Postlaryngectomy quality-of-life dimensions identified by patients and health care professionals

Mohide, E. Ann; Archibald, Stuart; Tew, Michelle; Young, Jenny; Haines, Trish

doi:10.1016/s0002-9610(05)80720-2

Cited by 120 publications

(79 citation statements)

References 8 publications

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“…The problem is the patients' expectations of living without a larynx, which may be biased on what he is told by his physician. 3 For this reason, the patient's perspective should always be considered when evaluating results of clinical treatment. Quality of life can only be described by the individual and must take into account many aspects of life.…”

Section: Discussionmentioning

confidence: 99%

“…These findings are consistent with those of other researchers who reported that voice handicap is not the most important or the only dimension affecting quality of life after treatment for laryngeal cancer. 3,9 A reasonable explanation is that nowadays there are several potential techniques for voice rehabilitation after total laryngectomy. Speech without a larynx is often intelligible and enables many laryngectomy patients to communicate adequately.…”

Section: Discussionmentioning

confidence: 99%

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Psychosocial adjustment in patients surgically treated for laryngeal cancer

Ramı́rez

Ferriol

Doménech

et al. 2003

Otolaryngology - Head and Neck Surgery

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OBJECTIVE:To assess the psychosocial adjustment in 62 patients surgically treated for cancer of the head and neck. STUDY DESIGN AND SETTING: Forty-one patients were grouped as having had radical surgery (total laryngectomy) and 21 as having had functional surgery (horizontal supraglottic laryngectomy or partial vertical surgery). The Psychosocial Adjustment to Illness Scale-Self Report (PAIS-SR) was used for the evaluation. RESULTS: No significant differences were found between groups when global adjustment or domain adjustment was compared. Patients did not consider the permanent stoma and voice loss to be the most important determinant of quality of life. Work and family relationship were the domains with poorest adjustment. CONCLUSION: Social and medical support are important factors in improving patients' self-confidence and satisfaction, playing an important role in recovering useful phonation, psychological adjustment, and global quality of life. SIGNIFICANCE: Information collected in this way may facilitate improved rehabilitation and thus better quality of life. (Otolaryngol Head Neck Surg 2003;129:92-7.) Little is known about the adaptation of patients after treatment and how the presence of sequelae impacts the different aspects of a patient's personal and family life. Although the concept of quality of life is easily understood, its definition and evaluation tools are not familiar outside the behavioral science area. Most studies consider survival and disease control as the end points of their clinical trials, without analyzing the patient's opinion regarding morbidity and whether posttreatment expectations were achieved.Evaluation of quality of life in cancer of the head and neck is especially important because the treatment sequelae impact directly on basic daily functions like breathing, swallowing, speaking, and even on external appearance. Quality of life studies can give us a better idea and understanding of what patients consider to be their problems and priorities after treatment.The purpose of this study was to evaluate the impact of surgical sequelae treatment of cancer of the larynx on the psychosocial adjustment of patients and identify those factors the patients consider most important in the adjustment process. PATIENTS AND METHODSPatients were treated for laryngeal cancer at the Department of Otorhinolaryngology of the Dr Peset University Hospital, Valencia, Spain. Data were collected through mail questionnaires answered by 62 patients who had undergone surgery for laryngeal or hypopharyngeal cancer All patients were followed for more than 36 months. Appropriate consent was obtained from patients who were informed of the aim of the study and assured of the confidentiality of data and voluntary character of the study. Instructions were given to answer questions with reference to the 4 weeks before completion of the questionnaire.The mean age was 63.8 years (range, 41 to 85); 99% (61/62) were male; 87% were married, 2% were divorced, 5% were single, and 6% were widowed. Seventy-one pe...

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Section: Discussionmentioning

confidence: 99%

Section: Discussionmentioning

confidence: 99%

Psychosocial adjustment in patients surgically treated for laryngeal cancer

Ramı́rez

Ferriol

Doménech

et al. 2003

Otolaryngology - Head and Neck Surgery

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“…It is, therefore, not surprising that pulmonary function values after total laryngectomy are significantly lower than predicted [3,36]. It should be realized that more than the loss of the normal voice, the presence of a stoma, together with the above-mentioned respiratory problems is considered to be the major problem of laryngectomy by the patients [37].…”

Section: Pulmonary Rehabilitationmentioning

confidence: 98%

“…Patients also report changes in dietary habits and the inability to enjoy food. However, these latter changes were considered less important than other consequences of the operation, such as loss of the natural voice, presence of a stoma, pulmonary complications and psychosocial problems [4,37]. Underestimation of the olfactory and gustatory changes and the absence of a specific effective technique may explain why little attention is paid to these problems during rehabilitation.…”

Section: Olfactory Rehabilitationmentioning

confidence: 99%

Comprehensive Rehabilitation after Total Laryngectomy Is More than Voice Alone

Hilgers¹,

Ackerstaff²

1999

Folia Phoniatr Logop

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Comprehensive rehabilitation after total laryngectomy is more than voice alone. The removal of the larynx and the subsequent disconnection of the upper and lower airways not only has consequences for the vocal function but also for the respiratory system, and for the olfactory acuity of the patient. The results of the research program on these three subjects in the Netherlands Cancer Institute over the last 12 years are discussed in detail along with some of the relevant other literature on the topics. The considerable progress in these areas over the last 2 decades has clearly improved the quality of life of laryngectomized patients.

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“…A qualidade de vida do paciente que sofre a retirada da laringe e, conseqüen-temente, de suas cordas vocais, tem, em muitos destes trabalhos, recebido especial ênfase (Kligerman et al, 1992;Mohide et al, 1992).…”

Section: Introductionunclassified

Avaliação da qualidade de vida em pacientes laringectomizados: uma revisão sistemática

Moreno

Lopes

2002

Cad. Saúde Pública

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Postlaryngectomy quality-of-life dimensions identified by patients and health care professionals

Cited by 120 publications

References 8 publications

Psychosocial adjustment in patients surgically treated for laryngeal cancer

Psychosocial adjustment in patients surgically treated for laryngeal cancer

Comprehensive Rehabilitation after Total Laryngectomy Is More than Voice Alone

Avaliação da qualidade de vida em pacientes laringectomizados: uma revisão sistemática

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