Predictors of Social Relationships for Children with Special Health Care Needs

Sisk, Cara; Chitiyo, George; Akenson, Ashley

doi:10.1016/j.pedn.2018.03.009

Cited by 4 publications

(3 citation statements)

References 27 publications

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“…Young people focused less on specialized support, and mentioned their wish to have access to informal social groups and interactions. Health associated difficulties (e.g., walking outside, going to school or social events) often interfere with creating significant social bonds or maintaining friendships (Bethell et al 2002 ; Jamieson et al 2014 ; Sisk et al 2018 ). However, both carers and young people mentioned the important help they have had from the extended family in their day to day life and in managing specific difficulties (e.g., financial problems, daily chores, etc.).…”

Section: Discussionmentioning

confidence: 99%

Families with complex needs: an inside perspective from young people, their carers, and healthcare providers

2022

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Complex health needs are demanding and often require additional medical, psychological and social support. All those involved (e.g., patients, carers, professionals) face a unique set of challenges and needs, especially in families where the patient is a child or a young person with a lifelong condition. The aim of the study was to explore carers’ and young people’s needs when living with long term conditions, as well as the views of the healthcare professionals supporting them. Semi-structured interviews with 30 participants (11 professionals, 10 parents, and 9 young people) were conducted. Interviews focused on 3 main areas—(1) medical needs, (2) psychological needs, and (3) communication needs—and were analyzed using thematic analysis. Four main themes emerged: (1) Acceptance takes time refers to the often long and challenging process of adapting to the diagnosis and living with the condition; (2) Close guidance captures the importance of specialised and long term guidance in accessing and managing the complexities of the medical system; (3) Open communication shows the families’ need to be collaboratively connected to healthcare providers and other families facing similar difficulties; and (4) Long-term support underlines the importance of long term formal and informal support strategies. The participants’ experiences and views have provided us with insight and guidance for developing and implementing personalized and integrated services. This inside perspective is key for future research aimed at better understanding the impact of complex conditions and meaningful ways to support families throughout their journeys.

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Section: Discussionmentioning

confidence: 99%

Families with complex needs: an inside perspective from young people, their carers, and healthcare providers

2022

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“…They have difficulty doing things that other children their age are used to. Children with special needs require handling both health and other therapeutic services related to their development, both physical, speech, occupational, to special education services and other special support, including efforts to control their emotions and behavior [2]. In general, children with special needs experience developmental disorders related to medical conditions that affect children's cognitive abilities, learning processes and behavior [3,4].…”

Section: Introductionmentioning

confidence: 99%

“…In intellectual disability, they experience weakness intellectually, physically, emotionally, and socially [7]. They are mostly unable to complete the tasks given by the teacher [2].…”

Section: Introductionmentioning

confidence: 99%

The Government’s Role in Promoting the Community on Children with Special Needs, Early Detection, and Handling

Sholikhah¹,

Rukmini²,

Sumiatin³

et al. 2023

Proceedings of the 1st International Conference for Health Research – BRIN (ICHR 2022)

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Delays in access to assessment and intervention services for children with special needs are still a major issue. Case finding of Children with Special Needs often occurs when children enter school age. Children's development is often far behind compared to their peers at this age. This is an important issue because the speed and accuracy of accessing quality services greatly affect children's future development progress. The purpose of this study was to describe the role of the government in promoting to the public about children with special needs, early detection, and treatment so far. This research was the result of a study conducted in 2016 and 2021. The data were obtained by conducting focus group discussions on study sources, including primary care groups (doctors, nurses, psychologists, midwives, teachers, and therapists), community groups (Dharma Wanita, cadres, non-governmental organizations), and stakeholders (Health, Social, Education and Women's Empowerment and Child Protection Office). Results showed 1) Promotion efforts on the problem of children with special needs, detection, and treatment were currently increasing, but not evenly distributed. 2) Several fields in the government and community organizations have begun to synergize in promotional activities, but they were still partial. Promotion efforts to the public require more intense and integrated coordination and communication between government ors. This is very important to increase the understanding and commitment of the government to promote a more structured promotion. Recording and reporting concrete findings of children with special needs is needed as material for advocacy to government stakeholders to increase the priority scale of attention to efforts to promote children with special needs and their handling.

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Extracurricular Activity Participation Among Autistic Children and Adolescents: Buffer for Internalizing Conditions and Foundation for Friendship?

Pappagianopoulos,

Rouch,

Mazurek

2023

J Autism Dev Disord

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Predictors of Social Relationships for Children with Special Health Care Needs

Cited by 4 publications

References 27 publications

Families with complex needs: an inside perspective from young people, their carers, and healthcare providers

Families with complex needs: an inside perspective from young people, their carers, and healthcare providers

The Government’s Role in Promoting the Community on Children with Special Needs, Early Detection, and Handling

Extracurricular Activity Participation Among Autistic Children and Adolescents: Buffer for Internalizing Conditions and Foundation for Friendship?

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