Prevalence of incontinence and incontinence‐specific quality of life impairment in women with cystic fibrosis

Vella, Mark; Cartwright, Rufus; Cardozo, Linda; Parsons, Matthew; Madge, Su; Burns, Yvonne

doi:10.1002/nau.20732

Cited by 19 publications

(18 citation statements)

References 17 publications

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“…There have been many studies regarding UI issues in populations of women with CF. Most of them reported a much higher prevalence of incontinence in the CF population than in healthy young people [4,6,7], but some authors reported that incidence of urinary incontinence is no different between adolescents with CF, and controls [3]. We authors realize, that the lack of a control group is the main limitation of this study, nevertheless, our results highlight that the UI prevalence is very high in Polish female adolescents with CF.…”

Section: Discussionmentioning

confidence: 55%

Urinary incontinence in adolescent females with cystic fibrosis in Poland

Korzeniewska-Eksterowicz

Stelmach

2014

Open Medicine

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Section: Discussionmentioning

confidence: 55%

Urinary incontinence in adolescent females with cystic fibrosis in Poland

Korzeniewska-Eksterowicz

Stelmach

2014

Open Medicine

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“…reported that 74% had experienced UI, of whom 60% rated the severity of UI as ‘mild’, 22% as ‘moderate’ and 18% as ‘severe’. The association with disease severity was not examined …”

Section: Resultsmentioning

confidence: 99%

“…Most reviewed studies did not attempt to distinguish the symptoms associated with these types of UI. Of those that did examine UI subtype, most found that symptoms of stress incontinence predominated . Symptoms of stress incontinence were also accompanied by urgency in a subset of affected patients .…”

Section: Resultsmentioning

confidence: 99%

A systematic review of the prevalence and impact of urinary incontinence in cystic fibrosis

2017

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This systematic review synthesizes published articles investigating the prevalence, severity and impact of urinary incontinence (UI), a condition associated with cystic fibrosis (CF). References were identified through searching Medline, Embase and PubMed using the medical subject headings 'cystic fibrosis' AND 'urinary incontinence'. Articles were included if UI prevalence was investigated as an outcome. Twelve studies met selection criteria. The prevalence of UI ranged from 5% to 76%. Age and gender contributed to this variability. When assessed, UI commonly limited airway clearance, exercise and/or spirometry, and had a variable impact on patients' lives. Worry and embarrassment were features for many; others were less affected. In CF, UI is common and can interfere with respiratory care and social well-being. The prevalence, characteristics and impact are poorly understood, which is made worse by inconsistent definitions across studies. Future research is needed to improve approaches to prevention, identification, management and education.

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“…Dies ist erkennbar an einem kontinuierlichen Anstieg des Durchschnittsalters aller in einem Register erfassten Personen mit CF, aber auch an der Lebenszeitanalyse verschiedener Geburtskohorten sowie dem Anteil der in den Ambulanzen behandelten erwachsenen CF-Patienten: [19,20]. Sowohl hinsichtlich der männlichen Infertilität als auch bezüglich der gesundheitlichen Risiken von Schwangerschaft und Mutterschaft haben sich andererseits in den letzten 15 Jahren bedeutsame Verbesserungen ergeben [19,21].…”

Section: Verbesserung Der üBerlebenszeitunclassified

Erwachsene mit Mukoviszidose

Hardt

Schwarz

Ullrich³

2012

Bundesgesundheitsbl.

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Cystic fibrosis (CF) is one example of serious disorders for which medical progress and the integration of chronic treatment into the patients' daily routines have led to markedly better longevity. Formerly known as a 'killer disease' of childhood, CF is now considered a disorder with childhood onset, but is well known in adult medicine. Since 2009, for the first time CF adults have made up the majority of patients in the German CF registry. The drawbacks of improved longevity are long-term complications (e.g., CFRD, osteoporosis) that were rarely seen before. In particular, unwanted effects of treatments that today are performed for decades rather than years are becoming pressing problems. Unwanted effects as well as the ever-increasing treatment burden must be carefully weighed against the expected benefits of treatment. However, CF medicine has always been aware that it is not just about longevity, but that prolonged life has to have meaning. Therefore, the marked increase in longevity is also a psychosocial challenge. So far, empirical data suggest that the majority of people with CF courageously struggle for a normal life.

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Prevalence of incontinence and incontinence‐specific quality of life impairment in women with cystic fibrosis

Abstract: Women with CF have a higher prevalence of stress urinary incontinence than the general population, with both the prevalence and associated quality of life impairment increasing with age.

Cited by 19 publications

References 17 publications

Urinary incontinence in adolescent females with cystic fibrosis in Poland

Urinary incontinence in adolescent females with cystic fibrosis in Poland

A systematic review of the prevalence and impact of urinary incontinence in cystic fibrosis

Erwachsene mit Mukoviszidose

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