Prevalence and incidence of hidradenitis suppurativa: an exercise on indirect estimation from psoriasis data

Fania, Luca; Ricci, Francesco; Sampogna, Francesca; Mazzanti, Cinzia; Didona, Biagio; Pintori, G; Abeni, Damiano

doi:10.1111/jdv.14224

Cited by 10 publications

(11 citation statements)

References 9 publications

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“…Also, most experts concur that the maximum duration of the active form of HS in a given patient is about 20 years [6]. With regard to the estimated prevalence of the disease in European countries and in the United States, available data differ by up to four orders of magnitude, ranging from 0.00033% to 4.1% [7][8][9][10][11][12][13][14][15][16][17][18].…”

Section: Situation In the Usa And Europementioning

confidence: 99%

“…Więk-szość ekspertów jest również zgodna, że czas trwania czynnej postaci HS wynosi u danego pacjenta maksymalnie ok. 20 lat [6]. Dane dotyczące częstości wystę-powania choroby w krajach europejskich i USA różnią się nawet o 4 rzędy wielkości i mieszczą się w przedziale od 0,00033% do 4,1% [7][8][9][10][11][12][13][14][15][16][17][18].…”

Section: Sytuacja W Usa I Europieunclassified

“…W przeciwieństwie do dwóch powyżej wymienionych badań dane płynące z rejestrów włoskich, szacowane na populację ogólną [8,23] wskazują, że Unlike the two studies presented above, data obtained from Italian registers and estimated for the general population [8,23] indicate that the prevalence of HS reaches 0.045% and 0.056%.…”

Section: Sytuacja W Usa I Europieunclassified

See 2 more Smart Citations

Epidemiology of hidradenitis suppurativa in Poland in relation to international data

Matusiak¹,

Kaszuba²,

Krasowska³

et al. 2017

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Section: Situation In the Usa And Europementioning

confidence: 99%

Section: Sytuacja W Usa I Europieunclassified

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Epidemiology of hidradenitis suppurativa in Poland in relation to international data

Matusiak¹,

Kaszuba²,

Krasowska³

et al. 2017

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“…HS is a chronic, inflammatory, debilitating disease with a relapsing nature, characterized by painful inflammatory nodules, abscesses, and fistulas predominantly affecting intertriginous sites, including axillae, breasts, groin, buttocks, and perineum [12]. The prevalence of HS is unknown: estimates range from <0.1% [13] to over 4% [14] of the general population. The pathogenesis of HS is multifactorial and not fully understood [15].…”

Section: Introductionmentioning

confidence: 99%

Alexithymia, Psychological Distress, and Social Impairment in Patients with Hidradenitis Suppurativa

et al. 2019

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Background: Hidradenitis suppurativa (HS) is a rare, chronic, inflammatory skin disease characterized by deep-seated nodules, abscesses, and draining fistulas. HS has a substantial adverse impact on patients’ lives. Only a few studies investigated the relationship between health-related quality of life, psychological distress, and emotional dysregulation in patients with HS. Alexithymia, namely the difficulty in describing or recognizing emotions, has been associated with various psychological disorders, such as anxiety, depression, and psychological distress. Objective: The aim of this study was to examine the prevalence of alexithymia in patients with HS and its association with demographic and clinical variables, quality of life indices, and psychological distress. Methods: Ninety outpatients with HS completed the 20-item Toronto Alexithymia Scale, the 12-item General Health Questionnaire (GHQ-12), the Dermatology Life Quality Index, the Skindex-17, and the 36-Item Short-Form Health Survey. Information on sociodemographic and clinical variables was retrieved from clinical records. Results: Alexithymia or borderline alexithymia was observed in 44.4% of patients with HS, with a higher prevalence of the alexithymic trait in women than in men (51.7 vs. 31.2%). We did not find any association between alexithymia and clinical variables. Of the entire sample analyzed, 46.1% reported high psychological distress; among them, 78% reported alexithymia or borderline alexithymia compared to 16.7% among GHQ noncases. Furthermore, HS patients with alexithymia or borderline alexithymia showed significantly higher scores on the Skindex-17 psychosocial scale and the Dermatology Life Quality Index, and a lower score on the mental component of the 36-item Short-Form Health Survey, than nonalexithymic patients. Conclusions: Dermatologists should consider alexithymia in the diagnosis and treatment of HS patients, given its important role in psychological and psychosocial distress.

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“…First, its prevalence is still uncertain. It has been estimated to occur in a range from less than 0.1 [2-4] up to 2 [5], 4 [6], or even 8% [7]. Also, patients with HS have been treated by many different medical specialties, but by none of them in particular.…”

Section: Introductionmentioning

confidence: 99%

The Broad-Spectrum Impact of Hidradenitis Suppurativa on Quality of Life: A Comparison with Psoriasis

et al. 2019

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Background/Aim: Hidradenitis suppurativa (HS) is a chronic skin disease with a heavy impact on patients’ quality of life (QoL). The aim of this study was to evaluate in detail the QoL impact of HS comparing it with other skin conditions, and in particular with psoriasis. Methods: Patients with a diagnosis of HS were recruited. QoL was measured using the Skindex-17 questionnaire. Results: Data were available for 69 HS patients. HS had the worst QoL among several skin conditions. Compared to psoriasis the mean symptom score was 69.4 versus 53.7, and the mean psychosocial score was 56.1 versus 32.7. Overall, the scores of patients with HS were higher than those of psoriasis patients on 16 of the 17 items of the Skindex-17. Conclusions: When compared to many different skin conditions, and in particular to psoriasis, HS was the most impairing condition, even at low levels of clinical severity.

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Prevalence and incidence of hidradenitis suppurativa: an exercise on indirect estimation from psoriasis data

Cited by 10 publications

References 9 publications

Epidemiology of hidradenitis suppurativa in Poland in relation to international data

Epidemiology of hidradenitis suppurativa in Poland in relation to international data

Alexithymia, Psychological Distress, and Social Impairment in Patients with Hidradenitis Suppurativa

The Broad-Spectrum Impact of Hidradenitis Suppurativa on Quality of Life: A Comparison with Psoriasis

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