Predictors of the psychosocial impact of being a carer of people living with Parkinson's disease: A systematic review

Abstract

Introduction: Caring for a person with Parkinson's disease (PwP) can have a variety

Measuring carer burden in informal carers of patients with long-term conditions

“…This suggests higher objective burden experience, resulting in higher subjective burden (Makdessi et al, 2011;Whittingham et al, 2013). From the studies using CRA, the findings suggest the importance of emotional and social support, consistent with existing literature (Greenwell et al, 2015). Social support was found to be a protective factor and to moderate the demands of caring (Schwarz & Dunphy, 2003).…”

“…Both ZBI and CRA were used in the studies in relation to multiple conditions, which suggest their generic character and is consistent with the systematic review of Greenwell et al (2015). This supports the view that carer experiences are to some extent universal across a range of long term conditions (Burton et al, 2012).…”

“…Other measures include: Caregiver Burden Inventory (CBI), Burden Scale for Family Caregivers (BSFC), Caregiver Reaction Assessment (CRA), Multidimensional Caregiver Strain Inventory (MCSI) and many others (Greenwell et al, 2015). Most of them have only been validated in relation to carers providing support with specific health conditions such as dementia, cancer and mental health conditions (Glajchen et al, 2015) and there appears to be a disagreement in the literature as to whether it is more effective to use disease-specific instruments (Humphrey et al, 2013) or generic tools to screen for and measure carer burden (Deeken et al, 2003).…”

Palliative care for patients with Parkinson’s disease: an interdisciplinary review and next step model

“…Interventions to strengthen caregiving capacity may include improving caregiver health and social support. 58 At the same time, it is vitally important that health professionals take the time to identify and praise caregivers' work and the positive aspects and value that they may derive from their service. Thanking caregivers for the good things that they are doing can make a huge difference to their self-esteem, well-being, and ability to continue.…”

“…68,69 Likewise, neuropsychiatric symptoms, such as anxiety, depression, apathy, and psychosis, in conjunction with dementia can increase caregiver burden and can lead to institutionalization of PD patients. 56,58,64 Overall, a systematic caregiver assessment can help provide direction on how to best help the family. Although caregiver intervention research is still in its infancy, there is some evidence that psychoeducational programs can be beneficial.…”