Predictors of Complicated Grief and Depression in Bereaved Caregivers: A Nationwide Prospective Cohort Study

Nielsen, Mette Kjærgaard; Neergaard, Mette Asbjoern; Jensen, Anders Bonde; Vedsted, Peter; Bro, Flemming; Guldin, Mai-Britt

doi:10.1016/j.jpainsymman.2016.09.013

Cited by 160 publications

(197 citation statements)

References 47 publications

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“…Gilbar and Ben‐Zur, Kim et al, and Song et al sampled cancer patients identified by state registries; Nielsen et al sampled patients registered with drug reimbursement. Two studies achieved a representative sample. All other studies used convenience samples from one or more treatment or care institutions.…”

Section: Resultsmentioning

confidence: 99%

“…Most studies exclusively addressed caregivers whose relatives died of cancer, with the exception of 3 studies by Kapari et al, Nielsen et al, and Brazil et al, where cancer patients accounted for 96%, 90%, and 82% of the samples, respectively. Two of those studies controlled for diagnosis and found no significant association with the respective outcome measures …”

Section: Resultsmentioning

confidence: 99%

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Impact of caregiver burden on mental health in bereaved caregivers of cancer patients: A systematic review

2017

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Section: Resultsmentioning

confidence: 99%

Section: Resultsmentioning

confidence: 99%

Impact of caregiver burden on mental health in bereaved caregivers of cancer patients: A systematic review

2017

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“…Severe pre‐loss grief and depressive symptoms may be predictors of post‐loss complicated grief and depressive symptoms. Systematic assessment may identify caregivers at risk (Nielsen et al, ).…”

Section: The Studymentioning

confidence: 99%

The effectivness of a strengths‐oriented therapeutic conversation intervention on perceived support, well‐being and burden among family caregivers in palliative home‐care

Petursdottir

Svavarsdóttir

2019

Journal of Advanced Nursing

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Aims To evaluate the effectiveness of a two‐session multicomponent family strengths‐ oriented therapeutic conversation intervention among family caregivers of an individual with advanced/final stage cancer during ongoing palliative home‐care. Background Family caregivers of patients in the advanced/final phases of cancer, experience multifaceted psychological distress and morbidity. Psychosocial interventions improve the well‐being of family members who are caring for their close relative. Design A pre‐experimental design with a one‐group pre‐test/posttests measurements. Methods Forty‐eight family caregivers were assigned to receive two 60–90 min sessions of the intervention. The primary outcome was perceived emotional and cognitive support and psychological well‐being, measured at baseline (T1). Then the participants were offered the first session of the intervention. About 1 week later, the second session was administered. The participants answered the same questionnaires again (T2) and then 2–4 weeks later (T3). The guideline; Criteria for Reporting Development and Evaluation of Complex Interventions 2, guided the reporting of the study. Results Family caregivers reported significantly higher emotional and cognitive support post‐intervention (T2) and at (T3). They also reported significantly reduced stress symptoms at (T3) and reduced caregiver burden post‐intervention (T2) and at (T3). Conclusion The provision of the intervention contributed to extending knowledge about the usefulness of family conversations in the context of advanced/final stage cancer care. Impact There is a lack of knowledge about the benefit of therapeutic conversation interventions for family caregivers. The therapeutic conversation intervention offered, resulted in perceived support, decreased stress, and decreased caregiving demands among caregivers in palliative home‐care. Trial registration number: ISRCTN 21786830.

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“…There is variation in the frequency, duration and intensity with which individuals experience grief reactions. Approximately 7–10% of individuals will experience an extreme and prolonged reaction, termed Prolonged Grief (PG; or complicated grief or Persistent Complex Bereavement Disorder; American Psychiatric Association, 2013; Maciejewski, Maercker, Boelen, & Prigerson, 2016; Nielsen et al, 2016; Prigerson et al, 2009; Shear et al, 2011). PG has received increased attention in recent years as it is linked with a range of negative health outcomes independent of bereavement-related depression or anxiety (Bonanno et al, 2007; Maciejewski et al, 2016; Prigerson et al, 2009; Shear et al, 2011) and shows better outcomes in response to grief-targeted treatments (Bryant et al, 2014; Shear, Frank, Houck, & Reynolds, 2005; Shear et al, 2016).…”

mentioning

confidence: 99%

Networks of loss: Relationships among symptoms of prolonged grief following spousal and parental loss.

Maccallum

Malgaroli

Bonanno

2017

Journal of Abnormal Psychology

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The death of a loved one can trigger a range of emotional, behavioural, motivational and cognitive reactions collectively labelled as “grief”. There has been a recent resurgence of empirical interest in grief reactions, and there is now a general consensus that 7%–10% of bereaved individuals experience intense and chronic reactions termed Prolonged Grief (PG). However, there is ongoing debate about how best to conceptualise the construct. Recent studies have advanced this debate by applying a network, or causal systems approach. Whereas traditional views of psychopathology posit symptoms of disorders reflect the independent actions of latent entities, the network approach argues that the symptoms themselves interact to give rise to the disorder. A network conceptualisation offers novel approaches to studying the mechanisms that contribute to PG. To date, however, research has focussed only on spousal loss and only used a single archival data set. Therefore, in this paper we apply network analysis to examine relationships among PG symptoms in samples of individuals bereaved by loss of a spouse (Study 1, N=193) and a parent (Study 2, N=180). Participants completed the PG-13 and a measure of depression. A comparison test suggested the networks produced from each sample were not reliably different. The strongest link in both networks was between yearning and emotional pain. Meaninglessness was relatively central, whereas avoidance was peripheral in both networks. Findings are discussed with reference to theoretical models and the potential benefits a network approach may hold for understanding relationships between symptoms of PG.

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Predictors of Complicated Grief and Depression in Bereaved Caregivers: A Nationwide Prospective Cohort Study

Abstract: Severe preloss grief and depressive symptoms were key predictors of postloss complicated grief and depressive symptoms. Systematic assessment may identify caregivers with a high risk profile who need targeted support.

Cited by 160 publications

References 47 publications

Impact of caregiver burden on mental health in bereaved caregivers of cancer patients: A systematic review

Impact of caregiver burden on mental health in bereaved caregivers of cancer patients: A systematic review

The effectivness of a strengths‐oriented therapeutic conversation intervention on perceived support, well‐being and burden among family caregivers in palliative home‐care

Networks of loss: Relationships among symptoms of prolonged grief following spousal and parental loss.

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