Positive Aspects of Alzheimer's Caregiving: The Role of Race

Roff, Lucinda Lee; Burgio, Louis D.; Gitlin, Laura N.; Nichols, Linda O.; Chaplin, William F.; Hardin, J. Michael

doi:10.1093/geronb/59.4.p185

Cited by 212 publications

(138 citation statements)

References 38 publications

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“…Additionally, the ability to find meaning in and derive gratification from the caregiving experience is associated with increased morale and a feeling of being more able to manage (Hirschfield, 1983). Importantly, those who reported higher satisfaction with caring were also less likely to institutionalise the PwD (Roff et al, 2004). Therefore, gaining an understanding of the factors that predict a more positive caregiving experience is important and could contribute to the development of interventions to support carers who are struggling (Rapp & Chao, 2000).…”

Section: Positive Aspects Of Caregiving In Dementiamentioning

confidence: 99%

The positive aspects of caregiving in dementia: A critical review of the qualitative literature

2016

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Copyright © and Moral Rights are retained by the author(s) and/ or other copyright owners. This copy may differ from the final published version. A copy can be downloaded for personal non-commercial research or study, without prior permission or charge. This item cannot be reproduced or quoted extensively from without first obtaining permission in writing from the copyright holder(s). The content must not be changed in any way or sold commercially in any format or medium without the formal permission of the copyright holders. CURVE is the Institutional Repository for Coventry University

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Section: Positive Aspects Of Caregiving In Dementiamentioning

confidence: 99%

The positive aspects of caregiving in dementia: A critical review of the qualitative literature

2016

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“…For example, in the Resources for Enhancing Alzheimer's Caregiver Health (REACH) study, African Americans had higher scores than whites on the Positive Aspects of Caregiving scale and lower anxiety and fewer feelings of bother by the care recipient's behavior (Roff et al, 2004). In some cultures, caregiving is more expected, which may be protective against stress.…”

Section: Caregivingmentioning

confidence: 99%

Racial and Ethnic Disparities Among Individuals with Alzheimer’s Disease in the United States: A Literature Review

Lines¹,

Sherif²,

Wiener³

2014

115

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This study reviews the published literature on racial and ethnic disparities among people with Alzheimer’s disease (AD) and related dementias in the United States. To identify relevant studies, we searched electronic sources for peer-reviewed journal articles and unpublished research reports that were published through July 2014; related to the AD population and their caregivers; and provided evidence of racial and ethnic disparities, discussed reasons for disparities, or described interventions to address disparities. The literature shows consistent and adverse disparities among blacks and Hispanics compared with non-Hispanic whites concerning AD, including the disease’s prevalence and incidence, mortality, participation in clinical trials, use of medications and other interventions, use of long-term services and supports, health care expenditures, quality of care, and caregiving. The literature suggests numerous underlying causes, including factors related to measurement of the disease, genetics, socioeconomic factors, cultural differences, lack of culturally competent clinicians, and discrimination. Although these disparities are well known, little is known about the effectiveness of various strategies, such as cultural competence training, to address these differences, and very few studies evaluate possible interventions.

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“…16 Mantelzorgers blijken daarentegen positiever over de hulp naarmate degene die ze helpen ouder is, ernstiger beperkingen heeft en minder probleemgedrag vertoont. 17,18 Vooral de afwezigheid van probleemgedrag veronderstelt dat deze zorgsituatie als meer beheersbaar en minder stressvol ervaren wordt, hetgeen samenhangt met meer positieve ervaringen. 19 Dat suggereert dat mantelzorgers van hulpbehoevenden met cognitieve of mentale aandoeningen minder positieve ervaringen zullen rapporteren dan mantelzorgers van hulpbehoevenden met somatische aandoeningen.…”

Section: Factoren Die Mogelijk Samenhangen Met Positieve Ervaringenunclassified

Positieve ervaringen door mantelzorg: constructie van een schaal

Boer

Oudijk

Groenou

et al. 2012

TIJDSCHR. GERONTOLOGIE GER.

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Positive experience through informal care: construction of a scaleAn 8-item scale has been developed to measure positive experiences by informal caregivers, the Positive Experiences Scale (PES). The PES is a unidimensional hierarchical Mokkenscale which varies from intrinsic satisfaction and relational enhancement to improvement of competence and social enhancement. The scale has a satisfactory Loevinger's H-value (0.37) and reliability (0.74). Furthermore, satisfying H-values are found for large groups of informal caregivers, such as carers for the elderly, the chronically ill, partners, parents and people who live in a care facility. For informal caregivers of people with dementia or mental impairments, two items do not uphold ('I received appreciation for the care I've been giving' and 'the help brought me and my family and friends closer together'. For these groups a 6-item scale is advised. Solely for informal caregivers of people with psychological impairments, the scale as a whole does not uphold. Further research will have to determine how these caregivers derive positive experiences from caregiving. The PES is recommended because of its psychometric qualities and its usefulness in different populations of informal caregivers.

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Positive Aspects of Alzheimer's Caregiving: The Role of Race

Cited by 212 publications

References 38 publications

The positive aspects of caregiving in dementia: A critical review of the qualitative literature

The positive aspects of caregiving in dementia: A critical review of the qualitative literature

Racial and Ethnic Disparities Among Individuals with Alzheimer’s Disease in the United States: A Literature Review

Positieve ervaringen door mantelzorg: constructie van een schaal

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