Prenatal Counseling and Care for Single-Ventricle Heart Disease: One Center’s Model for Care

Lafranchi, Terra; Lincoln, Patricia

doi:10.4037/ccn2015247

Cited by 8 publications

(19 citation statements)

References 30 publications

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“…In this review, both the nursing and medical literature agreed that nursing psychosocial support and counseling are essential in fetal cardiology care. With a diagnosis of fetal CHD comes an enormous amount of medically and anatomically complex information, delivered to families at an emotional, stressful time (Lafranchi & Lincoln, 2015;Lee, 2017;Reid & Gaskin, 2018). Nurses are well positioned to give families gentle, straightforward, understandable explanations, as well as answer follow-up questions and provide education throughout the pregnancy (Dopson et al, 2022;Lafranchi & Lincoln, 2015;Lee, 2017;Loyet et al, 2016;Nagata et al, 2022).…”

Section: Recordsmentioning

confidence: 99%

“…Patients have reported relief and support from nurses after receiving the diagnoses of CHD in their fetus (Bratt et al, 2015;Reid & Gaskin, 2018). Some articles also stressed the importance of continuous, on-going support provided by nurses throughout the patient's pregnancy and beyond (Bratt et al, 2015;Kovacevic et al, 2020b;Kovacevic et al, 2021;Lafranchi & Lincoln, 2015;Lee, 2017). The nurse's presence from preconception to birth allows excellent continuity of care for the patient and family.…”

Section: Recordsmentioning

confidence: 99%

“…iStock/Fly View Productions plinary teams (Lafranchi & Lincoln, 2015). This model has illustrated the nursing role in detail at the various stages of fetal development and at birth (Lafranchi & Lincoln, 2015).…”

Section: Coordinator or Navigatormentioning

confidence: 99%

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The Role of Nurses in Fetal Cardiology Programs

Butler

McArthur

2023

McN: The American Journal of Maternal/Child Nursing

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Background: Fetal cardiology programs are evolving quickly and include multiple interdisciplinary health care professionals whose roles could benefit from clear definition. Nurses provide an essential function in this field; however, descriptions or definitions of nursing practice, education and knowledge requirements, and responsibilities are limited and vary across institutions and disciplines. Purpose: To conduct an integrative review summarizing the literature to determine the role of nurses in fetal cardiology programs. Methods: We conducted an integrative review as per Whittemore and Knafl's (2005) methodology of current literature to reveal strengths and opportunities in describing nursing practice as fetal cardiology nurses. The search strategy included five electronic databases: CINAHL, Medline, PsycINFO, Web of Science, and Google Scholar. Peer-reviewed English-language articles discussing nursing practices in fetal cardiology published between 2015 and 2022 were selected. Data extraction and analysis were completed on a final sample of 26 articles. Results: Four themes were identified on fetal cardiac nursing practice from nursing and medical perspectives: multidisciplinary key team member, psychosocial family support and counselor, coordinator or navigator, and role description. Clinical Implications: More discussion in the literature is needed to better understand and define fetal cardiac nursing practice. Although most experts agree nurses are an important member of the interdisciplinary fetal cardiology team, their roles and educational requirements are poorly described and defined. Quality metrics and benchmarks are needed to ensure safe and effective fetal cardiology care.

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Section: Recordsmentioning

confidence: 99%

Section: Recordsmentioning

confidence: 99%

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The Role of Nurses in Fetal Cardiology Programs

Butler

McArthur

2023

McN: The American Journal of Maternal/Child Nursing

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“…The second category is the type of CHD that causes too little blood to pass through the lungs. This category includes six types: (a) Tricuspid Atresia, a lack of formation of the tricuspid valve and a lack of a direct connection between the right atrium and right ventricle; (b) Pulmonary Atresia, a defect in the development of the pulmonary valve; (c) Transposition of the Great Arteries (TGA), a defect in which the location of the pulmonary artery and the aorta are reversed; (d) Tetralogy of Fallot (TOF), a defect that consists of four problems, including a whole between the lower chambers of the heart; (e) Double outlet right ventricle, a condition where both the aorta and the pulmonary artery are connected to the right ventricle; and (f) truncus arteriosus, which occurs when a single great ventricle does not separate completely [15].…”

Section: Common Types Of Chdmentioning

confidence: 99%

“…Another defect is the bicuspid aortic valve (BAV), which is an aortic valve with only two leaflets that should have three. This valve regulates blood flow from the heart to the aorta as well as the major blood vessels, which brings blood to the body [15].…”

Section: Common Types Of Chdmentioning

confidence: 99%

Promoting Resilience in Families with Children with Congenital Heart Disease

2019

IJP

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Congenital heart disease (CHD) is the most common birth defect, affecting approximately 40,000 infants annually in the US [1]. CHD involves a variety of heart defects, with a wide spectrum from simple to moderate to complex. Due to advances in pediatric cardiology and cardiac surgery, life expectancy in these children has increased drastically over the past decades. Now 90% of infants diagnosed with CHD live well into adulthood [2]. Due to the increase in survival rates, attention has shifted towards the impact of CHD on psychological and cognitive functioning [3]. Children with CHD are at risk for neurodevelopmental and psychosocial problems related to operative factors. Children with CHD display lower cognitive functioning, and higher rates in behavioral, attentional and emotional problems. Increased parental stress also adds to the psychosocial issues experienced by these children. For this reason, psychological care needed to promote resiliency in this population. Incorporating psychological services into treatment protocols with children with CHD is beneficial and will improve behavioral and emotional functioning across their lifespan [4]. This paper will review the definitions of resiliency and Congenital Heart Disease, as well as the professional roles of people treating infants with CHD, the risk factors deterring resiliency, and the developmental outcomes in children with CHD. It will then examine some of the most common psychological interventions for children with CHD and chronic illness, including CBT and psychoeducational interventions, and family-based interventions that also include a psychoeducational component. I will conclude by discussing the value of this multidimensional approach and why it is the most effective intervention strategy to promote resiliency in children with CHD.

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A guide to prenatal counseling regarding neurodevelopment in congenital heart disease

et al. 2023

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Advances in cardiac surgical techniques taking place over the past 50 years have resulted in the vast majority of children born with congenital cardiac malformations now surviving into adulthood. As the focus shifts from survival to the functional outcomes of our patients, it is increasingly being recognized that a significant proportion of patients undergoing infant cardiac repair experience adverse neurodevelopmental (ND) outcomes. The etiology of abnormal brain development in the setting of congenital heart disease is poorly understood, complex, and likely multifactorial. Furthermore, the efficacy of therapies available for the learning disabilities, attention deficit, and hyperactivity disorders and other ND deficits complicating congenital heart disease is currently uncertain. This situation presents a challenge for prenatal counseling as current antenatal testing does not usually provide prognostic information regarding the likely ND trajectories of individual patients. However, we believe it is important for parents to be informed about potential issues with child development when a new diagnosis of congenital heart disease is disclosed. Parents deserve a comprehensive and thoughtful approach to this subject, which conveys the uncertainties involved in predicting the severity of any developmental disorders encountered, while emphasizing the improvements in outcomes that have already been achieved in infants with congenital heart disease.A balanced approach to counseling should also discuss what local arrangements are in place for ND follow-up. This review presents an up-to-date overview of ND outcomes in patients with congenital heart disease, providing possible approaches to communicating this information to parents during prenatal counseling in a sensitive and accurate manner. Key pointsWhat is already known about this topic? � The heart is the organ most commonly affected by birth defects.� Neurodevelopmental (ND) disorders frequently affect children with congenital heart disease, with those with genetic syndromes and single ventricle hearts most severely affected, although even mild forms of heart disease confer some risk. What does this review add?� This review summarizes current knowledge regarding the prevalence, etiology, and risk factors for ND disorders in patients with congenital heart disease across the lifespan.

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Prenatal Counseling and Care for Single-Ventricle Heart Disease: One Center’s Model for Care

Cited by 8 publications

References 30 publications

The Role of Nurses in Fetal Cardiology Programs

The Role of Nurses in Fetal Cardiology Programs

Promoting Resilience in Families with Children with Congenital Heart Disease

A guide to prenatal counseling regarding neurodevelopment in congenital heart disease

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