Predicting GP visits: A multinomial logistic regression investigating GP visits amongst a cohort of UK patients living with Myalgic encephalomyelitis

Abstract

Background: Myalgic Encephalomyelitis (ME) is a chronic condition whose status within medicine is the subject of ongoing debate. Some medical professionals regard it as a contentious illness. Others report a lack of confidence with diagnosis and management of the condition. The genesis of this paper was a complaint, made by an ME patient, about their treatment by a general practitioner. In response to the complaint, Healthwatch Trafford ran a patient experience-gathering project. Method: Data was collected from 476 participants (411 women and 65 men), living with ME from across the UK. Multinomial logistic regression investigated the predictive utility of length of time with ME; geographic location (i.e. Manchester vs. rest of UK); trust in GP; whether the patient had received a formal diagnosis; time taken to diagnosis; and gender. The outcome variable was number of GP visits per year. Results: All variables, with the exception of whether the patient had received a formal diagnosis, were significant predictors. Conclusions: Relationships between ME patients and their GPs are discussed and argued to be key to the effective delivery of care to this patient cohort. Identifying potential barriers to doctor patient interactions in the context of ME is crucial.

Feeling like ‘a damaged battery’: exploring the lived experiences of UK university students with ME/CFS

“…The lack of a biological marker for the illness makes it difficult to define, leading to medical professionals being skeptical about the illness and decreasing the possibility of diagnoses [2]. The prevalence of ME/CFS in the UK is estimated to be 0.2%-0.4%, equating to around 260,000 people [3]. There is a lack of information on how many people recover from ME/CFS, but it is known that it is more common for children and young people to do so [4].…”