Predictors of Caregiver Burden in Aged Caregivers of Demented Older Patients

Tsai, Chang‐Youh; Hwang, Wei-Shen; Lee, Jun-Jun; Wang, Wenfu; Huang, Ling‐Chun; Huang, Li‐Kai; Lee, Wei Ju; Sung, Pi‐Shan; Liu, Yi‐Chien; Hsu, Chih‐Cheng; Fuh, Jong Ling

doi:10.21203/rs.3.rs-72831/v1

Cited by 3 publications

(3 citation statements)

References 29 publications

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“…It is possible that this may be influenced by the need for women to conform to societal gender norms, hence, prioritizing caregiving over their own needs, as well as factors related to culture, more personal approach to care delivery, and being more frequently affected by widowhood 2,4,5,39–43,68 . The last explanation is correlated with age as it has also been proposed that older caregivers have higher burden levels 7,8,38 . However, contrary to most reports, we did not find an association of burden with age, possibly due to skewing of our respondent sample by age, with the majority being over age 45.…”

Section: Discussioncontrasting

confidence: 76%

“…This is particularly the case for those providing care for people with enduring brain conditions, due to social segregation, and cognitive and emotional deterioration of the care recipients, reflecting a dyadic impact 4,5,30–34 . Pandemic‐related restrictions have now exaggerated rates of loneliness and social isolation globally, 35 particularly in older people, 7,8,36–38 women, 2,5,39–43 and informal caregivers of people with enduring health conditions 14,16,36,44,45 . Informal caregiver status is an independent risk factor for increased loneliness during COVID‐19 35 …”

Section: Introductionmentioning

confidence: 99%

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Care burden, loneliness, and social isolation in caregivers of people with physical and brain health conditions in English‐speaking regions: Before and during the COVID‐19 pandemic

Grycuk

Chen

Almirall‐Sanchez

et al. 2022

Int J Geriat Psychiatry

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Background Public health restrictions due to the COVID‐19 (SARS CoV‐2) pandemic have disproportionately affected informal caregivers of people living with long term health conditions. We aimed to explore levels of care burden, loneliness, and social isolation among caregivers of people with enduring physical and brain health conditions in English‐speaking regions worldwide, by investigating outcomes before and during the COVID‐19 pandemic. Methods A cross‐sectional anonymous online survey data from 2287 English‐speaking caregivers of people with long term health conditions from four English‐speaking regions (UK, Ireland, USA, New Zealand) included measures of care burden, loneliness, and social isolation, reported before and during the COVID‐19 pandemic. Analyses were descriptive, followed by an ordinal regression model for predictors of burden. Results Compared to pre‐pandemic levels, all caregivers experienced a significant increase in burden, loneliness, and isolation. Caregivers of people with both brain health and physical conditions were the most burdened and had the highest levels of loneliness and isolation compared to caregivers of people with either a brain health or physical condition only. The increase in care burden among caregivers of people with brain health challenges was associated with caregiver's gender, moderate and severe emotional loneliness, magnitude and frequency of isolation during the pandemic, and care circumstances (cohabitation with the care recipient, restrictions on the ability to provide care). Conclusions Health and social care interventions should target caregivers' care circumstances and psychological outcomes, particularly in women, accounting for the significant additional burden of care, loneliness, and isolation resulting from pandemic‐related restrictions.

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Section: Discussioncontrasting

confidence: 76%

Section: Introductionmentioning

confidence: 99%

Care burden, loneliness, and social isolation in caregivers of people with physical and brain health conditions in English‐speaking regions: Before and during the COVID‐19 pandemic

Grycuk

Chen

Almirall‐Sanchez

et al. 2022

Int J Geriat Psychiatry

View full text Add to dashboard Cite

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“…To that end, Al-Janabi et al [7] developed an extended version of the Caregiver Strain Index [8], adding 5 items measuring “positive” aspects of care that may decrease caregiver burden. Some factors that may influence burden scores are caregiver characteristics [9, 10], patients’ neuropsychiatric symptoms [11-13], functional impairment – particularly in instrumental activities of daily living (iADL [11, 12, 14]) – and objective cognitive impairment.…”

Section: Introductionmentioning

confidence: 99%

Caregiver Burden in a Culturally Diverse Memory Clinic Population: The Caregiver Strain Index-Expanded

Franzen

Eikelboom

Berg

et al. 2021

Dement Geriatr Cogn Disord

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Introduction: Although qualitative studies have highlighted substantial barriers to dementia diagnosis and care in culturally diverse populations in Europe, quantitative studies examining the level of caregiver burden in these populations have been lacking thus far and are urgently needed. Methods: We compared the caregiver burden levels on the Caregiver Strain Index (CSI)-Expanded of 63 culturally diverse patient-caregiver dyads from a multicultural memory clinic with 30 native Dutch patient-caregiver dyads and examined the association between caregiver burden and determinants of burden. Results: Informal caregivers in the multicultural memory clinic cohort experienced a high level of caregiver burden (mean CSI-score multicultural cohort: 6.1 [SD: 3.3]; mean CSI-score native Dutch cohort: 4.8 [SD: 3.2]). Burden was significantly associated with impairment on proxy-rated and objective measures of cognitive functioning, such as the Informant Questionnaire on Cognitive Decline and the Rowland Universal Dementia Assessment Scale, and with instrumental activities of daily living. Burden was the highest in spousal caregivers. The positive subscale of the CSI-Expanded provided limited additional information. Conclusion: Caregivers of culturally diverse patients experience a high level of caregiver burden, in particular at more advanced disease stages. This study highlights the need to screen culturally diverse caregivers in European memory clinics on caregiver burden to identify those in need of caregiver support.

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Assessment of the Burden of Care and Burnout Level in Caregivers of Dementia Patients in a Home Care Setting

Yurt

Yavuz

2022

Euras J Fam Med

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Aim: This study aims to evaluate the factors affecting the care burden and burnout levels of caregivers with dementia patients receiving home care services. Methods: This descriptive study was conducted in Samsun Training and Research Hospital Home Care Services which paid a visit at home between March 20 and June 20, 2021. The caregivers of the patients who were followed up by the diagnosis of dementia were included in the study after having agreed to participate in the study with their written informed consents. The 'Socio-demographic Data Form', 'Zarit Burden Interview' and 'Maslach Burnout Inventory’ were administered to caregivers during face-to-face interviews. Results: A total of 157 caregivers were included in our study, of which 70.1% (n=110) were women. 68.2% (n=107) were in the 40-64 years age group. The mean Zarit Burden Interview score was calculated as 47.10±16.14 (min=21, max=85). 76.4% of caregivers had moderate to severe escalated care burden. Once the impact of the increase in caregiver burden score on Maslach Burnout Inventory subgroups was examined, the relationship was found to be positively significant with emotional exhaustion and depersonalization, and negatively significant with personal achievement. Conclusion: As the burden of care increases, the level of burnout of individuals increases. Female gender, illiteracy, lack of income, duration of care given which is prolonged for more than one year, and daily care duration exceeding 12 hours were determined as outstanding factors that increase the care burden and level of burnout. Keywords: home care services, caregivers, dementia, caregiver burnout

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Predictors of Caregiver Burden in Aged Caregivers of Demented Older Patients

Cited by 3 publications

References 29 publications

Care burden, loneliness, and social isolation in caregivers of people with physical and brain health conditions in English‐speaking regions: Before and during the COVID‐19 pandemic

Care burden, loneliness, and social isolation in caregivers of people with physical and brain health conditions in English‐speaking regions: Before and during the COVID‐19 pandemic

Caregiver Burden in a Culturally Diverse Memory Clinic Population: The Caregiver Strain Index-Expanded

Assessment of the Burden of Care and Burnout Level in Caregivers of Dementia Patients in a Home Care Setting

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