Presenting an Evaluation Model for the Cancer Registry Software

Moghaddasi, Hamid; Asadi, Farkhondeh; Rabiei, Reza; Rahimi, Forough; Shahbodaghi, Reihaneh

doi:10.5455/aim.2017.25.267-270

Cited by 4 publications

(3 citation statements)

References 8 publications

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“…On the one hand, to facilitate the platform uses in our native language (Spanish), limit annual spending, and include speci c details related to the institutional research and administrative needs, a multidisciplinary institutional team developed a custom software platform (SIRIC) for our HBCR. On the other hand, a novel proposal to evaluate cancer registry software made by researchers from Iran was considered for our platform's development [45].…”

Section: Discussionmentioning

confidence: 99%

“…Finally, different strategic actors of Cali joined through the initiative City Cancer Challenge 2025 (C/Can 2015), whose purpose is to design, plan, and implement better solutions for cancer care in the region [45]. The initiative has in their city objectives, the creation of an integrated information system for oncological services management where HBCRs have a crucial role in their development.…”

Section: Discussionmentioning

confidence: 99%

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Methods and implementation of a Hospital-Based Cancer Registry in a major city in a low-to middle-income country: the case of Cali, Colombia

Parra-Lara

Mendoza-Urbano

Zambrano

et al. 2022

Cancer Causes Control

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To describe our experience upon developing and implementing a hospital-based cancer registry (HBCR) in a quaternary-level of care private non-pro t academic medical center in Cali, Colombia. MethodsHBCRs capture, in a given institution, every single patient with a con rmed malignancy. In this study, all cases evaluated between 2014 and 2018 were included in the HBCR. In compliance with the International Agency for Research on Cancer (IARC) recommendations, cases were classi ed as analytic or nonanalytic. Data derived from an exhaustive selection of patients was stored in a computing platform owned by the institution, meeting the 2016 Facility Oncology Registry Data Standards (FORDS) recommendations. Quality control was performed by evaluating comparability, timeliness, validity, and completeness. ResultsA total of 24,405 new cases were registered between 2014 and 2018, from which 4,253 (17.4%) died. Among all cases, based on the anatomic location, most common malignancies were breast (n = 1,554), thyroid (n = 1,346), hematolymphoid (n = 1,251), prostatic (n = 805), and colorectal (n = 624). The behavior of the incidence was consistent with an incremental trend. ConclusionUpon implementing the HBCR, major challenges were identi ed (i.e. a precise de nition of cases, the development of processes for capturing new cases, a standardized data collection strategy, and carryingout an appropriate patient follow-up). Based on our experience, the success of an HBCR largely relies on the interest from the institution, the engagement of stakeholders and nancial support, that is, it depends on the adequate access over time to funding, technological, and sta ng resources.There are mainly two types of cancer registries. One that measures the impact of the disease in speci c demographics, known as Population-Based Cancer Registry (PBCR) [3]. On the other hand, Hospital-Based Cancer Registries (HBCRs), mainly evaluate the burden of the disease and the quality of healthcare services, as well as the organizational and administrative support from the institution [4,5]. Although PBCRs are a valuable source of information, in Colombia, these do not often include clinical data, thus limiting the assessment of important variables, such as accuracy of diagnosis, quality of treatment, demand for health services, among others [6].Although the bene ts of implementing an HBCR have been evidenced [7, 8], its success over time requires the interest from the institution, the engagement of stakeholders and nancial support. For instance, in Colombia, the National Cancer Institute (INC by its Spanish acronym: Instituto Nacional de Cancerología) is the only institution with an HBCR that has published data [9,10]. The purpose of this study is to describe our experience upon developing and implementing the Institutional Cancer Registry (RIC by its Spanish acronym: Registro Institucional de Cáncer) in Fundación Valle del Lili (FVL). Our methodology may serve as a role model for other health centers in the country, Latin America and the Caribbean. The ...

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Section: Discussionmentioning

confidence: 99%

Section: Discussionmentioning

confidence: 99%

Methods and implementation of a Hospital-Based Cancer Registry in a major city in a low-to middle-income country: the case of Cali, Colombia

Parra-Lara

Mendoza-Urbano

Zambrano

et al. 2022

Cancer Causes Control

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“…In fact, diabetes kills one person every 10 seconds [4,5]. Further, a large body of research indicated that actions are needed by means of diagnosing, preventing, and monitoring the diabetes accurately in order to prevent or delay the acute and chronic complications [5][6][7][8][9]. Further, the availability of adequate and accurate information about the patients, the nature of the disease, and time and location is regarded as an important factor in developing and implementing effective strategies for preventing and controlling a disease.…”

Section: Introductionmentioning

confidence: 99%

A Study of Population based Diabetes Registry in Developed Countries

Moghaddasi

2018

JOJNHC

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Background and Purpose: Diabetes mellitus is the most common metabolic dysfunction, which can cause serious complications when it is not well-controlled. Thus, the population-based diabetes registry results in controlling and preventing diabetes by providing continuous care of patients, establishing connection among care providers, and monitoring and maintaining the quality of care. Some developed countries such as the United States, England, Denmark, Sweden, Italy and Australia are considered as the pioneers in this regard. The present study aimed to evaluate the components and characteristics of this registry, which can be informative for the developing countries. Method:In the present review article, the papers published between 2000 and 2017 were reviewed. In order to access to the related scientific documentation, electronic search was conducted by using keywords such as diabetes registry, population-based registry and design of registry in the PubMed, Science Direct, InterScience, ProQuest and Google Scholar databases. The materials of all the studies papers were carefully analyzed and arranged in an appropriate sequence after extracting, categorizing, and integrating the material. Literature Review:The population-based diabetes registry has attracted more attention in the developed countries due to the widespread prevalence of diabetes and the need for controlling. Thus, it is essential for developing countries to use these experiences. In the present study, population-based diabetes registry was reviewed in countries of the USA,

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Methods and Implementation of a Hospital-Based Cancer Registry in a Major City in a Low-to Middle-Income Country: The Case of Cali, Colombia

Parra-Lara

Mendoza-Urbano

Zambrano

et al. 2021

Preprint

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Purpose To describe our experience upon developing and implementing a hospital-based cancer registry (HBCR) in a quaternary-level of care private non-profit academic medical center in Cali, Colombia. Methods HBCRs capture, in a given institution, every single patient with a confirmed malignancy. In this study, all cases evaluated between 2014 and 2018 were included in the HBCR. In compliance with the International Agency for Research on Cancer (IARC) recommendations, cases were classified as analytic or non-analytic. Data derived from an exhaustive selection of patients was stored in a computing platform owned by the institution, meeting the 2016 Facility Oncology Registry Data Standards (FORDS) recommendations. Quality control was performed by evaluating comparability, timeliness, validity, and completeness. Results A total of 24,405 new cases were registered between 2014 and 2018, from which 4,253 (17.4%) died. Among all cases, based on the anatomic location, most common malignancies were breast (n = 1,554), thyroid (n = 1,346), hematolymphoid (n = 1,251), prostatic (n = 805), and colorectal (n = 624). The behavior of the incidence was consistent with an incremental trend. Conclusion Upon implementing the HBCR, major challenges were identified (i.e. a precise definition of cases, the development of processes for capturing new cases, a standardized data collection strategy, and carrying-out an appropriate patient follow-up). Based on our experience, the success of an HBCR largely relies on the interest from the institution, the engagement of stakeholders and financial support, that is, it depends on the adequate access over time to funding, technological, and staffing resources.

show abstract

Presenting an Evaluation Model for the Cancer Registry Software

Cited by 4 publications

References 8 publications

Methods and implementation of a Hospital-Based Cancer Registry in a major city in a low-to middle-income country: the case of Cali, Colombia

Methods and implementation of a Hospital-Based Cancer Registry in a major city in a low-to middle-income country: the case of Cali, Colombia

A Study of Population based Diabetes Registry in Developed Countries

Methods and Implementation of a Hospital-Based Cancer Registry in a Major City in a Low-to Middle-Income Country: The Case of Cali, Colombia

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