Prenatal diagnosis of structuralmal formations and chromosome anomalies : Detection, influence of Body Mass Index and ways to improve screening

Hildebrand, E. M.

doi:10.3384/diss.diva-104185

Cited by 1 publication

(1 citation statement)

References 69 publications

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“…In Sweden heart defects are the most common congenital defect and represent about 25% of all malformations in infants at birth [25]. Approximately 1,000, just below 1%, of all children born in Sweden each year are born with some kind of heart defect [26]. The detection rate of ultrasound screening is increasing and about 40% of all heart defects are discovered before birth [27].…”

Section: Data and Data Collectionmentioning

confidence: 99%

Patient participation and learning in medical consultations about congenital heart defects

Bellander

Karlsson

2019

PLoS ONE

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In this article, patient activity in 8 audio recorded specialist consultations on fetal cardiology is investigated in order to explore how, why and when patients tend to participate in encounters in which the doctor dominates the interaction. The overall question is: How can the participation of patients in the consultations be connected to the development of higher levels of health literacy, i.e. to interactive literacy and to critical literacy? Patient participation is here understood as interactive action and is analyzed in terms of different interactive moves, which are related to different recurring topics. Despite the highly standardized format of the consultations, there is a large variation between the patients’ participation: between 0.7 and 2.8 moves per minute. The patients participate most during the topics ‘Prevalence’ and ‘Consultations’ and least during the topic ‘The normal heart’. Although most of the patients' moves are responses to what the doctor says, they remarkably often pose questions and use so called rejoinders. By posing questions, they take control of the information flow and sometimes even change the topics. By using rejoinders, they analyze the problems involved in the discussion e.g. by asking for clarifications or confirmation. Patients with a low over-all participation rate also use fewer moves that indicate higher literacy levels. The qualitative analysis problematizes the idea of a simple scale from basic literacy to critical literacy. Moves that indicate basic literacy skills are interactively important for the learning activity, led by the doctor. However, patients who mainly support the doctor’s initiatives don’t take the opportunity to influence the flow of information in ways that might favor their health literacy development.

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Section: Data and Data Collectionmentioning

confidence: 99%