Predictors of health and human services use by persons with dementia and their family caregivers

Toseland, Ronald W.; McCallion, Philip; Gerber, Todd; Banks, Steve

doi:10.1016/s0277-9536(01)00240-4

Cited by 170 publications

(213 citation statements)

References 46 publications

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“…Mittchel and Krout 1998;Piercy and Blieszner 1999) and their informal caregivers (i.e. Kosloski and Montgomery 1994;Toseland et al 2002;Hong 2010). According to the Andersen model, three types of variables underlying support to informal caregiver households can be distinguished: (a) predisposing factors, which are specially related to demographic, social structure and care/health beliefs; (b) enabling factors, which correspond to community and personal enabling resources and (c) need factors, which imply health and disability conditions.…”

Section: Factors Associated With Support Provided To Older Adults Andmentioning

confidence: 99%

Paid and unpaid support received by co-resident informal caregivers attending to community-dwelling older adults in Spain

Rogero-García

Rosenberg

2011

Eur J Ageing

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In this study from Spain, support received from outside the household by informal caregivers of people older than 64 years is analysed. The Spanish Time Use Survey (2002Survey ( -2003) is used to examine: (1) the proportion of co-resident informal caregivers receiving paid and unpaid support by persons from outside the home; (2) the main factors associated with receipt of external paid and unpaid support; and, (3) factors linked to the amount of support received in terms of time. The study sample included 404 caregivers who cohabited with the person receiving care. We used a modified Andersen Behavioural Model as the analytic framework. Significant differences are observed in receipt of support according to predisposing, enabling and need factors. Overall, support (paid and unpaid) is significantly lower among households with women caregivers. In comparison with the least educated caregivers, higher levels of paid support are observed among those with secondary school or higher education, even when income, household size and receiver's age are included in the model. After controlling for care receivers' disability level and age, unpaid support is significantly higher among employed caregivers, spouses and caregivers living in medium-sized cities, versus unemployed caregivers, other relatives and caregivers living in large cities, respectively. These data highlight the inequalities of resources in terms of caregiver gender, socio-economic status and population size. The findings underscore the need to extend analysis not only to primary caregivers, but to caregiving networks and other types of caregiver support as well.

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Section: Factors Associated With Support Provided To Older Adults Andmentioning

confidence: 99%

Paid and unpaid support received by co-resident informal caregivers attending to community-dwelling older adults in Spain

Rogero-García

Rosenberg

2011

Eur J Ageing

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“…Persons who did not know anything about the accessibility of counselling and also persons who stated that counselling was not easy to access for them had a much lower probability of using this support offer. It is known from other studies (Kosloski and Montgomery 1993;Toseland et al 2002), that easy access to support offers is positively associated with utilization and in our study, the majority of respondents knew nothing about the accessibility of their nearest caregiver counselling service. Therefore, one practical objective should be to explain the helpfulness of this offer as well as to give clear information about the location of the nearest caregiver counselling provider and how to get there.…”

Section: Structural Quality (S): Non-personal Factors (S I); Person-rmentioning

confidence: 55%

“…This corresponds with the findings of Gill et al (1998), who showed that need variables explain more variance in service utilization of in-home and out-of-home services than predisposing or enabling variables, speaking in terms of the Andersen model. In a study by Toseland et al (2002), it was demonstrated that this assessment of helpfulness is not a significant predictor for utilization in the range of professional health and human services. It must be taken into consideration that this study is not specific to any one offer, either.…”

Section: Structural Quality (S): Non-personal Factors (S I); Person-rmentioning

confidence: 97%

Counselling for dementia caregivers—predictors for utilization and expected quality from a family caregiver’s point of view

Gräßel

Luttenberger

Trilling³

et al. 2010

Eur J Ageing

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Caregiver counselling has proved to be effective in reducing the burden of family caregivers of dementia patients. Nevertheless, little is known about the influencing factors for utilization and quality expectations of family caregivers. In this article, we address the following questions on the theoretical base of the Andersen/ Newman model: Which variables of the care situation, the caregivers and their attitudes act as predictors for the utilization of caregiver counselling? What are the views of caregivers about the quality of caregiver counselling? The cross-sectional study was carried out as an anonymous written survey of family caregivers of dementia patients in four regions, both urban and rural, of Germany. Quantitative and qualitative data from 404 family caregivers were analysed using binary logistic regression analysis and qualitative content analysis, respectively. The only significant predictor for utilization is the assessment of how helpful caregiver counselling is for the individual care situation. In the sensitivity analysis 'accessibility of caregiver counselling' was additionally predictive for usage. Family caregivers most frequently expressed a wish for advice about further 'support offers' by qualified counsellors. In order to increase the rate of utilization, family caregivers must be convinced of the relevant advantages of using caregiver counselling. Counselling services should provide information about further support offers and give practical help in filling out application forms.

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“…Our findings are consistent with previous research which found that service access is low for those caring for Health Service Utilisation spouses, even though they rated the quality of information on respite services as good. 4,[7][8][9]15 Australian research on this topic has generally been conducted with non-representative samples and has tended to focus on restricted populations, such as carers of people with dementia, while research from other countries is of limited use because of the substantial differences in health care systems. The low response rate and levels of missing data are causes for caution in interpretation of the findings of this study.…”

Section: Discussionmentioning

confidence: 99%

“…5 Particularly low service use has been reported among carers of people with neurological impairments [5][6][7] and by carers belonging to minority groups 8 or living in rural areas. 9 Older carers may have particular problems in accessing services.…”

mentioning

confidence: 99%

Few urban–rural differences in older carers' access to community services

Lucke

Russell²,

Tooth³

et al. 2008

Aust. Health Review

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To examine perceived adequacy of access to information and services, and perceived quality of health and community services, among older female carers across rural and urban areas primary data were collected as part of the ongoing Australian Longitudinal Study on Women's Health (ALSWH). In all, 306 women in their 70s who had family caregiving roles responded to a nested substudy of the ALSWH. There were few reported differences between urban and rural older carers in their access to health and community services for the people they cared for. In fact, those in rural areas fared slightly better than those in urban areas in awareness of service availability and perceived quality of service. Many older carers in both rural and urban areas do not access health and community services even when appropriate services are available. A better understanding is needed of how support can be delivered to com- MANY PEOPLE WITH long-term disability, illness or frailty are cared for by family members. While there are many positive outcomes from caregiving, such as personal growth 1 or feelings of gratification, pride and resiliency, 2 there is also evidence that the task of providing care can become an overwhelming burden which results in significant negative consequences for the carer' s physical and mental health and for the community in general. 3 Appropriate services have the potential to reduce the stress and burden felt by carers. 4 A number of studies have identified high levels of unmet need for services among carers but it is not clear whether it is lack of services or reluctance to use them which causes the problem. 3 Reasons for low use of existing services are varied and may include the belief that caring is part of the role of spouse or family member, the care recipient not wishing to accept services, the service not being suitable for some reason, carers not being aware of service availability, or problems

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Predictors of health and human services use by persons with dementia and their family caregivers

Cited by 170 publications

References 46 publications

Paid and unpaid support received by co-resident informal caregivers attending to community-dwelling older adults in Spain

Paid and unpaid support received by co-resident informal caregivers attending to community-dwelling older adults in Spain

Counselling for dementia caregivers—predictors for utilization and expected quality from a family caregiver’s point of view

Few urban–rural differences in older carers' access to community services

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Predictors of health and human services use by persons with dementia and their family caregivers

Cited by 170 publications

References 46 publications

Paid and unpaid support received by co-resident informal caregivers attending to community-dwelling older adults in Spain

Paid and unpaid support received by co-resident informal caregivers attending to community-dwelling older adults in Spain

Counselling for dementia caregivers—predictors for utilization and expected quality from a family caregiver’s point of view

Few urban&ndash;rural differences in older carers' access to community services

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Few urban–rural differences in older carers' access to community services