Pratiques non conventionnelles et articulation des soins en cancérologie. Le rôle actif des patients

Joël, Myriam; Rubio, Vincent

doi:10.3917/sss.334.0073

Cited by 13 publications

(4 citation statements)

References 6 publications

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“…)”, initially contained in the category “Health and wellness” was moved to the “Emotional health” dimension because of a greater loading in the latter. This shift seemed to belong to a logic of provision of these alternative treatments in the treatment of the psychological consequences of a cancer [ 33 ].…”

Section: Discussionmentioning

confidence: 99%

Construction and preliminary validation of a tool to measure the needs of adolescents and young adults (AYA) diagnosed with cancer: the QUestionnaire nEEd Cancer AYAs: QUEEC-AYAs

Justafré,

Marino,

Touzani

et al. 2024

Health Qual Life Outcomes

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Context In France, 2300 adolescents and young adults (AYAs, 15–25 years old) are diagnosed with cancer each year. As soon as the disease is diagnosed, a number of physical, psychological and social needs may arise. The aim of this study is to develop a tool to measure unmet needs that will allow the specificities of AYAs to be understood while allowing health care staff to mobilise the necessary actors to resolve them. Methods We developed the Questionnaire nEEd Cancer AYAs (QUEEC-AYAs questionnaire), from two existing questionnaires: the Cancer Needs Questionnaire Young People and the Needs Assessment & Service Bridge. A main sample of 103 AYAs then received and completed the questionnaire in order to conduct an exploratory factor analysis. Results The final structure of the QUEEC-AYAs is composed of 7 dimensions and 48 items: information (8 items), cancer care team (6 items), Physical health (4 items), Emotional health (14 items), Sexual & reproductive health (6 items), Health behaviors & wellness (4 items), Daily life (6 items). The questionnaire has a good acceptability and all domains have a Cronbach’s alphas value above 0.80. Conclusion The QUEEC-AYAs is the first measure of the psychosocial needs of AYAs available in French. Its systematic use in health care services should improve the coordination of care required by AYAs during and after treatment. Trial registration This study was approved by the ethics committee of the Paoli-Calmettes Institute (IRB # IPC 2021-041, 2021 May 20).

show abstract

Section: Discussionmentioning

confidence: 99%

Construction and preliminary validation of a tool to measure the needs of adolescents and young adults (AYA) diagnosed with cancer: the QUestionnaire nEEd Cancer AYAs: QUEEC-AYAs

Justafré,

Marino,

Touzani

et al. 2024

Health Qual Life Outcomes

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show abstract

“…The results also show that the likelihood to use SOC is determined by differentiated relationships with the medical world [ 30 ]. Some patients essentially expect curative, technical, and efficient care and do not consider that “comfort” or “well-being”-related care is a matter of medical responsibility.…”

Section: Discussionmentioning

confidence: 99%

Understanding Inequalities in the Uptake of Supportive Care to Improve Practices in the Cancer Care Continuum

Baumgart

Kane

Pelletier

et al. 2022

Cancers

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(1) Background: While inequalities in the prevalence of cancer, access to care, and survival have been well documented, less research has focused on inequalities in the uptake of supportive oncology care. Given its contribution to improving the quality of life of people affected by cancer, access to such care is a major public health issue. The present study focuses on the access and uptake of those supportive oncology care services. (2) Methods: This study is based on qualitative research methodology, using a thematic analysis tree on NVivo© analysis software. First, an exploratory survey was conducted with users of oncology services, and professionals from these services and supportive oncology care. Then, individual interviews were conducted in June 2022 among people who are currently being treated or have been treated for cancer. (3) Results: The experiences of the 33 respondents revealed that significant variations in the uptake of supportive oncology care are underpinned by identifiable disparities in their healthcare pathways: in their assimilation of information, difficulties in accessing oncology care, personal reluctance and motivations, perceived needs and benefits, and use of other medicines. (4) Conclusion: This study aims to gain some insight into disparities in the uptake of supportive care in the Centre-Val de Loire region (France). Thus, it provides a better understanding of the complex ways in which these inequalities in supportive oncology care uptake are constructed.

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“…)", initially contained in the category "Health and wellness" was moved to the "Emotional health" dimension because of a greater loading in the latter. This shift seemed to belong to a logic of provision of these alternative treatments in the treatment of the psychological consequences of a cancer [32].…”

Section: Adjustments Induced By the Loadingsmentioning

confidence: 99%

Construction and validation of a tool for measuring the needs of adolescents and young adults (AYAs) diagnosed with cancer: the QUestionnaire nEEd Cancer AYAs : QUEEC-AYAs

Justafré

Marino

Touzani

et al. 2023

Preprint

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Context: In France, 2300 adolescents and young adults (AYAs, 16-25 years old) are diagnosed with cancer each year. As soon as the disease is diagnosed, a number of physical, psychological and social needs may arise. The aim of this study is to develop a tool to measure unmet needs that will allow the specificities of AYAs to be understood while allowing health care staff to mobilise the necessary actors to resolve them. Methods: We developed the Questionnaire nEEd Cancer AYAs (QUEEC-AYAs questionnaire), from two existing questionnaires: the Cancer Needs Questionnaire Young People and the Needs Assessment & Service Bridge. A main sample of 103 AYAs then received and completed the questionnaire in order to conduct an exploratory factor analysis. Results: The final structure of the QUEEC-AYAs is composed of 7 dimensions and 48 items: information (8 items), cancer care team (6 items), Physical health (4 items), Emotional health (14 items), Sexual & reproductive health (6 items), Health behaviors & wellness (4 items), Daily life (6 items). The questionnaire has a good acceptability and all domains have a Cronbach's alphas value above 0.80. Conclusion: The QUEEC-AYAs is the first measure of the psychosocial needs of AYAs available in French. Its systematic use in health care services should improve the coordination of care required by AYAs during and after treatment. Trial registration: This study was approved by the ethics committee of the Paoli-Calmettes Institute (IRB # IPC 2021-041, 2021 May 20).

show abstract

Pratiques non conventionnelles et articulation des soins en cancérologie. Le rôle actif des patients

Cited by 13 publications

References 6 publications

Construction and preliminary validation of a tool to measure the needs of adolescents and young adults (AYA) diagnosed with cancer: the QUestionnaire nEEd Cancer AYAs: QUEEC-AYAs

Construction and preliminary validation of a tool to measure the needs of adolescents and young adults (AYA) diagnosed with cancer: the QUestionnaire nEEd Cancer AYAs: QUEEC-AYAs

Understanding Inequalities in the Uptake of Supportive Care to Improve Practices in the Cancer Care Continuum

Construction and validation of a tool for measuring the needs of adolescents and young adults (AYAs) diagnosed with cancer: the QUestionnaire nEEd Cancer AYAs : QUEEC-AYAs

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