PreEMPT (Preterm Infant Early Intervention for Movement and Participation Trial): The Feasibility of a Novel, Participation-Focused Early Physiotherapy Intervention Supported by Telehealth in Regional Australia—A Protocol

Mobbs, Chelsea Anna; Spittle, Alicia J; Johnston, Leanne M

doi:10.4236/ojped.2020.104073

Cited by 3 publications

(1 citation statement)

References 42 publications

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“…We anticipate this study will complement the small number of existing intervention studies in several ways. First, in contrast to the few published intervention studies focusing on single professions [ 23 , 24 , 26 ] or therapies [ 54 ], the PART-CHILD intervention deliberately embraces interdisciplinary care teams including paediatricians, nurses, allied health professionals and other non-medical staff. Targeting interdisciplinary care teams has the potential to strengthen interdisciplinary teamwork necessary to implement participation-centred care by promoting the development of an institution-wide shared understanding of participation-centredness and by accounting for the complementary roles of different professions in complex care processes for children with SHCN.…”

Section: Discussionmentioning

confidence: 99%

Evaluation of a Complex Intervention to Strengthen Participation-Centred Care for Children with Special Healthcare Needs: Protocol of the Stepped Wedge Cluster Randomised PART-CHILD Trial

Eichinger

Görig

Georg

et al. 2022

IJERPH

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Introduction: Participation is an important dimension of healthy child development and is associated with higher self-rated health, educational attainment and civic engagement. Many children with special healthcare needs (SHCN) experience limited participation and are thus at risk for adverse health and developmental outcomes. Despite this, interventions that promote participation in healthcare are scarce. We therefore evaluate the effectiveness of a complex age- and condition-generic intervention that strengthens participation-centred care involving parents and their children with SHCN by, inter alia, assessing preferences, specifying participation goals and facilitating shared decision-making in care. Methods and analysis: In this study protocol we describe the design and procedures for an unblinded, stepped wedge, cluster randomised trial conducted in 15 German interdisciplinary healthcare facilities providing services for children aged 0–18 years with SHCN. Sites are randomised to five periods in which they switch from control to intervention condition in blocks of three. The intervention includes: (1) team training focused on participation-centred care, (2) introduction of a new software facilitating participation-focused documentation and (3) implementation support promoting the transfer of training content into routine care. Study sites deliver routine care while in the control condition. As primary outcome, the degree of perceived shared decision-making with parents (CollaboRATEpediatric parent scale), a potential antecedent of achieving participation goals in everyday life, is assessed on one randomly selected day per week during the entire study period, directly following care appointments. We aim to sample 70 parents per study site and period. Additionally, participation of children is assessed within a closed embedded cohort with three parent and patient surveys. Intervention effectiveness will be modelled with a marginal model for correlated binary outcomes using generalised estimation equations and complete cases. A comprehensive mixed-methods process evaluation complements the effectiveness analyses.

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