Prevalence of depression and quality of life in primary caregiver of children with cerebral palsy

Sonune, SwapnilP; Gaur, AnilK; Shenoy, Anuradha

doi:10.4103/jfmpc.jfmpc_70_21

Cited by 12 publications

(14 citation statements)

References 27 publications

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“…Although the chronic condition affects the entire family, in general, the mother, as she is the one most involved in care, starts to live for her child, giving up her own life ( 19 ) . The maternal figure, as the main caregiver of children with special health care needs, was evidenced in numerous studies ( 18 - 23 ) , as well as the need for the main family caregiver to abandon employment ( 22 - 23 ) , intensifying social vulnerability, both due to financial disadvantage and the lack of socialization with other individuals.…”

Section: Discussionmentioning

confidence: 99%

Mental health of parents of children and adolescents who require special health care

Nonose,

Silva,

Neves

et al. 2024

Rev. Bras. Enferm.

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Objective: To identify the manifestations presented by parents of children and adolescents who require special health attention that can impact their mental health. Methods: exploratory, qualitative research, based on the concept of vulnerability, with data collection carried out through interviews with 18 parents of children and adolescents with special health care needs, hospitalized in the pediatric ward of a hospital in Paraná, between May/2017 and May/ 2018. Data analyzed by inductive thematic analysis. Results: parents experienced situations of vulnerability when providing care at home, with repercussions on their mental health, expressed by manifestations of lack of protection, anxiety and depression. Final considerations: It is important that health professionals seek to expand actions to promote care and reduce situations that generate threats, insecurities, concerns and damage to the health of parents, which can impact and further weaken care for children and adolescents who need attention especially health.

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Section: Discussionmentioning

confidence: 99%

Mental health of parents of children and adolescents who require special health care

Nonose,

Silva,

Neves

et al. 2024

Rev. Bras. Enferm.

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“…Diversos estudios han puesto de mani$esto cómo el nacimiento de un hijo con parálisis cerebral supone un cambio para la vida de los padres, con marcadas afectaciones en su salud física y emocional, la situación laboral y profesional, las relaciones familiares y sociales (Whittingham et al, 2011). En el cuidado de los hijos, los padres experimentan niveles de estrés mayores a los de la población general, con alta signi$cancia clínica traducida en ansiedad y en depresión, que requieren intervenciones cognitivas y clínicas (Ribeiro et al, 2014;Sonune et al, 2021;Tseng et al, 2016), lo que es potenciado por el cuestionamiento que otros hacen del cuidado ofrecido (Hagerman et al, 2022), lo que coincide con los relatos del presente estudio.…”

Section: Discussionunclassified

Significado de cuidar niños con parálisis cerebral

Niño-Serna,

Meyer-Martínez,

Tirado-Otálvaro

et al. 2023

Rev.latinoam.cienc.soc.niñez juv

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(analítico)Existe insuficiente evidencia acerca de lo que significa ser cuidador de niños o niñas con parálisis cerebral en Colombia. Nuestra investigación se aborda desde un enfoque hermenéutico, utilizando el método de la teoría fundamentada, con 13 entrevistas semiestructuradas a adultos cuidadores de niños y niñas con parálisis cerebral. Emergen cuatro categorías: amor incondicional, cuidando como mujer, atravesando el duelo e interminable lucha por los derechos del menor. Se concluye que existe una decidida forma de afrontamiento de las cuidadoras, pues están dispuestas a renunciar a sus propias vidas, a sus relaciones personales y sociales, a sufrir un constante duelo, a aprender nuevas formas de cuidar y transformar sus hogares, hasta luchar por la atención digna de sus hijos. El amor sin condiciones les permite reconocerse como mujeres cuidadoras únicas. Palabras clave: Parálisis cerebral; crianza del niño; desarrollo infantil; niños con discapacidad; carga del cuidador; cuidado del niño; empatía; cuidadores.

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“…. Studies in the literature found that functional level association between lower quality of life (Sonune et al, 2021;Yilmaz et al, 2010). In a study conducted by Sonune et al, in which the relationship of depression and quality of life of mothers of children with cerebral palsy were examined with the functional level, it was found that the quality of life was significantly affected by the functional level (Sonune et al, 2021).…”

Section: Discussionmentioning

confidence: 99%

The Investigation of Relationship between Functional Mobility Levels of Children with Chronic Disability and Caregivers’ Quality of Life

Ahmadov,

Demir,

Kurt

et al. 2023

International Journal of Disabilities Sports and Health Sciences

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Purpose: Children with chronic disabilities face numerous challenges in daily life. Caregivers play a crucial role in overcoming these challenges. This study aims to look at the relationship between carers' quality of life and the functional mobility levels of children with chronic disabilities. Methods: The study included 30 children (22 boys, 8 girls) with chronic disabilities and their caregivers. The socio-demographic characteristics of the children and caregivers were collected. Caregivers' quality of life was evaluated with the Adult Carer Quality of Life Questionnaire (AC-QoL), and children’s functional mobility was evaluated with the mobility subscale of the Pediatric Evaluation Of Disability Inventory (PEDI-Mobility). Results: The age of the children included in the study was 7.0 (5.0-12.0) years and the age of their caregivers was 38.00 (32.75-41.25) years. The AC-QoL score of caregivers was 85.00 (72.00-93.50) out of a total of 120 points, and the PEDI-Mobility score was 33.00 (3.75-53.00) out of a total of 58 points. In the correlation analysis performed to determine the relationship between the functional mobility level of children and the quality of life of their caregivers, no significant correlation was found between the total PEDI-Mobility score and the total score of AC-QoL (p>0.05). However, there was a negative correlation between the PEDI-Mobility total score and the AC-QoL “ability to care” subscale score (r= -0.403; p=0.027). Conclusion: According to the results of the study, no relationship was found between the functional levels of children and the quality of life of their caregivers. Studies with a larger sample size and consideration of aspects including sociocultural level, economic considerations, and health services that may affect the quality of life of families are regarded to be necessary in order to achieve more conclusive findings on this subject. Increasing the quality of life of the persons responsible for the care of the disabled child by supporting them physically, psychologically and economically is seen as an important step for them to be able to provide better care.

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Prevalence of depression and quality of life in primary caregiver of children with cerebral palsy

Cited by 12 publications

References 27 publications

Mental health of parents of children and adolescents who require special health care

Mental health of parents of children and adolescents who require special health care

Significado de cuidar niños con parálisis cerebral

The Investigation of Relationship between Functional Mobility Levels of Children with Chronic Disability and Caregivers’ Quality of Life

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