Policies to foster quality improvement registries: lessons from the Swedish case

Abstract

Abstract. Levay C

Factors facilitating a national quality registry to aid clinical quality improvement: findings of a national survey

“…However, the US system with, for example, automated data capture allows resources to be spent on improvement initiatives, rather than data registration. 29 Registry expertise and experience shared across countries could stimulate further development in how to use comprehensive process and results data in improving, for example, stroke care. 30 In Sweden, one of the limitations of registries such as Riksstroke is evidently the burden of registering data.…”

“…30 In Sweden, one of the limitations of registries such as Riksstroke is evidently the burden of registering data. 29 This is most likely reflected in that merely 65% of the Riksstroke respondents considered the gain from partaking in the registry, justifying the resources spent on working with it. Implementing automatised data capture could shift resources from securing data to data-led quality improvement work; however, to facilitate clinical improvement, health professionals, managers and policymakers need further support and opportunities to engage in joint ventures.…”

“…The following indexes, serving as independent variables, were constructed to capture: Support from Outer Setting; Management Request for Registry Data; Management Involvement in Registry-based Quality Improvement; Data Quality and Usefulness, and Resources. In addition, a number of single questions (items8,24,28,29,30,31 and 46) were included as independent variables comprising: the unit's local results; support from the local department and the registry; simplicity of retrieving data from the registry and explaining the results to colleagues and managers; motivation and colleagues' interest in Riksstroke data.Validation of indexesA factor analysis was conducted using SPSS V.23 to validate that our indexes contained relevantly grouped individual items. The factors were first extracted using direct oblimin rotation.…”

Enhancing policy implementation to improve healthcare practices: The role and strategies of hybrid national‐local support structures

“…Quality improvement initiatives usually involve frontline staff with varying experiences of interpreting data and incorporating it into team‐based problem solving . Researchers and policymakers have argued that there is great potential in the use of NQRs in relation to improvement of healthcare, but that such use requires support and competence …”

Surgical mesh and patient safety

“…Registries must be adequately funded: Sweden spent $47m (£36m; €41m) in 2016 on its registries 17. Legislation is needed to mandate what is measured and in whom, since voluntary entry of data has been shown to fail, and to ensure reporting requirements are adhered to and completeness of information is maintained.…”