Predictors of family caregiver burden in schizophrenia: Study from an in-patient tertiary care hospital in India

Jagannathan, Aarti; Thirthalli, Jagadisha; Hamza, Ameer; Nagendra, HR; Gangadhar, Bangalore N.

doi:10.1016/j.ajp.2013.12.018

Cited by 84 publications

(108 citation statements)

References 23 publications

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“…Higher patient function negatively predicted family burden, which was consistent with existing literature [10, 15, 19]. The result is self-explanatory considering that managing the ill behaviors and keeping the normal function of patients have always been the main focus and major needs of family caregivers [19].…”

Section: Discussionsupporting

confidence: 88%

Reported family burden of schizophrenia patients in rural China

Liu

Tang

et al. 2017

PLoS ONE

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We aim to assess the level of family burden of schizophrenia patients and identify its predicting factors in a rural community sample of China. A sample of 327 primary caregivers was recruited through a one-stage cluster sampling in Ningxiang County of Hunan province, China. Family burden was assessed using the Family Burden Interview Schedule (FBIS) of Pai and Kapur. Our results showed that the mean score of FBIS was 23.62±9.76 (range, 0–48), with over half (52%) caregivers reported their family burden being moderate and severe. Among the six domains of family burden, financial burden (76%) was the commonest burden, while disruption of family interactions (37%) was the least mentioned. A multivariate analysis of family burden revealed that patient being admitted for over 3 times, caregiver being female, having a middle school education, and with additional dependents, as well as higher care network function were positive predictors of family burden, while higher patient function and family function, and increasing patient age were negative predictors of family burden.Intervention to decrease family burden may be best served by improving family function and exploring alternative care model instead of hospitalization.

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Section: Discussionsupporting

confidence: 88%

Reported family burden of schizophrenia patients in rural China

Liu

Tang

et al. 2017

PLoS ONE

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“…Carers experienced high levels of distress and difficulty. Our finding support a qualitative study conducted in India which identified 'managing illness behavior' was one of the high priority need among carers of schizophrenia [14] and, higher caregiver burden was related to psychopathology [26].…”

Section: Discussionsupporting

confidence: 78%

Caregiving and Help Seeking in First Episode Psychosis: A Qualitative Study

Sadath

Muralidhar

Varambally

et al. 2014

J. Psychosoc. Rehabil. Ment. Health

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The early stages of psychosis pose a frightening and challenging period for their caregivers. In India, the majority of patients with psychosis live with their families, who play an important role in patients' care and treatment. However, their experience in caring persons with psychosis or help-seeking behaviors in the early stages of psychosis is largely unknown. Using a qualitative method, the present study explored the experiences in caring and help-seeking in carers of patients with first episode psychosis. In-depth audiotaped interviews were conducted with 11 carers of patients with first episode nonaffective psychosis. Purposive sampling was used for data collection and content analysis was applied to the data. The major themes explored were sequence of help seeking and faith-healing practices, explanatory model of illness, illness management strategies, financial burden, perceived stress and stigma. Carers experienced shock, disbelief and anxiety about the unexpected behavioural changes in patients during the initial phase. The common pathway to 'help seeking' was faith-healing. It resulted in substantial delays in accessing psychiatric care and drain on family finances. Carers perceived themselves as vulnerable and helpless when patients became violent or demanding, refused to take medicines, experienced sleep disturbance, and remained idle and suspicious. Further, carers were hesitant to seek help due to their stigma attached to mental illness. Carers' poor understanding and high stigma caused substantial delays in seeking psychiatric treatment. Caregivers experienced high levels of distress and difficulties. Understanding carers' experience and help-seeking behavior may be important for planning and delivery of early intervention services for patients and carers.

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“…Studies have shown that women who have a patient they are liable to look after have 6 times more depressive and anxiety symptoms than those who have no such liability (1,2). Studies have shown that factors influencing the caregiver burden include male sex of the patient, youth, severity of the disease, cultural factors, stigma (3), duration of the disease, and disability (4). Studies exploring the relationship between economic condition and caregiver burden have shown that a lower socioeconomic level is associated with increased caregiver burden (5).…”

Section: Introductionmentioning

confidence: 99%