannachai, Natnipa; Limpabandhu, Sudaratana; Asawawichienchinda, T.; Poolpolamnuay, Trungta; Kaewwilai, Lalita; Devahastin, R.; Phanthumchinda, K

doi:10.1016/s0022-510x(09)71089-5

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“…CUMDS has been conducting a national campaign for the development of a PD registry in Thailand in collaboration with the Ministry of Public Heath, the National Health Security Office, and the Bangkok Metropolitan Administration since January 2009 and the final results are expected to be available within the next few years [16]. Up to May 2010, there are 28,868 PD patients registered to the system, giving a crude prevalence of 396.8/100,000 population (95% CI 285.1-425.9).…”

Section: Discussionmentioning

confidence: 99%

A census of movement disorders at a Thai university hospital

Bhidayasiri

Saksornchai

Kaewwilai

et al. 2011

Journal of the Neurological Sciences

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Section: Discussionmentioning

confidence: 99%

A census of movement disorders at a Thai university hospital

Bhidayasiri

Saksornchai

Kaewwilai

et al. 2011

Journal of the Neurological Sciences

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“…As well as facilitating recruitment, registers can inform clinical trial design. 5 Several PD registers have previously been established [6][7][8][9][10][11][12] and used to provide information on epidemiology, clinical features and therapeutics.…”

Section: Introductionmentioning

confidence: 99%

Analysis and validation of a Parkinson’s disease register as a recruitment tool for clinical studies

Carroll

Palmer²,

Cosby³

et al. 2012

Clinical Medicine

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-Promotion of research is a key strategy of the National Health Service (NHS). Currently, many patients are not afforded the opportunity to participate in clinical studies. A register of research-interested patients has the potential to maximise inclusivity. We have established a register of research-interested patients with Parkinson's disease within the South West of England, with pragmatic inclusion criteria and multiple recruitment routes. We undertook an analysis of the register, investigation of its utility as a recruitment tool and a survey of recruiters. There were 529 active participants; 30% were self-referred and 70% were recruited by a healthcare practitioner. Response rate to annual questionnaires was 86.5%. Staff time required for pack preparation, recruitment and data entry was 15 min per new recruit and 5 min per follow-up questionnaire. In total, 85% of recruiters viewed the register positively. A single mailing to participants resulted in a recruitment rate that significantly exceeded that achieved by traditional recruitment methods.

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PO24-TH-04 Parkinson's disease registry in Thailand launched

Cited by 2 publications

References 0 publications

A census of movement disorders at a Thai university hospital

A census of movement disorders at a Thai university hospital

Analysis and validation of a Parkinson’s disease register as a recruitment tool for clinical studies

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