Predictors of Psychological Adjustment in School-Age Children Infected With HIV

Bachanas, Pamela; Kullgren, Kristin A.; Schwartz, K.; Lanier, Blake; McDaniel, J. Stephen; Smith, Joy; Nesheim, Steven

doi:10.1093/jpepsy/26.6.343

Cited by 113 publications

(114 citation statements)

References 18 publications

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“…Children with other illnesses, such as cancer, have been found to be at risk of emotional and behavioral difficulties resulting from disclosure. [19][20][21] Others have found that children benefit from an open discussion of their illness and that nondisclosure does not necessarily protect them from psychological distress. [22][23][24] HIV-infected children in industrialized countries fared well after disclosure, and better than children who were unaware of their HIV infection.…”

Section: Introductionmentioning

confidence: 99%

“…[22][23][24] HIV-infected children in industrialized countries fared well after disclosure, and better than children who were unaware of their HIV infection. 1,19,25,26 While studies have looked at correlates of disclosure, few have investigated the process of disclosure to HIV-infected children specifically, particularly in developing countries. This study was, therefore, exploratory and focused on the experiences of infected children in a comprehensive HIV pediatric care and treatment program in Kinshasa, the Democratic Republic of the Congo (DRC).…”

Section: Introductionmentioning

confidence: 99%

See 1 more Smart Citation

Telling Children They Have HIV: Lessons Learned from Findings of a Qualitative Study in Sub-Saharan Africa

Vaz

Eng

Maman

et al. 2010

AIDS Patient Care and STDs

171

257

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HIV-infected children in developing countries are living longer lives as they gain access to antiretroviral treatment programs. As they grow older, their parents=guardians are faced with the difficult decision of if, when, and how to inform their child of his=her HIV status. Both negative and positive social, psychological, and behavioral impacts of disclosure to children have been reported, including improved adherence to medication regimens. Understanding the disclosure process from the perspective of HIV positive children, therefore, is critical to developing these interventions. Through children's experiences we can learn about what works well, what needs to be strengthened, and what is missing in current disclosure practices. We conducted in-depth interviews with eight caregiver-child dyads in Kinshasa, Democratic Republic of the Congo. The children were in a comprehensive HIV pediatric care and treatment program and had already been told their HIV diagnosis. For the analysis we placed particular emphasis on children's reports of communication with their caregivers and health care providers about their illness. Patterns emerged of limited communication between children and their caregivers as well as their providers, before, during, and after disclosure. From the perspective of children in this study, disclosure was largely a discrete event rather than a process. Sociocultural contexts surrounding HIV=AIDS, as well as health status, variations in parent-child communication and the relationships between health providers and children under their care, should inform psychosocial interventions delivered alongside treatment programs.

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Section: Introductionmentioning

confidence: 99%

Section: Introductionmentioning

confidence: 99%

Telling Children They Have HIV: Lessons Learned from Findings of a Qualitative Study in Sub-Saharan Africa

Vaz

Eng

Maman

et al. 2010

AIDS Patient Care and STDs

171

257

View full text Add to dashboard Cite

show abstract

“…As a result, they are often burdened with the inability to confront their own mortality as well as that of their children. It is documented that childhood chronic illness brings about signiicant strain on the family system, including high rates of maternal depression and anxiety, marital distress and adjustment problems [5,6,55,56].…”

Section: Parental Health and Relationship To Caregivingmentioning

confidence: 99%

Caregiving and Experiences of Health, Illness and Coping in the Context of Paediatric and Adolescent HIV and Poverty

Lentoor¹

2018

Caregiving and Home Care

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The contextual challenges in the context of HIV negatively impact the social ecology of the families. The consequences of this are that it adversely impacts the psychosocial functioning of caregivers and health and well-being of the children. The indings showed that caregiving is performed, not only in the context of maternal HIV infection, but also in the context of inadequate material and inancial resources and single-head households where women assume the primary caregiving role. Caregiving is also complicated by the issue of maternal death and abandonment, where relatives (i.e. mainly grandparents) assume the role of the primary caregivers of children infected with HIV. On the other hand, emerging studies that started to focus on enhancing resilience in children whose caregiver is HIV positive holds promise to the fact that adequate interventions can have long-lasting beneits on the developmental and psychological trajectory of HIV-positive children and their HIV-positive caregivers. Consequently, the link between poverty and HIV/AIDS has been established, and its impact on perinatal, infancy and early-childhood development outcomes is clearly documented.

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“…La plupart des jeunes rapportaient que leur vie s'était détériorée depuis cette annonce (Wiener et al, 1996). Elle aurait aussi engendré chez les jeunes une détresse psychologique (Bachanas et al, 2001;Lester et al, 2002;Mellins et al, 2002;New et al, 2003;Riekert et al, 1999;Wiener et al, 1996). Suite à ce dévoilement, les parents ont constaté que leurs enfants étaient devenus inquisitifs, colériques, anxieux, déprimés ou tristes (Blasini et al, 2004).…”

Section: Les Répercussions Psychologiques Et Sociales Du Dévoilement unclassified

“…Toutefois, six mois après l'annonce, plusieurs des jeunes infectés par le VIH ont affirmé se sentir normaux et considéraient le dévoilement comme un événement positif (Blasini et al, 2004). D'autres études avancent, à l'inverse, que le dévoilement du diagnostic réduirait la prévalence de symptômes dépressifs et anxieux chez l'enfant séropositif (Bachanas et al, 2001;Battles et Wiener, 2002;Mellins et al, 2002;Riekert et al, 1999). Ces contradictions dans les résultats des différentes études pourraient être dues aux écarts d'âge des jeunes interrogés et le temps écoulé depuis l'annonce du diagnostic.…”

Section: Les Répercussions Psychologiques Et Sociales Du Dévoilement unclassified

Bifurcations biographiques : l’expérience du dévoilement du diagnostic du point de vue d’adolescents infectés par le VIH en période périnatale

Proulx-Boucher

Fernet

Blais

et al. 2014

efg

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Dans le cas de la transmission de la mère à l’enfant du VIH, l’un des principaux enjeux concerne le dévoilement du diagnostic aux jeunes infectés (Champion et al., 1999; Murphy et al., 2002; Wiener et al., 2007), qui pourrait être vécu comme un point de bifurcation biographique. L’objectif est d’explorer l’expérience du dévoilement du diagnostic du point de vue d’adolescents vivant avec le VIH depuis la naissance. Vingt-neuf jeunes (10-18 ans) VIH+ ont accordé une entrevue individuelle semi-dirigée portant sur le dévoilement du statut sérologique. Les données recueillies ont fait l’objet d’une analyse de contenu (Paillé et Mucchielli, 2005; Sabourin, 2008). Le dévoilement du statut sérologique s’inscrit dans une trajectoire en trois temps : 1) une réalité cachée où les adolescents ignorent leur statut sérologique; 2) une réalité enfin dévoilée où ils apprennent, vers l’âge de 11 ans, qu’ils sont infectés par le VIH et; 3) une réalité à intégrer progressivement où le dévoilement participe à leur construction identitaire personnelle et sociale. Le dévoilement s’inscrit dans une continuité biographique en légitimant les traitements ARV reçus alors qu’une transformation progressive semble être envisagée par les jeunes quant à leur intimité et leur sexualité.

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Predictors of Psychological Adjustment in School-Age Children Infected With HIV

Cited by 113 publications

References 18 publications

Telling Children They Have HIV: Lessons Learned from Findings of a Qualitative Study in Sub-Saharan Africa

Telling Children They Have HIV: Lessons Learned from Findings of a Qualitative Study in Sub-Saharan Africa

Caregiving and Experiences of Health, Illness and Coping in the Context of Paediatric and Adolescent HIV and Poverty

Bifurcations biographiques : l’expérience du dévoilement du diagnostic du point de vue d’adolescents infectés par le VIH en période périnatale

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