Preface

Ferfolja, Tania; Díaz, Criss Jones; Ullman, Jacqueline

doi:10.1017/9781108378482.002

Cited by 1 publication

(6 citation statements)

References 0 publications

Supporting

Mentioning

Contrasting

Order By: Relevance

“…The relationship between individuals and other groups in the society impacts on development (Ferfolja, Diaz & Ullman 2018). The ability of individuals to obtain useful information and assistance could enhance their development.…”

Section: Discussionmentioning

confidence: 99%

“…The position of individuals in society could affect accessibility of services (Ferfolja et al 2018). In this study, many primary caregivers recounted that they experienced financial difficulties after their children were diagnosed with CP.…”

Section: Discussionmentioning

confidence: 99%

“…The interaction between individuals and essential services is instrumental in developing social capital (Ferfolja et al 2018). This includes barrier-free access to education, which has been found to be an important agency in societies.…”

Section: Discussionmentioning

confidence: 99%

“…Because of the importance of relationships between people to development, we have situated this study in social capital theory (SCT). This theory has been applied in several social science disciplines to study the relationship between people and agencies in societies (Aldrich & Meyer 2015; Ferfojja, Diaz & Ullman 2018). In this study, we have applied the theory as it pertains to youth studies and community development to interpret the results of the study.…”

Section: Theoretical Frameworkmentioning

confidence: 99%

“…In this study, we have applied the theory as it pertains to youth studies and community development to interpret the results of the study. Social capital theory refers to individuals’ position within a society that impacts on their lives (Ferfojja et al 2018). This covers the services available to people as a result of networks or acquaintance with people in the society.…”

Section: Theoretical Frameworkmentioning

confidence: 99%

See 4 more Smart Citations

Experiences of primary caregivers of children with cerebral palsy across the trajectory of diagnoses in Ghana

et al. 2019

View full text Add to dashboard Cite

Background: Cerebral palsy (CP) is a non-progressive disorder of posture or movement caused by a lesion to the developing brain that results in functional limitations. The diagnosis of CP can vary from one child to another, causing family stress because of vague and unknown outcomes of the disorder. Although there are negative attitudes in Ghanaian societies towards primary caregivers and children with disabilities, fewer attempts have been made to understand their experiences.Objectives: The main aim of this study was to explore the experiences of primary caregivers across the trajectory of the diagnosis (before, during and after) of CP in the setting of a tertiary hospital.Method: Using Social Capital Theory as framework, 40 primary caregivers of children with CP, who were receiving treatment at a major referral hospital in Ghana, were interviewed about their experiences before, during and after diagnosis.Results: The results that emerged from the thematic analysis were discussed as follows: experiences before diagnosis, experiences during the diagnosis and experiences after the diagnosis. Particularly, participants discussed their inability to access essential services such as education for their children with CP.Conclusion: In light of systemic challenges faced by participants and their children with CP, the need for health policymakers to prioritise the public education about CP, promoting the well-being of caregivers and other implications of the study have been discussed.

show abstract

Section: Discussionmentioning

confidence: 99%

Section: Discussionmentioning

confidence: 99%

Section: Discussionmentioning

confidence: 99%

Section: Theoretical Frameworkmentioning

confidence: 99%

Section: Theoretical Frameworkmentioning

confidence: 99%

See 3 more Smart Citations