Positive Aspects of the Caregiving Experience: Finding Hope in the Midst of the Storm

Walker, Ruth V.; Powers, Sara; Bisconti, Toni L.

doi:10.1080/02703149.2016.1116868

Cited by 18 publications

(15 citation statements)

References 29 publications

Supporting

Mentioning

Contrasting

Order By: Relevance

“…Role conflict and overload may result in role captivity,the feeling of entrapment within the caregiving role and related experience of self loss (26). For instance, caregivers may give up activities related to other roles, such as quality time with their partner, in order to take care of their ill parent.…”

Section: H4: Role Stressors May Lead To Intrapsychic Stressorsmentioning

confidence: 99%

“…For instance, caregivers may give up activities related to other roles, such as quality time with their partner, in order to take care of their ill parent. It has been established that role captivity and loss of self lead to higher feelings of depression and burden (26,27). In addition to this situational burden, role and intrapsychic stressors may negatively affect selfesteem and feelings of competence.…”

Section: H4: Role Stressors May Lead To Intrapsychic Stressorsmentioning

confidence: 99%

See 1 more Smart Citation

Determinants of overburdening among informal carers: A systematic review

Lindt

Berkel

Mulder

2019

Preprint

View full text Add to dashboard Cite

Background and Objective: The Dutch population is ageing, resulting in rising care demands and healthcare costs, which in turn led to a shift from formal to informal care. However, not only is the number of potential informal carers fastly decreasing, informal caregivers also experience higher caregiver burden. This literature review aimed at identifying the determinants of caregiver burden, to inform future interventions and foster informal care activities. Research Design and Methods: A systematic review of peer-reviewed articles included in either PubMed, Scopus and/or PsychInfo has been conducted. Results: 17 articles have been included. The most important predictors were the duration of caregiving and the dependency level of the patient, both in terms of physical dependency and mental dependency stemming from decreased cognitive capacity or behavioral problems. Some specific illnesses and role conflicts or captivity also increased burden, while social support lowered it. Being a female caregiver or having an adult-childrelationhip led to higher burden. Discussion and Implications: Firstly, it is recommended that specific interventions are designed for carers most at risk and that they focus on increasing the patient’s physical and mental independency. Moreover, interventions need to be adapted to the illness trajectory of specific diseases and the adhering needs for social support of both the recipient and caregiver. Lastly, role expectations should be changed, leading to men being more involved. Future research could focus on determining causality, the concept of ‘time’ and the relevance of cultural expectations.

show abstract

Section: H4: Role Stressors May Lead To Intrapsychic Stressorsmentioning

confidence: 99%

Section: H4: Role Stressors May Lead To Intrapsychic Stressorsmentioning

confidence: 99%

Determinants of overburdening among informal carers: A systematic review

Lindt

Berkel

Mulder

2019

Preprint

View full text Add to dashboard Cite

show abstract

“…Providing care without any compensation requires physical work and dedication and frequently involves pain and loss. Although caregivers endure depression and physical fatigue, they experience satisfaction, becoming accustomed to repetitive caring behaviors, and increased interest in their health management role [ 5 , 6 ]. For patients in need of diverse physical, mental, and emotional support, above all, caregivers provide a crucial social support that can have a significant effect on the disease process; the importance of caregivers has been emphasized because of the positive effects of caring for patient [ 7 ].…”

Section: Introductionmentioning

confidence: 99%

A Review of Trend of Nursing Theories related Caregivers in Korea

Kim

Choi

Lee

et al. 2018

TONURSJ

View full text Add to dashboard Cite

Background:The prevalence of chronic diseases has been rapidly increased due to population aging. As the duration of care needs increase, the caregivers’ socioeconomic burdens have also increased.Objective:This review examines the attributes of caregiving experience and quality of life of caregivers in Korea with a focus on the application of nursing theory.Method:We reviewed studies on caregivers’ caring for adult patients published till 2016 in 4 bio-medical research portal websites or data bases. A total of 1,939 studies were identified through the keyword search. One hundred forty five studies were selected by a process; of which, 17 studies were theory-applied. Selected studies were analyzed in accordance with the structured analysis format.Results:Quantitative studies accounted for 76.6%, while 22.1% were qualitative studies and 1.3% were triangulation studies. Caregiver-related studies increased after 2000. Most frequently, the caregivers were spouses (28.4%), and most frequently, care was provided to a recipient affected by stroke (22.5%). The 17 theory-based studies described 20 theories (70% psychology theories, 30% nursing theories). The most frequent nursing theory was the theory of stress, appraisal and coping.Conclusion:This study sought to better understand caregiving through the analysis of Korean studies on the caregiving experience and caregivers’ QOL and this finding helped presenting empirical data for nursing by identifying the nursing theories applied to the caregiving experience and caregivers’ QOL. The results suggest that the need for further expansion of nursing theories and their greater utilization in the studies of caregiving.

show abstract

“…This perspective is not naive in its approach to providing insight into the caregiving experience. On the contrary, negative events are acknowledged as one part of the experience of life for each individual, and strengths are brought into focus as personal and sociocultural conditions and coping strategies are explored [5].…”

Section: Introductionmentioning

confidence: 99%

“…This facilitates a process that diminishes focus on burden and strain, and enables a more balanced view of an individual's reality [5].…”

mentioning

confidence: 99%

Missionaries Experience Mental and Spiritual Health Gains While Caring for the Poor in Residential Facilities in Jamaica

Ka¹

2017

J Fam Med

View full text Add to dashboard Cite

Objective: Psychological and spiritual caregiving gains in cross-cultural missionaries providing invaluable formal, unpaid, full time care at residential facilities in a remote, inner-city island setting were investigated. Method:One hundred and ten (110) Missionary caregivers of over 500 mentally and physically challenged and terminally ill children and adults in residential mission facilities completed a validated 10-item questionnaire, investigating positive aspects of caregiving and spiritual gain.Results: ANOVA on mean frequencies demonstrated significant gains in self-affirmation (p<0.001), outlook on life (p<0.001), and a strengthened relationship with God (p<0.001). Conclusion:Psychological and spiritual gains of missionaries providing vital care at residential facilities highlighted positive aspects of caregiving.Keywords: Positive aspects of caregiving; Missionary; Residential home; Spiritual health; Mental health facilities, they provide full time care for abandoned, terminally ill, physically and mentally disabled, homeless destitute men, women and children. These shelters provide permanent residence for over 500 persons, representing an inestimable economic and social contribution to Jamaica, a developing country. The missionaries (locally known as 'Brothers') conduct all hygiene, nutrition, mobility, toileting, home medical daily living care for all of the residents. It is an intense, unremitting, daily caregiving role.The study aimed to identify positive aspects of caregiving (PAC) and spiritual gains for these cross-cultural missionaries. DesignThis study was a quantitative, descriptive, cross-sectional census of a single group of 110 formal, unpaid missionary caregivers at residential facilities. MethodsEthical approval was obtained from the University of the West Indies Faculty of Medical Sciences Ethics committee prior to administration of the survey. Brothers included in the sample were professed missionaries for at least 3 years, had lived on the island for at least 2 years and were providing full-time care to residents at one of the 6 residential facilities for at least 2 years.Demographic data collected were age, country of birth and number of years working with residents in the homes. The internationally accepted nine-item Positive Aspects of Caregiving (PAC) tool [7] was used in its entirety, with permission. It was previously validated by those authors with an appropriate culturally and ethnically diverse sample. A 10 th item related to spiritual strengthening was included,

show abstract

Positive Aspects of the Caregiving Experience: Finding Hope in the Midst of the Storm

Cited by 18 publications

References 29 publications

Determinants of overburdening among informal carers: A systematic review

Determinants of overburdening among informal carers: A systematic review

A Review of Trend of Nursing Theories related Caregivers in Korea

Missionaries Experience Mental and Spiritual Health Gains While Caring for the Poor in Residential Facilities in Jamaica

Contact Info

Product

Resources

About