Prevalence, diagnoses and rehabilitation services related to severe dual sensory loss (DSL) in older persons: a cross-sectional study based on medical records

Lundin, Elin; Widén, Stephen; Wahlqvist, Moa; Anderzén‐Carlsson, Agneta; Granberg, Sarah

doi:10.1080/14992027.2020.1783003

Cited by 4 publications

(3 citation statements)

References 39 publications

Supporting

Mentioning

Contrasting

Order By: Relevance

“…The item related to vision (item 5) was found to be relevant for participants in all countries except India, where participants with good eyesight (but not those with vision impairment) found it difficult to comprehend the connection between vision and hearing loss. It is important to note that, however, the number of older adults in the global population is increasing (World Health Organization 2018), and the prevalence of combined hearing and visual loss increases with age (Gohdes et al 2005; Lundin et al 2020), with consequences for functioning that warrant an integrated approach to rehabilitation that entails both hearing, vision and dual sensory impairments (World Health Organization 2017). There is also a connection between combined hearing and vision loss and cognitive decline (Michalowsky et al 2019).…”

Section: Discussionmentioning

confidence: 99%

Hearing and Functioning in Everyday Life Questionnaire: Development and Validation of an ICF-Based Instrument

et al. 2023

Self Cite

View full text Add to dashboard Cite

Objectives: Self-assessment instruments are commonly used in audiological rehabilitation. However, several studies highlight the lack of multidimensionality in existing outcome measures, with the consequence that they only partially capture aspects of functioning in everyday life for people living with hearing loss. This study aimed to develop and investigate the content validity of a self-assessment instrument based on the validated Brief International Classification of Functioning, Disability, and Health Core Set for Hearing Loss. Design: The design was a two-part instrument development study. The first part focused on the item-generation process of the instrument, named the Hearing and Functioning in Everyday Life Questionnaire (HFEQ) during an experts’ workshop. The second part focused on international content validation of the instrument using group interviews. Strategic sampling was used and 30 adults with hearing loss from India, South Africa, and the United States participated in the group interviews. Results: The expert’s workshop resulted in the first version of the HFEQ containing 30 items. The results from group interviews show that the content of the HFEQ was considered to be valid concerning its relevance, comprehensiveness, and comprehensibility. A majority (73%) of the HFEQ items were perceived by the participants as relevant and easy to comprehend. For the remaining 27% of the items, the content was perceived to be relevant in all countries, but some terms and expressions were reported to require rewording or clearer examples. These modifications will be made in the next step of the development process. Conclusion: Content validation of the HFEQ demonstrates promising results, with participants perceiving the content as relevant and comprehensible. Further psychometric validation is required to investigate other psychometric properties, such as construct validity and reliability. The HFEQ has the potential to become a valuable new instrument for assessing everyday functioning in people with hearing loss in audiological rehabilitation and in research.

show abstract

Section: Discussionmentioning

confidence: 99%

Hearing and Functioning in Everyday Life Questionnaire: Development and Validation of an ICF-Based Instrument

et al. 2023

Self Cite

View full text Add to dashboard Cite

show abstract

“…In 2006, approximately 1200 people were characterized as deafblind in Sweden [20]. A recently published study [21] shows a prevalence of ~ 1581 (0.08 %) individuals over 65 years old with a combination of vision and hearing impairment in Sweden. According to another source [22] approximately 2000 people up to 65 years of age are deafblind in Sweden is the author/funder, who has granted medRxiv a license to display the preprint in (which was not certified by peer review) preprint…”

Section: Introductionmentioning

confidence: 99%

Combined severe-to-profound hearing and vision impairment – experiences of daily life and need of support, an interview study

Turunen-Taheri

Sirelius

Hellström

et al. 2023

Preprint

View full text Add to dashboard Cite

Objectives: The purpose of the present study was to describe experiences of disabilities and factors affecting daily life from the perspective of adult persons with severe-to-profound hearing impairment in combination with severe vision impairment. Furthermore, the study also investigated which kind of support individuals with dual sensory loss received, and their experiences as citizens in the society. Methods: Semi-structured qualitative interviews were performed, analyzed, and categorized using content analysis. Results: Fourteen interviews were performed, with equal number of both sexes. Mean age was 70.1 years (47-81 years). Analysis of the data resulted in 22 categories, six sub-themes and two main themes. Two main themes emerged as Isolation and The Ability to control one's own daily life. Surprisingly, most of the participants did not think of their vision and hearing impairment as a combined disability. The interviews showed various kind of strategies to handle daily life. The Deafblind-team unit was reported to offer excellent health care. Companion services for persons with disabilities proved to have become more difficult to get support from and created lack of independence and control over their own lives. However, it was also obvious that the participants felt a positive outlook on life and more solution-oriented in order to adjust their everyday life to their life-situation. Conclusions: The combination of vision and hearing impairment demonstrated isolation, and the respondents in the study have a need of support in everyday lives. At the same time, they struggle to have the ability to control their own lives.

show abstract

“…In 2006, approximately 1200 people were characterized as deafblind in Sweden [ 20 ]. A recently published study [ 21 ] shows a prevalence of ~ 1581 (0.08%) individuals over 65 years old with a combination of vision and hearing impairment in Sweden. According to another source [ 22 ] approximately 2000 people up to 65 years of age are deafblind in Sweden 2018, of which approximately 400 were born deafblind and almost 700 persons are affected by Usher syndrome.…”

Section: Introductionmentioning

confidence: 99%

Combined severe-to-profound hearing and vision impairment—Experiences of daily life and need of support, an interview study

et al. 2023

View full text Add to dashboard Cite

Objectives The purpose of the present study was to describe experiences of disabilities and factors affecting daily life from the perspective of adult persons with severe-to-profound hearing impairment in combination with severe vision impairment. Furthermore, the study also investigated which kind of support individuals with dual sensory loss received, and their experiences as citizens in the society. Methods Semi-structured qualitative interviews were performed, analyzed, and categorized using content analysis. Results Fourteen interviews were performed, with equal number of both sexes. Mean age was 70.1 years (47–81 years). Analysis of the data resulted in 22 categories, six sub-themes and two main themes. Two main themes emerged as Isolation and The Ability to control one’s own daily life. Surprisingly, most of the participants did not think of their vision and hearing impairment as a combined disability. The interviews showed various kind of strategies to handle daily life. The Deafblind-team unit was reported to offer excellent health care. Companion services for persons with disabilities proved to have become more difficult to get support from and created lack of independence and control over their own lives. However, it was also obvious that the participants felt a positive outlook on life and were more solution-oriented in order to adjust their everyday life to their life-situation. Conclusions The combination of vision and hearing impairment demonstrated isolation, and the respondents in the study have a need of support in everyday lives. At the same time, they struggle to have the ability to control their own lives.

show abstract

Prevalence, diagnoses and rehabilitation services related to severe dual sensory loss (DSL) in older persons: a cross-sectional study based on medical records

Cited by 4 publications

References 39 publications

Hearing and Functioning in Everyday Life Questionnaire: Development and Validation of an ICF-Based Instrument

Hearing and Functioning in Everyday Life Questionnaire: Development and Validation of an ICF-Based Instrument

Combined severe-to-profound hearing and vision impairment – experiences of daily life and need of support, an interview study

Combined severe-to-profound hearing and vision impairment—Experiences of daily life and need of support, an interview study

Contact Info

Product

Resources

About