Objectives:To understand the quality-of-life implications for post-polio syndrome
survivors.Methods:For this qualitative study, a focus group methodology, with a case study
design, was used. The data were analyzed for themes using a social
ecological conceptual framework.Results:Three focus groups were conducted with a total of 24 participants (N = 24).
Participants defined quality of life as being able to engage in meaningful
activities of daily living. Participants shared experiences of adapting to
declining physical health and embracing new activities of daily living. They
expressed hope and shared stories that demonstrated resiliency.Conclusion:The literature states that individuals aging with post-polio syndrome express
concern that health providers often know little about their disability
condition. The participants in this study reflected this experience by
sharing feelings of misunderstanding from the medical community and
expressing a desire to have more dynamic education for health providers.