Preferences in end of life care substantially differ between the Netherlands and Japan

Groenewoud, A. Stef; Sasaki, Noriko; Westert, Gert P.; Imanaka, Yuichi

doi:10.1097/md.0000000000022743

Cited by 10 publications

(5 citation statements)

References 34 publications

Supporting

Mentioning

Contrasting

Order By: Relevance

“…In total, 20 articles were included, of which eight were primary studies incorporating 5542 participants. The design of the primary studies was retrospective observational ( n = 4), 17–20 comparative cross‐sectional ( n = 1), 21 design process ( n = 2), 22,23 quality improvement intervention ( n = 1), 24 case report/study ( n = 2) 25,26 and virtual workshop ( n = 1) 27 . The rest of the articles were perspective papers ( n = 5), 3,28–31 letters to the editor ( n = 2), 32,33 newspaper analysis ( n = 1) 34 and guideline review ( n = 1) 35 .…”

Section: Resultsmentioning

confidence: 99%

Implementation of advance care planning amid the COVID‐19 crisis: A narrative review and synthesis

Hirakawa

Saif‐Ur‐Rahman

Aita

et al. 2021

Geriatrics Gerontology Int

View full text Add to dashboard Cite

Advance care planning is considered an important issue in end‐of‐life care for older adults. The ongoing COVID‐19 pandemic has interrupted the healthcare system and end‐of‐life care tremendously. This review aimed to explore available articles on advance care planning amid the pandemic and analyze qualitatively. PubMed and Google Scholar were searched on February 2021 using the relevant keywords. Retrieved articles were screened applying inclusion criteria. Any article describing advance care planning during the COVID‐19 era was included. A qualitative content analysis was conducted. In total, 20 articles incorporating 5542 participants from five countries were included. Among the articles, eight were primary studies and the rest were perspective papers or secondary analysis. From the qualitative content analysis six major themes emerged namely palliative care, lack of coordination among acute care, hospital palliative care, and long‐term care, community‐based advance care planning, real‐time dissemination of scientific information on the regional pandemic situation, online system and legislation. The COVID‐19 pandemic had decreased the uptake of advance care planning. Findings of the review suggested simplification of the procedure regarding advance care planning, implementation of community‐based advance care planning and utilization of online resources to enhance the process. Geriatr Gerontol Int 2021; 21: 779–787.

show abstract

Section: Resultsmentioning

confidence: 99%

Implementation of advance care planning amid the COVID‐19 crisis: A narrative review and synthesis

Hirakawa

Saif‐Ur‐Rahman

Aita

et al. 2021

Geriatrics Gerontology Int

View full text Add to dashboard Cite

show abstract

“…Preferences at end of life differ among different populations. 16 Our study about Muslim patients fills in some of the knowledge gaps in this regard.…”

Section: Discussionmentioning

confidence: 96%

Comparison of Clinical Characteristics and End-of-Life Care Between COVID-19 and Non-COVID-19 Muslim Patients During the 2020 Pandemic

Khalid

Imran²,

Yamani

et al. 2021

Am J Hosp Palliat Care

View full text Add to dashboard Cite

Background: Little is known about end-of-life care among Muslim patients, particularly during Coronavirus disease 2019 (COVID) pandemic, which we report here. Methods: The clinical characteristics, end-of-life care and resuscitation status of Muslim patients who died in the ICU of our tertiary care hospital in year 2020 from COVID were compared to Non-COVID patients. Results: There were 32 patients in COVID and 64 in the Non-COVID group. A major proportion, mainly of Non-COVID patients, already had a hospice eligible terminal disease at baseline (p=.002). COVID patients were admitted to the ICU sooner after hospitalization (2.2 vs. 17 days), had prolonged duration of mechanical ventilation (18.5 vs. 6 days) and longer ICU stay (24 vs. 8 days) than non-COVID patients, respectively (p<.001). Almost all patients were “Full Code” initially. However, status was eventually changed to ‘do-not-attempt resuscitation’ (DNAR) in about 60% of the cohort. COVID patients were made DNAR late in their ICU stay, predominantly in the last 24 hours of life (p=.04). Until the very end, patients in both groups were on tube feeds, underwent blood draws and imaging, required high dose vasopressors, with few limitations or withdrawal of therapies. Family members were usually not present at bedside at time of death. There was minimal involvement of chaplain and palliative care services. Conclusions: Muslim COVID-19 patients had prolonged mechanical ventilation and ICU stay and a delayed decision to DNAR status than non-COVID Muslim patients. Limitation or withdrawal of therapy occurred infrequently. The utilization of chaplain and palliative care service needs improvement.

show abstract

“…For example, in some religions, life is seen as a sacred gift and it is considered more important to keep the faith and to fight the disease then to talk about incurability of an illness [ 16 , 17 ]. In addition, in some Eastern countries, death is considered a social taboo, whereas in most Western countries, open communication about illness and death is more accepted [ 18 – 20 ]. However, even within Western countries, there are differences in communication about illness and death.…”

Section: Introductionmentioning

confidence: 99%

Open communication between patients and relatives about illness & death in advanced cancer—results of the eQuiPe Study

Haaksman,

Ham,

Brom

et al. 2024

Support Care Cancer

View full text Add to dashboard Cite

Objective To assess the degree of openness of communication about illness and death between patients with advanced cancer and their relatives during the last three months of the patient’s life, and its association with relatives’ characteristics and bereavement distress. Methods We used data from bereaved relatives of patients with advanced cancer from the prospective, longitudinal, multicenter, observational eQuipe study. Univariate and multivariable linear regression analyses were used to assess the association between the degree of openness of communication (measured using the validated Caregivers’ Communication with patients about Illness and Death scale), the a priori defined characteristics of the relatives, and the degree of bereavement distress (measured using the Impact of Event Scale). Results A total of 160 bereaved relatives were included in the analysis. The average degree of open communication about illness and death between patients with advanced cancer and their relatives was 3.86 on a scale of 1 to 5 (SE=0.08). A higher degree of open communication was associated with a lower degree of bereavement distress (p=0.003). No associations were found between the degree of open communication and the relatives’ age (p=0.745), gender (p=0.196), level of education (p>0.773), (religious) worldview (p=0.435), type of relationship with the patient (p>0.548), or level of emotional functioning before the patient’s death (p=0.075). Conclusions Open communication about illness and death between patients and relatives seems to be important, as it is associated with a lower degree of bereavement distress. Healthcare professionals can play an important role in encouraging the dialogue. However, it is important to keep in mind that some people not feel comfortable talking about illness and death.

show abstract

Preferences in end of life care substantially differ between the Netherlands and Japan

Cited by 10 publications

References 34 publications

Implementation of advance care planning amid the COVID‐19 crisis: A narrative review and synthesis

Implementation of advance care planning amid the COVID‐19 crisis: A narrative review and synthesis

Comparison of Clinical Characteristics and End-of-Life Care Between COVID-19 and Non-COVID-19 Muslim Patients During the 2020 Pandemic

Open communication between patients and relatives about illness & death in advanced cancer—results of the eQuiPe Study

Contact Info

Product

Resources

About