Preconception Counseling for Adolescents and Young Adults with Diabetes: a Literature Review of the Past 10 Years

Peterson-Burch, Frances; Abujaradeh, Hiba; Charache, Nicole; Fischl, Andrea F.; Charron‐Prochownik, Denise

doi:10.1007/s11892-018-0983-7

Cited by 11 publications

(9 citation statements)

References 47 publications

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“…Finally, reproductive health and concerns around future pregnancy and the risk of diabetes in offspring represent other salient LTCs but were not covered in the study. Similarly, past studies of this age-group also did not include this topic (3,5,7), whereas there is a body of literature by Peterson-Burch et al (26) on this important topic.…”

Section: Discussionmentioning

confidence: 98%

Adolescent and Parent Perceptions of Long-Term Type 1 Diabetes Complications

et al. 2021

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AIMS | Conversations about diabetes complications with adolescents and parents can be difficult and emotionally charged. To better inform conversations between providers and families, we sought adolescent and parent perspectives regarding their knowledge of long-term complications (LTCs), where they receive this information, and what they would like to learn from clinicians.METHODS | Adolescents with type 1 diabetes and parents of adolescents with type 1 diabetes participated in semistructured interviews querying knowledge of LTCs, sources of information, and preferred ways for providers to discuss LTCs. Interview transcripts were coded and categorized into central themes by content analysis.RESULTS | Participants included 22 adolescents (17.4 6 1.7 years of age, diabetes duration 9.7 6 4.0 years) and 25 parents (41-60 years of age, 84% mothers). Five themes related to complications were identified: 1) "Limited Adolescent Knowledge of Complications," 2) "Discussing Complications Is Important but Not Now or Not for Me," 3) "Outside Sources Overestimate Risk," 4) "Avoid Scare Tactics" and 5) "Emphasize Prevention." Adolescent and parent perspectives were similar, although parents showed greater understanding of complications.CONCLUSION | When discussing complications, individualized, factual, positive, and prevention-focused conversations may be better received by adolescents with type 1 diabetes and their families.

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Section: Discussionmentioning

confidence: 98%

Adolescent and Parent Perceptions of Long-Term Type 1 Diabetes Complications

et al. 2021

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“…Therefore, we included one‐on‐one interview data collection method as a means to accommodate the logistics of this data collection. Published literature supports the importance of including HCP perspectives early in the development phase of program development and that often these are small samples justified by their unique and specific expertise . The facilitator guide included questions about providing care and counseling for AI/AN girls at risk for GDM, GDM risk factor reduction, experiences with successful programs for AI/AN teens, and comfort of mothers and daughters talking about diabetes and RH.…”

Section: Methodsmentioning

confidence: 99%

“…A recent systematic review of PC studies among adolescents and young adult women with diabetes recommends that providing individualized and culturally‐sensitive PC advice and care according to the patient's needs . Furthermore, evidence from our previous studies showed that tailoring sensitive topics such as PC and RH to specific ethnic groups, such as African American and Latina girls with diabetes, is highly needed.…”

Section: Introductionmentioning

confidence: 99%

Recommendations from an expert panel of health professionals regarding a gestational diabetes risk reduction intervention for American Indian/Alaska Native Teens

Terry¹,

Stotz

Charron‐Prochownik

et al. 2020

Pediatr Diabetes

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Background: American Indian/Alaska Native (AI/AN) adolescents are at higher risk for gestational diabetes (GDM), type 2 diabetes, and pregnancy complications than the general population.Objective: To inform cultural adaptation of a validated evidence-based intervention (VEBI) originally designed to deliver preconception counseling and diabetes education to non-AI/AN teens with diabetes.Design: Qualitative data were collected using focus group and individual interview methods with health care professionals and experts (n = 16) in AI/AN health, GDM, adolescent health, and/or mother-daughter communication. A semistructured discussion guide elicited responses about provision of care for AI/AN girls at risk for GDM, experience with successful programs for AI/AN teens, comfort of mother/daughter dyads in talking about diabetes and reproductive health and reactions to video clips and booklet selections from the VEBI. All interviews were recorded and transcribed verbatim, and data analysis included inductive coding and identification of emergent themes.Results: Providers felt teens and their moms would be comfortable talking about the VEBI topics and that teens who did not feel comfortable talking to their mom would likely rely on another adult female. Participants suggested including: AI/AN images/ motifs, education with a community focus, and avoiding directive language. Concerns included: socioeconomic issues that affect AI/AN people such as: food and housing insecurity, abuse, and historical trauma.Conclusions: Perspectives from these participants have been used to guide the development of a culturally tailored GDM risk reduction program for AI/AN girls. This program will be available to health care providers who serve the AI/AN population. K E Y W O R D S American

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“…13 Preconception care should empower women with diabetes to have a positive experience in pregnancy and reduce the risk of adverse outcomes for mother and baby. 14,15 Preconception counselling…”

Section: Type 1 Diabetes and Type 2 Diabetes: Preconception Managementmentioning

confidence: 99%

“…Information and counselling should be provided to all women of reproductive age so they are aware of the risks associated with diabetes in pregnancy and the inherent risks of an unplanned pregnancy 16–18 . Adequate contraception should be discussed at each annual review.…”

Section: Type 1 Diabetes and Type 2 Diabetes: Preconception Managementmentioning

confidence: 99%

ADIPS 2020 guideline for pre‐existing diabetes and pregnancy

Rudland

Price

Hughes

et al. 2020

Aust NZ J Obst Gynaeco

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This is the full version of the Australasian Diabetes in Pregnancy Society (ADIPS) 2020 guideline for pre-existing diabetes and pregnancy. The guideline encompasses the management of women with pre-existing type 1 diabetes and type 2 diabetes in relation to pregnancy, including preconception, antepartum, intrapartum and postpartum care. The management of women with monogenic diabetes or cystic fibrosis-related diabetes in relation to pregnancy is also discussed. E19 V. L. Rudland et al. GUIDELINE DEVELOPMENT AND METHODOLOGY This guideline is a consensus-based guideline, designed to provide practical guidance to clinicians. It was developed with a multidisciplinary writing team including obstetricians, endocrinologists, obstetric physicians, credentialled diabetes educators (CDE), midwives, lactation consultants and accredited practising dietitians (APD) with expertise in diabetes in pregnancy. It had input from both Australian and New Zealand clinicians. The writing group members were drawn from a variety of clinical backgrounds, including practitioners from metropolitan, regional and rural/ remote settings. The guideline did not aim to meet the National Health and Medical Research Council standard for guidelines, and rating quality of evidence or strength of each recommendation was out of scope. There was no funding available and this work was completed on a purely voluntary basis. The literature was reviewed, and each member of the writing group was assigned a section of the guideline to write. Sections were then reviewed by all members, and a consensus of expert opinion was achieved. The guideline was reviewed by the Australasian Diabetes in Pregnancy Society (ADIPS) board, and then widely disseminated throughout Australia and New Zealand for stakeholder review, with feedback from 14 professional organisations and 17 ADIPS members (obstetricians, endocrinologists, midwives, dietitians). The guideline writing group would like to acknowledge the valuable and extensive feedback provided. Each item of feedback was reviewed by the writing group and a consensus decision was made in response to each item of feedback. There are key areas that this guideline does not address: 1. Routine pregnancy care: This guideline specifically addresses issues of pre-existing diabetes and pregnancy. It does not include details of routine pregnancy care. Women with pre-existing diabetes and pregnancy require all the usual preconception, antenatal, peripartum and postnatal care that every other woman requires. This guideline is designed to supplement all the usual guidelines for regular pregnancy care for all women. 2. Social determinants of disease are important contributors to the excess burden of type 2 diabetes in Aboriginal and Torres Strait Islander, Maori and Pasifika women. The relationship between social determinants of disease and disease management is critically important. The complexity of these important issues is beyond the scope of this document and cannot be given due consideration in this already lengthy clinical guid...

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Preconception Counseling for Adolescents and Young Adults with Diabetes: a Literature Review of the Past 10 Years

Cited by 11 publications

References 47 publications

Adolescent and Parent Perceptions of Long-Term Type 1 Diabetes Complications

Adolescent and Parent Perceptions of Long-Term Type 1 Diabetes Complications

Recommendations from an expert panel of health professionals regarding a gestational diabetes risk reduction intervention for American Indian/Alaska Native Teens

ADIPS 2020 guideline for pre‐existing diabetes and pregnancy

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