Predictors of caregiving satisfaction in informal caregivers of people with dementia

Labra, Carmen de; Millán-Calentí, José Carlos; Buján, Ana; Núñez-Naveira, Laura; Jensen, Anders Møller; Peersen, Merete Charlotte; Mojs, Ewa; Samborski, Włodzimierz; Maseda, Ana

doi:10.1016/j.archger.2015.03.002

Cited by 56 publications

(51 citation statements)

References 65 publications

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“…Most of the caregivers that participated in the study were female, in coherence with the results of previous works [35] and with the fact that the care of the relatives used to rely on the female individuals of the family [2, 36]. The high percentage of actively working caregivers (62.3%) points to the fact that many of them are juggling their working and caring duties.…”

Section: Discussionsupporting

confidence: 82%

UnderstAID, an ICT Platform to Help Informal Caregivers of People with Dementia: A Pilot Randomized Controlled Study

Núñez-Naveira

Alonso-Búa

Labra

et al. 2016

BioMed Research International

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141

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Information and communications technology (ICT) could support ambient assisted living (AAL) based interventions to provide support to informal caregivers of people with dementia, especially when they need to cope with their feelings of overburden or isolation. An e-learning platform (understAID application) was tested by informal caregivers from Denmark, Poland, and Spain to explore the technical and the pedagogical specifications, as well as evaluating the impact of its use on the psychological status of the participants. 61 informal caregivers completed the study taking part in the experimental (n = 30) or control (n = 31) groups. 33.3% of the caregivers were satisfied with the application and around 50% of the participants assessed it as technically and pedagogically acceptable. After using understAID the caregivers in the experimental group significantly decreased their depressive symptomatology according to the Center for Epidemiologic Studies Depression scale, but a possible benefit on their feelings of competence and satisfaction with the caring experience was also observed. The low scores obtained for satisfaction were highlighting issues that need to be modified to meet the informal caregivers' needs in national, social, and cultural context. Some possible biases are also considered and discussed to be taken into account in future improvements of understAID application.

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Section: Discussionsupporting

confidence: 82%

UnderstAID, an ICT Platform to Help Informal Caregivers of People with Dementia: A Pilot Randomized Controlled Study

Núñez-Naveira

Alonso-Búa

Labra

et al. 2016

BioMed Research International

Self Cite

141

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“…By contrast, in a multinational European study 70% of caregivers were women, with an average age of 61. Caregivers were consanguineous to the patient in 52% of cases, and 50% were employed …”

Section: Literature Reviewmentioning

confidence: 99%

“…A large proportion of caregivers experience positive aspects of caregiving, such as the rewards or satisfaction derived from the caregiving relationship . Different aspects contribute to these positive experiences, such as observing desirable outcomes in the patient, and experiencing caregiving as meaningful, satisfying and fulfilling.…”

Section: Literature Reviewmentioning

confidence: 99%

“…Different aspects contribute to these positive experiences, such as observing desirable outcomes in the patient, and experiencing caregiving as meaningful, satisfying and fulfilling. Several caregiver‐ and patient‐related factors make these positive experiences more likely: a good relationship between caregiver and patient before the illness, being a caregiver voluntarily (as opposed to circumstance or family imposition), maintaining leisure time, caregiver not working outside of the home, caregiver resorting less to venting as a way of managing negative emotions, caregiver satisfaction with the social support received and lower caregiver burden . The Caregiver Satisfaction Scale (CSS) was developed to measure these positive aspects.…”

Section: Literature Reviewmentioning

confidence: 99%

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The caregiving phenomenon and caregiver participation in dementia

García-Ptacek

Dahlrup

Edlund

et al. 2018

Scandinavian Caring Sciences

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Background Dementia presents barriers to the collaboration between individuals and the healthcare system. Caregivers perform multiple functions helping patients with basic and instrumental activities but also communicating and mediating the dyads’ needs within the broader social group. Interventions focusing on caregivers show that caregiver burden can be reduced, improving patient outcomes in a cost‐effective way, but the generalisation of these findings is limited by several factors such as low participation rates of caregivers in studies. There is a global push to increase patient participation in health care, but this can be difficult for patients with dementia. Caregiver participation has arisen as a substitute, but there is a lack of standardised definitions, goals and outcome measurement tools for this participation. Methods In 2015, the Swedish Association of Local Authorities and Regions commissioned a study on possibilities of increasing caregiver participation within the Swedish Dementia Registry (SveDem). This discussion paper updates and adapts that report, aiming to broadly summarise the caregiving phenomenon in order to provide a backdrop for clinicians seeking to understand the legal, ethical and practical considerations of caregiver participation in dementia. Relevant literature on caregiver participation is presented, and its definition, extent and practical implementation are discussed. Discussion The Swedish legal framework compels care providers to facilitate patient and caregiver participation in dementia and provides support to caregivers through the local level of government, but further work is needed to clarify and define the extension and form that this participation must take in clinical practice. Advanced directives are one step in extending patient participation to the period of advanced dementia. Conclusion Little research exists on caregiver participation. There is a need to develop a framework for caregiver and patient participation to determine the extent, type and form that such participation should take in health care, research and quality initiatives pertaining to persons with dementia.

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“…Considerably fewer studies have focused on positive family caregiver outcomes [19–21]. Positive affect, viewed as the opposite of negative affect, reflects a spectrum of pleasant states, attitudes and well-being [22,23].…”

Section: Introductionmentioning

confidence: 99%

Impact of an Individualized Physical Activity Intervention on Improving Mental Health Outcomes in Family Caregivers of Persons with Dementia: A Randomized Controlled Trial

Farran

Paun

Cothran

et al. 2015

AIMS Medical Science

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Purpose This study examined secondary benefits of an individualized physical activity intervention on improving dementia family caregivers’ subjective burden, depressive symptoms and positive affect. Design and Methods A community-based randomized controlled trial (RCT) was implemented with family caregivers of persons with dementia (N = 211) who received the Enhanced Physical Activity Intervention (EPAI: treatment intervention, n = 106) or the Caregiver Skill Building Intervention (CSBI: control intervention, n = 105). Interventions were delivered over 12 months, including a baseline home visit and regularly spaced telephone calls. Data were collected in person at baseline, 6 and 12-months; and telephonically at 3 and 9-months. The EPAI integrated physical activity and caregiving content while the CSBI focused only on caregiving content. Descriptive, bivariate and intention-to-treat analyses using generalized estimating equations (GEE) were performed to examine secondary benefits of the EPAI on family caregiver burden, depressive symptoms and positive affect. Results Compared to caregivers in the CSBI group, caregivers in the EPAI significantly increased their overall and total moderate physical activity and showed a positive interaction between the intervention and time for positive affect at both six (p = 0.01) and 12-months (p = 0.03). The EPAI was significantly associated with improving burden at 3 months (p = 0.03) but had no significant effect on depressive symptoms. Implications Caregiver involvement in an individualized physical activity intervention was associated with increased overall and total moderate physical activity and improved positive affect from baseline to 12 months. Improved positive affect may help caregivers to feel better about themselves and their situation, and better enable them to continue providing care for their family member for a longer time at lower risk to their own mental health.

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Predictors of caregiving satisfaction in informal caregivers of people with dementia

Cited by 56 publications

References 65 publications

UnderstAID, an ICT Platform to Help Informal Caregivers of People with Dementia: A Pilot Randomized Controlled Study

UnderstAID, an ICT Platform to Help Informal Caregivers of People with Dementia: A Pilot Randomized Controlled Study

The caregiving phenomenon and caregiver participation in dementia

Impact of an Individualized Physical Activity Intervention on Improving Mental Health Outcomes in Family Caregivers of Persons with Dementia: A Randomized Controlled Trial

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