Predicting Health Care Utilization for Children With Respiratory Insufficiency Using Parent-Proxy Ratings of Children's Health-Related Quality of Life

Rodday, Angie Mae; Graham, Robert J.; Weidner, Ruth Ann; Terrin, Norma; Leslie, Laurel K.; Parsons, Susan K.

doi:10.1016/j.pedhc.2017.04.021

Cited by 13 publications

(18 citation statements)

References 29 publications

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“…The cases where the parents rated higher than children were in general few. Overall, the parents rated their child's QoL lower than the child itself ( González et al, 2017 ; Graham et al, 2013; Noyes 2007 ; Rodday et al, 2017 ; Seear et al, 2016 ). In common, for all studies was that the result showed that children did not perceive their QoL as low as their parents did.…”

Section: Resultsmentioning

confidence: 99%

Quality Of Life in Children With Home Mechanical Ventilation – A Scoping Review

et al. 2022

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Introduction Home mechanical ventilation is an established method to support children suffering from chronic respiratory insufficiency, still more research is needed regarding mechanically ventilated children's and adolescents’ quality of life (QoL). Therefore, the aim of this scoping review was to explore research regarding QoL and lived experience of children and adolescents with home mechanical ventilation. Methods A scoping review with systematic searches for research studies published between year 2000–2020 was performed in Cinahl, Medline, and PubMed. Studies that met the inclusion criteria were quality assessed and a thematic analysis was performed. Results In total, ten articles were quality assessed and included in the results. Four themes emerged: Children's self-reported QoL, Parents’ perception and parent-proxy report, Differences between the child's and parent's perception, and challenges in daily life. Children with home mechanical ventilation reported a lower QoL than healthy children and children with other chronic diseases. Generally, parents rate their child's QoL lower than the children themselves. Conclusion This is the first literature review focusing on HMV in the paediatric population. It is clear that HMV does not only affect the treated child or adolescent but also the whole family. It is important to regularly measure and evaluate QoL in children and adolescents with HMV to provide person-centered care. More research is needed to improve these children's and adolescents’ QoL.

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Section: Resultsmentioning

confidence: 99%

Quality Of Life in Children With Home Mechanical Ventilation – A Scoping Review

et al. 2022

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“…Frequent utilization of emergency department (ED) services places considerable burden on medical resources [Pearson et al, 2017] and is more costly than treatment provided through primary and urgent care settings [Montalbano, Rodean, Kangas, Lee, & Hall, 2016;Soril, Leggett, Lorenzetti, Noseworthy, & Clement, 2015]. In addition to high cost of care, individuals who frequently use the ED, particularly for low acuity or chronic conditions, have poorer health-related quality of life than those who do not [Guilbert et al, 2011;Rodday et al, 2017]. As such, there have been increased efforts to identify characteristics associated with frequent ED utilization so that interventions can be developed to improve access to and utilization of community-based primary care.…”

Section: Introductionmentioning

confidence: 99%

Emergency department utilization and monetary charges in adolescents with autism spectrum disorder, intellectual disability, and a population comparison group

et al. 2019

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Adolescents with autism spectrum disorder (ASD) and/or intellectual disability (ID) may utilize the emergency department (ED) more frequently than individuals in the general population. This study compared ED utilization and charges during adolescence among four groups of individuals: ASD‐only, ASD + ID, ID‐only, and a population comparison (PC) group. ED visits occurring during age 12–17 years were examined to identify non, low, and high utilizers. Logistic regression was used to compare groups on the odds of having at least one ED visit during adolescence. Generalized linear models were used to compare groups on number of ED visits and total charges, stratified by low and high ED utilization. Descriptive examination of presenting diagnoses was performed. Individuals with ID, with or without co‐occurring ASD, were significantly more likely to have at least one ED visit during adolescence. Among high ED utilizers, the ID‐only group had the most frequent ED visits but had significantly lower charges than the ASD‐only group. Individuals with ASD‐only and ASD + ID differed from the ID‐only and PC groups in presenting diagnoses. No differences between groups in number of ED visits or charges were observed among low utilizers. ID, with or without ASD, increased the odds of visiting the ED during adolescence. Adolescents with ID‐only had the most frequent ED visits, but individuals with ASD‐only had the highest ED charges and tended to be seen for psychiatric concerns. Further research is warranted to better characterize and meet the healthcare needs of individuals with ASD and/or ID during adolescence. Autism Res 2019, 12: 1129–1138. © 2019 International Society for Autism Research, Wiley Periodicals, Inc. Lay Summary Frequent emergency department (ED) visits strain medical resources and are costlier than primary and urgent care. Our findings show that adolescents with intellectual disability (ID) may use the ED frequently for nonurgent conditions. Adolescents with autism spectrum disorder, without ID, use the ED less frequently but incur higher charges. Further research is needed to understand how to meet the unique needs of these populations in primary care to prevent overuse of the ED.

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“…ACS admissions account for approximately 12% of all hospital charges for adults and 20% for children [Shi, Samuels, Pease, Bailey, & Corley, 1999]. In addition to increased healthcare costs and frequency of ACS admissions, ACS conditions (e.g., asthma, diabetes) that are not well-managed have been linked with poorer health-related quality of life [Guilbert et al, 2011;Mendoza-Núñez, Flores-Bello, Correa-Muñoz, Retana-Ugalde, & Ruiz-Ramos, 2016;Rodday et al, 2017;Vanstone, Rewegan, Brundisini, Dejean, & Giacomini, 2015]. As such, there have been increased efforts to identify factors that are associated with elevated risk of ACS admissions that may serve as viable intervention targets.…”

Section: Introductionmentioning

confidence: 99%

Ambulatory Care Sensitive Admissions in Individuals With Autism Spectrum Disorder, Intellectual Disability, and Population Controls

et al. 2018

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Ambulatory care sensitive (ACS) admissions are those for which effective primary care can prevent the need for emergency department (ED) visits and inpatient hospitalizations, and are an indicator of primary care access. Individuals with autism spectrum disorder (ASD) and/or intellectual disability (ID) may be at higher risk for ACS admissions than individuals in the general population due to difficulty accessing primary care. The objective of this study was to compare the incidence of ACS admissions among four cohorts of individuals aged 2–24 years: ASD without co‐occurring ID (ASD‐only), ASD with co‐occurring ID (ASD + ID), ID without ASD (ID‐only), and population controls (PC). Data from ED visits and inpatient hospitalizations occurring between January 1, 2000 and December 31, 2015 were examined to identify ACS admissions. Generalized linear models were used to examine differences between cohorts on the number of ACS ED visits and inpatient hospitalizations. Results revealed the ASD + ID and ID‐only cohorts had significantly higher rates of ACS inpatient hospitalizations than the PC cohort. Additionally, the ID‐only cohort had higher rates of ACS ED visits than the PC cohort. The ASD‐only and PC cohorts did not differ on incidence of ACS admissions. These findings suggest that presence of an ID with or without co‐occurring ASD increased the risk for ACS inpatient hospitalizations, and presence of ID‐only increased the risk for ACS ED visits. Future work should examine trajectories of ACS admissions over time and consider inclusion of additional characteristics that may elucidate reasons for differences in ACS admissions among these groups. Autism Res 2019, 12: 295–302 © 2018 International Society for Autism Research, Wiley Periodicals, Inc. Lay Summary Preventable hospitalizations are a common indicator of problems with access to quality primary healthcare. Findings of this study suggest that individuals with intellectual disability, with or without autism spectrum disorder, have higher rates of preventable hospitalizations than the general population. Further research is needed to understand how to improve access to primary care and reduce preventable hospitalizations for this vulnerable population.

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Predicting Health Care Utilization for Children With Respiratory Insufficiency Using Parent-Proxy Ratings of Children's Health-Related Quality of Life

Cited by 13 publications

References 29 publications

Quality Of Life in Children With Home Mechanical Ventilation – A Scoping Review

Quality Of Life in Children With Home Mechanical Ventilation – A Scoping Review

Emergency department utilization and monetary charges in adolescents with autism spectrum disorder, intellectual disability, and a population comparison group

Ambulatory Care Sensitive Admissions in Individuals With Autism Spectrum Disorder, Intellectual Disability, and Population Controls

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