Prevalence and incidence of health problems in people with intellectual disability

Valk, H.M.J. van Schrojenstein Lantman-de; Akker, Marjan van den; Maaskant, Marian A.; Haveman, Meindert; Urlings, H. F. J.; Kessels, Alphons G.H.; Crebolder, H. F. J. M.

doi:10.1111/j.1365-2788.1997.tb00675.x

Cited by 184 publications

(116 citation statements)

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“…However, only few studies have reported such prevalence rates of a wide range of chronic diseases associated with ID (Fernell, 1998;Stromme & Diseth, 2000;Stromme & Hagberg, 2000;Van Schrojenstein Lantman-de Valk et al, 1997). Moreover, only some studies compared their results with the prevalence rates of chronic diseases in the general population (Emerson & Hatton, 2007;Emerson, 2003;Magnusson & Saemundsen, 2001;Petterson et al, 2007;Voigt et al, 2006), and none of these studies reported prevalence rates of chronic diseases among ID-adolescents.…”

Section: Introductionmentioning

confidence: 99%

Prevalence of chronic diseases in adolescents with intellectual disability

Oeseburg

Jansen

Dijkstra

et al. 2010

Research in Developmental Disabilities

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Section: Introductionmentioning

confidence: 99%

Prevalence of chronic diseases in adolescents with intellectual disability

Oeseburg

Jansen

Dijkstra

et al. 2010

Research in Developmental Disabilities

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“…Compared to the general population, people with intellectual disabilities (ID) experience a disproportionate burden of illness, and are affected by twice the number of health issues [1][2][3][4]. Epilepsy is the most common neurological disorder in people with ID, with a reported prevalence of 22.2%, compared to 0.4% to 1% in the general population [2,[5][6][7][8][9][10].…”

Section: Introductionmentioning

confidence: 99%

Self-management interventions for epilepsy in people with intellectual disabilities: A scoping review

Dannenberg

Mengoni

Gates

et al. 2016

Seizure

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Five self-management interventions for epilepsy were identified A randomised controlled trial of a self-management intervention is currently underway Findings suggest that self-management interventions targeted at people with ID are acceptable to this population Pilot findings show improved epilepsy-related knowledge, improve seizure frequency, potential to improve quality of life Page 2 of 27 A c c e p t e d M a n u s c r i p t A c c e p t e d M a n u s c r i p t 3 ABSTRACT Purpose: People with intellectual disabilities (ID) experience higher incidences of chronic health conditions, poorer health outcomes, and increased risk of premature death. Epilepsy is 20 times more common in people with ID than in the general population. It tends to be more difficult to diagnose, more severe, and more difficult to treat. Improving epilepsy self-management in this group is advocated in guidelines for best practice. However, few self-management interventions exist, and a robust examination of their effectiveness is missing. Our aim was to identify existing self-management interventions for epilepsy in people with ID and to analyze their impact.Methods: A scoping review using Arksey and O'Malley's framework was conducted. Medline, EMBASE, CINAHL, PsycInfo, OpenSIGLE, the Cochrane Database of Systematic Reviews, and Web of Science were searched from inception until June 2015. Using a piloted charting tool, selected articles were thematically analyzed.Results: An initial search identified 570 articles, of which five met the inclusion criteria. Pilot and randomized controlled feasibility study findings suggest that self-management interventions targeted at people with ID are acceptable to this population, improve epilepsyrelated knowledge, improve seizure frequency, and show potential to improve quality of life. A randomised controlled trial of a self-management intervention is currently underway. Conclusion:Studies evaluating self-management interventions for people with epilepsy and ID are sparse. Our findings demonstrate the potential for self-management interventions to improve outcomes in this population. Controlled studies with comparable measures and longer follow-ups are needed to rigorously assess the impact of self-management interventions on this patient population.Word count: 250/250

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“…Although physical, medical and neurological complications tend to be late features in the majority of patients, these may occur at any stage of the illness. People with ID and dementia are susceptible to developing a number of medical problems 9,14,15,16,25,26,27 , including: incontinence (urinary or faecal; usually nocturnal); gastrointestinal problems (e.g. chronic constipation; diarrhoea); malnutrition and dehydration; infections (e.g.…”

Section: Examinationmentioning

confidence: 99%

Dementia in intellectual disability: a review of diagnostic challenges

Nagdee

2011

Afr. J. Psych

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IntroductionPeople with intellectual disability (ID) [this term is used in preference to mental retardation (MR)] are prone to developing dementia in later life. This is particularly important in the context of rising life expectancies in this population. The average life expectancy of adults with ID (in developed countries) is 66 years and increasing. 1,2 As these individuals age, they present with increased rates of physical, sensory and cognitive impairments. This results in increasing health and social care needs, with resultant pressures on carers and support services. Clinicians can expect to come across increasing numbers of people with ID who develop dementia as they grow older. Whilst mental health resource priorities in developing countries may be focused elsewhere, people with ID still form a significant, and particularly vulnerable, proportion of our patient population, and have been historically neglected in many respects. As identification, evaluation, diagnosis, and management of such patients can be challenging, familiarity with the key issues is essential for all involved in their care. EpidemiologyDementia can occur at any age, but is largely a disorder of later life. The prevalence of dementia in the general population rises markedly with increasing age: from 1-2% in people aged 65-69 years, to 16-25% in those over 80 years. 3 Among people with ID, dementia is liable to strike more often, and earlier. A number of community-based studies of ID populations have yielded age-matched prevalence rates of about 14% in people over 59 years, and 22% in those 65 years and over. 4 The comparative rates among same-age adults with Down syndrome are much higher, reaching over 40% in those over 50 years, and over 70% for ages above 60 years. 5 Diagnostic criteriaThe diagnosis of dementia in people with ID presents a number of challenges 6 :• Assessment techniques and tools in common clinical use for the non-disabled population may not be appropriate, especially for individuals with more severe pre-existing levels of intellectual impairment. Diagnosis in the ID population requires a change in status from baseline functioning, not a change from a "normal" level. 7 • Pre-existing cognitive impairments and disturbances in behaviour, personality and emotional control may conceal the often subtle and insidious emergent symptoms of dementia. 8,9Dementia in intellectual disability: a review of diagnostic challenges M Nagdee 1,2 1 Fort England Hospital, Grahamstown, Eastern Cape, South Africa 2 Department of Psychiatry, Walter Sisulu University, Eastern Cape, South Africa AbstractThe evaluation of dementia in individuals with intellectual disability (ID), which will guide subsequent intervention, care and management depends on the systematic review of a number of factors: (1) the individual historical context, obtained from multiple sources, (2) evaluation of the pre-existing cognitive, behavioural, psychiatric, medical and adaptive skill profile, (3) the constellation, and pattern of evolution, of presenting signs a...

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Prevalence and incidence of health problems in people with intellectual disability

Cited by 184 publications

References 16 publications

Prevalence of chronic diseases in adolescents with intellectual disability

Prevalence of chronic diseases in adolescents with intellectual disability

Self-management interventions for epilepsy in people with intellectual disabilities: A scoping review

Dementia in intellectual disability: a review of diagnostic challenges

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