2015
DOI: 10.1016/j.bbmt.2014.10.016
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Prevalence and Impact of Financial Hardship among New England Pediatric Stem Cell Transplantation Families

Abstract: Poverty is correlated with negative health outcomes in pediatric primary care and subspecialties; its association with childhood hematopoietic stem cell transplantation (HSCT) patterns of care and clinical outcomes is not known. We describe family-reported financial hardship at a primary referral center in New England and explore the relationship between measures of poverty and patterns of care and clinical outcomes. Forty-five English-speaking parents of children after allogeneic HSCT in the prior 12 months c… Show more

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Cited by 64 publications
(79 citation statements)
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“…During treatment, studies indicate a wide variability in out-of-pocket expenses for caregivers, depending in part on whether lost wages are included (129, 130). Greater financial and employment difficulties are associated with poorer HRQOL (131) and higher levels of perceived stress (132, 133). Low-income families report disproportionate transplantation-related income losses, while low household income is an independent predictor of worse HRQOL post-transplant after controlling for relevant treatment-related exposures (132).…”
Section: Resultsmentioning
confidence: 99%
“…During treatment, studies indicate a wide variability in out-of-pocket expenses for caregivers, depending in part on whether lost wages are included (129, 130). Greater financial and employment difficulties are associated with poorer HRQOL (131) and higher levels of perceived stress (132, 133). Low-income families report disproportionate transplantation-related income losses, while low household income is an independent predictor of worse HRQOL post-transplant after controlling for relevant treatment-related exposures (132).…”
Section: Resultsmentioning
confidence: 99%
“…This being said, prior publications have demonstrated an increase in financial hardship over the course of cancer treatment secondary to income losses (due to work disruption) as well as out‐of‐pocket expenses (e.g., travel, accommodation, and communication costs) in populations without pre‐existing HMH or low income at the time of diagnosis . Other studies show that some patients and families may be affected by these financial burdens for several years following diagnosis and even into survivorship .…”
Section: Discussionmentioning
confidence: 99%
“…For example, a family's need to pay rent or utilities may result in cost-shifting away from a child's medical care (ie, pay rent or electricity bill over a child's medications or gas to allow travel to appointments). 33 Similarly, limited social supports may affect a family's ability to deal with even routine stressors. For example, the illness of a primary caregiver could translate into an unnecessary respite hospitalization without available social supports.…”
Section: Discussionmentioning
confidence: 99%