Prestige rankings of chronic diseases and disabilities. A survey among professionals in the disability field

Grue, Jan; Johannessen, Lars E.F.; Rasmussen, Erik Fossan

doi:10.1016/j.socscimed.2014.11.044

Cited by 36 publications

(38 citation statements)

References 25 publications

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“…In such a context, it is understandable that a ‘proper’ diagnosis (i.e. medical and specific) that proves legitimacy is crucial to patients (7, 9, 10, 49). Participants felt that receiving a diagnosis facilitated access to rehabilitation resources, as well as to wider societal resources such as sickness benefit.…”

Section: Discussionmentioning

confidence: 99%

Access to rehabilitation: patient perceptions of inequalities in access to specialty pain rehabilitation from a gender and intersectional perspective

Wiklund

Fjellman‐Wiklund

Stålnacke

et al. 2016

Global Health Action

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BackgroundLong-term musculoskeletal pain is common, particularly among women. Pain conditions are a concern in primary health care, and people with severe and complex pain are referred to specialty health care. There is gender bias in access, counselling, assessment, and treatment of long-term pain.ObjectiveThis study explores patient accounts and perceptions about important (social) factors for accessing specialised pain rehabilitation from gender and intersectional equality perspectives. We aimed to identify potential biases and inequalities in accessing rehabilitation resources at a specialised rehabilitation clinic.DesignIndividual semi-structured interviews were conducted with 10 adults after an assessment or completion of a specialised rehabilitation programme in northern Sweden. Qualitative content analysis was used to explore patients’ perceptions of important factors for accessing rehabilitation.ResultsOne main theme was formulated as Access to rehab – not a given. Three categories of perceived inequality were demonstrated: power of gender, power of social status, and power of diagnosis. Participants perceived rehabilitation as a resource that is not equally available, but dependent on factors such as gender, socio-economic status, ability to work, ethnicity, or age, and more subtle aspects of social status and habitus (e.g. appearance, fitness, and weight). The character of diagnosis received (medical versus psychiatric or social) was also noted.ConclusionsIt is crucial that professionals are aware of how potential inequalities related to gender, social status, and diagnosis, and their intersections, can be created, perceived, and have influence on the processes of assessment and treatment. Reduction of social determinants of health and biases remain important within global, national, and local contexts.

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Section: Discussionmentioning

confidence: 99%

Access to rehabilitation: patient perceptions of inequalities in access to specialty pain rehabilitation from a gender and intersectional perspective

Wiklund

Fjellman‐Wiklund

Stålnacke

et al. 2016

Global Health Action

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“…Indeed, there are socially perceived hierarchies in which specific impairments differ considerably in terms of prestige (Deal , Grue et al . ).…”

Section: Disability Stigmamentioning

confidence: 97%

“…Within such structures, individual people can effectively be members of the category of disabled people without having to be aware of it, and with little incentive to identify themselves as suchas a disabled person alongside other disabled people. Indeed, there are socially perceived hierarchies in which specific impairments differ considerably in terms of prestige (Deal 2003, Grue et al 2015.…”

Section: Disability Stigmamentioning

confidence: 99%

The social meaning of disability: a reflection on categorisation, stigma and identity

Grue

2016

Sociology Health & Illness

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As disability becomes an ever more salient concept in international political and legal discourse, its social meaning must be better understood. Traditionally defined in medical terms and as an individual problem, it has for the last several decades increasingly become a socio-politically defined phenomenon. Disability pride has emerged as a social movement patterned after ethnic minority and sexual orientation movements. The one billion people who count as disabled nevertheless have illnesses and impairments that are largely understood as medical problems. Medicine continues to exert great influence on the social meaning of disability in general and the social valuation of various illnesses and impairments in particular. Whereas specific conditions may be socially valued, the overall category and label of disability connotes marginality and stigma. Under these conditions, disability policy, which ought to be a universal concern, risks being construed as a marginal and special-interest issue rather than a broadly relevant topic; this has potentially negative consequences for the majority of disabled people.

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“…It explains why some kinds of impairment -the kind that is easily signified -are so prominent in inspiration porn. We know that some illnesses and impairments are more prestigious than others (Album & Westin, 2008;Grue, Johannessen, & Rasmussen, 2015), and that attention is often drawn to illnesses and impairments that have an association with medical intervention, or technology, or are easily recognized as belonging to a distinct body part. These mechanisms obscures complex embodiment, and makes people with hidden impairments and chronic illnesses even more marginalized than they already are.…”

Section: Inspiration or Empowerment? An Uncomfortable Analogymentioning

confidence: 99%

The problem with inspiration porn: a tentative definition and a provisional critique

Grue

2016

Disability & Society

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124

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The term "inspiration porn" is associated with disability advocacy in general and the late activist and comedian Stella Young in particular. It has come into widespread usage over the last few years. I propose the following definition: Inspiration porn is the representation of disability as a desirable but undesired characteristic, usually by showing impairment as a visually or symbolically distinct biophysical deficit in one person, a deficit that can and must be overcome through the display of physical prowess. Inspiration porn superficially appears linked only to medical model / personal tragedy framings of disability, but on closer inspection resonate strongly with the disability movement's advocacy of empowerment and affirmation.

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Prestige rankings of chronic diseases and disabilities. A survey among professionals in the disability field

Cited by 36 publications

References 25 publications

Access to rehabilitation: patient perceptions of inequalities in access to specialty pain rehabilitation from a gender and intersectional perspective

Access to rehabilitation: patient perceptions of inequalities in access to specialty pain rehabilitation from a gender and intersectional perspective

The social meaning of disability: a reflection on categorisation, stigma and identity

The problem with inspiration porn: a tentative definition and a provisional critique

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