Predictors of Poor Adherence to Follow-up Care in Survivors of Childhood Cancer

Rehman, Rahiya; Solorzano, Gabriel; Heist, Rachel; Thompson, Stephanie; Badawi, Mohamad

doi:10.46883/2022.25920964

Cited by 2 publications

(3 citation statements)

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Section: Discussionmentioning

confidence: 99%

“…Studying particular needs and preferences of paediatric cancer survivors and their relatives from multiple perspectives allow us to propose adaptations to existing follow-up guidelines, as their adjustment to actual needs of survivors and their relatives may probably affect positively survivors' adherence to them. 75 Although a number of follow-up care models exist, 76 survivors' adherence to follow-up recommendations and guidelines is a relevant precondition for successful implementation. A number of attempts to understand its determinants have already been taken, including studies based on TBH.…”

Section: Discussionmentioning

confidence: 99%

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VersKiK qualitative study design: actual follow-up needs of paediatric cancer survivors, their informal caregivers and follow-up stakeholder perceptions in Germany

Aleshchenko,

Swart,

Voigt

et al. 2024

BMJ Open

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IntroductionThis article presents the study design of the qualitative part of the VersKiK study (Long-term care, care needs and wellbeing of individuals after cancer in childhood or adolescence: study protocol of a large scale multi-methods non-interventional study) aiming to explore actual follow-up needs of childhood and adolescence cancer survivors and their informal caregivers, gaps in current follow-up care provision and trajectories of cancer survivors’ transition from paediatric to adult healthcare.Methods and analysisWe will conduct up to 30 interviews with survivors of childhood and adolescence cancer and their informal caregivers with up to 20 participant observations of follow-up appointments. The results of these will be discussed in up to four focus groups with healthcare professionals and representatives of self-help groups. The study design aims to evaluate follow-up care after childhood cancer considering perspectives from survivors, their informal caregivers as well as healthcare providers. The combination of different data sources will allow us to get an in-depth understanding of the current state of follow-up care after paediatric cancer in Germany and to suggest recommendations for care improvement.Ethics and disseminationThe VersKiK study was approved by the Ethics Committee Otto von Guericke University on 2 July 2021 (103/21), by the Ethics Committee of Johannes Gutenberg University Mainz on 16 June 2021 (2021-16035), by the Ethics Committee University of Lübeck on 10 November 2021 (21-451), by the Ethics Committee University of Hospital Bonn on 28 February 2022 (05/22). For each part of the qualitative study, a separate written informed consent is prepared and approved accordingly by the ethics committees named above.Trial registration numberRegistered at German Clinical Trial Register, ID: DRKS00026092.

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Section: Discussionmentioning

confidence: 99%

Section: Discussionmentioning

confidence: 99%

VersKiK qualitative study design: actual follow-up needs of paediatric cancer survivors, their informal caregivers and follow-up stakeholder perceptions in Germany

Aleshchenko,

Swart,

Voigt

et al. 2024

BMJ Open

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“…Current follow-up guidelines recommend periodic assessment of psychosocial issues in all survivors of childhood and adolescent cancers ( Children’s Oncology Group (COG), 2018 ). Despite this, many survivors fail to seek or receive target care that meets the follow-up recommendations ( Rehman et al, 2022 ; Signorelli et al, 2017 ), which can result in a delay in seeking mental healthcare and potentially lead to more severe and/or complex, adverse psychological outcomes. The ascertainment of psychological outcomes in previous studies often relied on self-reported information collection methods (e.g.…”

Section: Introductionmentioning

confidence: 99%

Psychiatric disorders in childhood cancer survivors: A retrospective matched cohort study of inpatient hospitalisations and community-based mental health services utilisation in Western Australia

Abdalla,

Preen,

Pole

et al. 2024

Aust N Z J Psychiatry

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Objective: We examined the impact of long-term mental health outcomes on healthcare services utilisation among childhood cancer survivors in Western Australia using linked hospitalisations and community-based mental healthcare records from 1987 to 2019. Method: The study cohort included 2977 childhood cancer survivors diagnosed with cancer at age < 18 years in Western Australia from 1982 to 2014 and a matched non-cancer control group of 24,994 individuals. Adjusted hazard ratios of recurrent events were estimated using the Andersen–Gill model. The cumulative burden of events over time was assessed using the method of mean cumulative count. The annual percentage change in events was estimated using the negative binomial regression model. Results: The results showed higher community-based service contacts (rate/100 person-years: 30.2, 95% confidence interval = [29.7–30.7] vs 22.8, 95% confidence interval = [22.6–22.9]) and hospitalisations (rate/1000 person-years: 14.8, 95% confidence interval = [13.6–16.0] vs 12.7, 95% confidence interval = [12.3–13.1]) in childhood cancer survivors compared to the control group. Childhood cancer survivors had a significantly higher risk of any event (adjusted hazard ratio = 1.5, 95% confidence interval = [1.1–2.0]). The cumulative burden of events increased with time since diagnosis and across age groups. The annual percentage change for hospitalisations and service contacts significantly increased over time ( p < 0.05). Substance abuse was the leading cause of hospitalisations, while mood/affective and anxiety disorders were common causes of service contacts. Risk factors associated with increased service events included cancer diagnosis at age < 5 years, leukaemia diagnosis, high socioeconomic deprivation, and an attained age of < 18 years. Conclusions: The elevated utilisation of healthcare services observed among childhood cancer survivors emphasises the need for periodic assessment of psychiatric disorders, particularly in high-risk survivors, to facilitate early management and optimise healthcare resources.

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Predictors of Poor Adherence to Follow-up Care in Survivors of Childhood Cancer

Cited by 2 publications

References 0 publications

VersKiK qualitative study design: actual follow-up needs of paediatric cancer survivors, their informal caregivers and follow-up stakeholder perceptions in Germany

VersKiK qualitative study design: actual follow-up needs of paediatric cancer survivors, their informal caregivers and follow-up stakeholder perceptions in Germany

Psychiatric disorders in childhood cancer survivors: A retrospective matched cohort study of inpatient hospitalisations and community-based mental health services utilisation in Western Australia

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