Prevalence of Informal Caregiving in States Participating in the US Patient Protection and Affordable Care Act Balancing Incentive Program, 2011-2018

Abstract

This cohort study assessed the association of the US Patient Protection and Affordable Care Act (ACA) Balancing Incentives Program with the prevalence and frequency of informal caregiving in the US from 2011 to 2018.

Development and validation of the caregiver needs and resources assessment

“…In the year 2019's global forecast, the number of people aged 65 years or over would be doubled from 703 billion in 2019 to 1.5 billion in 2050, and the proportion of older people would be up from one in 11 in 2019 to one in six people by 2050 (United Nations, Department of Economic and Social Affairs, and Population Division, 2020). Global aging goes with the increase in healthcare needs and costs of society, and a substantial growth conjecture is expected in the spending on long-term services and supports Li et al 10.3389/fpsyg.2023.1063440 Frontiers in Psychology 02 frontiersin.org (Anastos-Wallen et al, 2020). Although caregiving by professionals is increasing in proportion to advancements in social and health services, a considerable amount of caregiving is still delivered by family members in high-, middle-, and low-income countries (Pandian et al, 2016;Hinton et al, 2019).…”

Caregiver economics: A framework for estimating the value of the American Jobs Plan for a caring infrastructure

“…Evaluation of the Jobs Plan impact on caregiving could be influenced by the effectiveness of the program's ability to address broader societal components related to care and our ability to capture these data elements in the policy assessment. The reliance of state‐level implementation of components through Medicaid could further complicate the policy's effectiveness or create disparities for caregivers across states similar to what was observed post‐Affordable Care Act 7 . The cost‐effectiveness of interventions transitioning an institutionalized patient back to the community can be also complicated by engagement challenges, housing arrangements, and social services issues 8 .…”

“…The reliance of state-level implementation of components through Medicaid could further complicate the policy's effectiveness or create disparities for caregivers across states similar to what was observed post-Affordable Care Act. 7 The cost-effectiveness of interventions transitioning an institutionalized patient back to the community can be also complicated by engagement challenges, housing arrangements, and social services issues. 8 While the goal of supporting patients with a preference for home-based care is a longstanding priority, successful community transitions for some groups will require substantial investments and support.…”

A Cross-Sectional Study about the Associations between Physical Activity Level, Self-Perceived Health Perception and Mental Health in Informal Caregivers of Elderly or People with Chronic Conditions in Spain

“…Although, in many cases, families assume the major responsibility for care due to different socio-cultural and political factors, the trend is towards professionalising care [8]. Thus, the prevalence of informal caregivers is 11-17% in European countries [9,10] and around 20% both in the United States [11] and in low-and middle-income countries [12]. Nevertheless, about 80% of the informal caregivers are usually family members who often live with an older person.…”