Prevalence of neurodevelopmental disorders and their impact on the health and social well-being among looked after children (LAC): a systematic review protocol

Heady, Nicola; Watkins, Alan; John, Ann; Hutchings, Hayley

doi:10.1186/s13643-022-01923-6

Cited by 6 publications

(6 citation statements)

References 80 publications

(79 reference statements)

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“…All of these challenges seem to contribute to adoption disruption, with child to parent violence (CPV) and delays or lack of support to adoptive families being two of the key factors (DfE, 2014;Goodwin & Madden, 2020). This is important as while adoption can ensure a normal child development when successful, adoption disruption can impact children's development negatively, especially in relation to overall health and social wellbeing, including mental, behavioural or neurodevelopmental disorder (Johnson, 2002;Heady et al, 2022).…”

Section: Key Issuesmentioning

confidence: 99%

Exploring the Benefits and Challenges of a Support Service for Adoptive Parents: A Case Study of Evaluating the Adopter Champions Programme

Kambouri,

Curtis,

Dimitriadi

et al. 2024

JSS

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Adopters often face challenges during the process of adoption which may occasionally lead to adoption disruption. When aiming to minimise disruption, it is important to look closer at the support provided to adopters, to understand what works and what could be improved; however, there are few studies that focus on what works best. This paper seeks to address part of this gap, by exploring the benefits and challenges of a support service for adoptive parents, namely the Adopter Champions programme. The study explored the key issues faced by adopters and their experiences of the Adopter Champions programme, aiming to understand if and how such programmes can help adopters. Employing a sequential mixed methods approach, a survey was shared with 55 families that had received support from the Adopter Champions programme with four then interviewed. The findings confirm how important it is for adoptive parents to have access to support and people that can understand and advise them, such as other adopters, and therefore how this is worth investment from the government. While the study highlights the importance of having support available and for government to invest in this, it is recommended that more studies like this are conducted to identify what types of support are more beneficial for adopted parents.

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Section: Key Issuesmentioning

confidence: 99%

Exploring the Benefits and Challenges of a Support Service for Adoptive Parents: A Case Study of Evaluating the Adopter Champions Programme

Kambouri,

Curtis,

Dimitriadi

et al. 2024

JSS

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“…ADHD and ASD remain under-recognized and underdiagnosed in many countries, especially amongst girls and women [ 9 , 10 ]; thus, prevalence rates could be even higher. Prevalence is also reported to be higher in certain population groups, such as looked-after children [ 11 , 12 ]. ADHD prevalence transitions into adulthood in around 30–50% of cases [ 13 ].…”

Section: Introductionmentioning

confidence: 99%

The Role of Choline in Neurodevelopmental Disorders—A Narrative Review Focusing on ASC, ADHD and Dyslexia

Derbyshire

Maes

2023

Nutrients

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Neurodevelopmental disorders appear to be rising in prevalence, according to the recent Global Burden of Disease Study. This rise is likely to be multi-factorial, but the role of certain nutrients known to facilitate neurodevelopment should be considered. One possible contributing factor could be attributed to deficits in choline intake, particularly during key stages of neurodevelopment, which includes the first 1000 days of life and childhood. Choline, a key micronutrient, is crucial for optimal neurodevelopment and brain functioning of offspring. The present narrative review discusses the main research, describing the effect of choline in neurodevelopmental disorders, to better understand its role in the etiology and management of these disorders. In terms of findings, low choline intakes and reduced or altered choline status have been reported in relevant population subgroups: pregnancy (in utero), children with autism spectrum disorders, people with attention deficit hyperactivity disorder and those with dyslexia. In conclusion, an optimal choline provision may offer some neuronal protection in early life and help to mitigate some cognitive effects in later life attributed to neurodevelopmental conditions. Research indicates that choline may act as a modifiable risk factor for certain neurodevelopmental conditions. Ongoing research is needed to unravel the mechanisms and explanations.

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“…Neurodevelopmental diseases are multifaceted conditions with cognitive, communicative, behavioral and motor skill disorders due to abnormal brain development 1,2 . The main ones are Down Syndrome, autism spectrum disorder (ASD), cognitive developmental delay [1][2][3][4] . Down Syndrome is a genetic abnormality that occurs as a result of the number of chromosomes in body cells being 47 (trisomy 21) 5 .…”

Section: Introductionmentioning

confidence: 99%

Emergency service perspective of families with children who have neurodevelopmental diseases

Hayri

Beştemir

Gülşen³

et al. 2023

CMJ

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Introduction: It is known that children with neurodevelopmental diseases have frequent traumas like falling and apply to emergency department which significantly affects patient and family. Our aim is to examine the families' view and the problems encountered in emergency services by examining their answers to questionnaire. Method: This study was designed retrospectively. Patients registered in Department of Autism, Mental Special Needs and Rare Diseases as families with children who have neurodevelopmental diseases included in the study. 324 families’ survey with 12 open-ended questions evaluated in terms of distribution and frequencies with descriptive statistical methods. Results: By analyzing the data obtained the findings of the research were gathered under 12 main themes and 80 sub-themes. 313 (89.9%) were diagnosed with Down Syndrome, 9 (2.5%) with Angelman Syndrome, 7 (2.02%) with intellectual disability, and 5 (1.4%) with Autism. 34.2% of the children were 0-3 years old, 28.7% were 3-6 years old, 20.9% were 6-10 years old. Emergency services were used in "all cases where urgent intervention is required" (70%), and in cases where “an outpatient appointment couldn’t made" (10.8%) Conclusion: It would be beneficial to examine children with neurodevelopmental diseases in an understanding and patient manner, using a plain and understandable language, in a quiet environment in emergency room. To solve these patient’s problems, awareness training of healthcare professionals, having separate examination and observation room, ensuring accessibility and arranging the room with necessary medical supplies and equipment should be made.

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Prevalence of neurodevelopmental disorders and their impact on the health and social well-being among looked after children (LAC): a systematic review protocol

Cited by 6 publications

References 80 publications

Exploring the Benefits and Challenges of a Support Service for Adoptive Parents: A Case Study of Evaluating the Adopter Champions Programme

Exploring the Benefits and Challenges of a Support Service for Adoptive Parents: A Case Study of Evaluating the Adopter Champions Programme

The Role of Choline in Neurodevelopmental Disorders—A Narrative Review Focusing on ASC, ADHD and Dyslexia

Emergency service perspective of families with children who have neurodevelopmental diseases

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