Prevalence of ocular diagnoses found on screening 1539 adults with intellectual disabilities

Splunder, Jacques van; Stilma, J. S.; Bernsen, Roos; Evenhuis, Heleen M.

doi:10.1016/j.ophtha.2003.12.051

Cited by 86 publications

(66 citation statements)

References 20 publications

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“…[52][53][54][55][56][57][58][59] In addition, people with ID may be less likely to report visual symptoms or to have regular ophthalmic care. 60 -62 The method of screening may need to be individualized for patients with communication and perception limitations.…”

Section: Given the High Rates Of Osteoporosis Documented Among Adultsmentioning

confidence: 99%

Screening Tests for Adults with Intellectual Disabilities

Wilkinson¹,

Culpepper²,

Cerreto³

2007

The Journal of the American Board of Family Medicine

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Adults with intellectual disabilities need thoughtful, well-coordinated primary care from family physicians. However, evidence-based screening recommendations are lacking. We examined screening recommendations for common preventable conditions using the US Preventative Service Task Force guidelines. We also reviewed the literature about the prevalence of these conditions in adults with intellectual disabilities. Obesity, osteoporosis, and smoking are more prevalent in adults with intellectual disabilities, and enhanced screening for these conditions is recommended. Abnormal Papanicolaou smears and cervical cancer are less common in adults with intellectual disabilities and screening recommendations should be individualized. We also discussed strategies to make screening procedures less stressful for these patients. The term "intellectual disabilities" (ID) refers to the condition of people with disabilities characterized by significant limitations both in cognitive functioning and adaptive behavior (conceptual, social, and practical adaptive skills) that originate before age 18 (Table 1). As used here, the term intellectual disabilities is synonymous with the term "mental retardation," a term that many people with ID dislike because it is stigmatizing and is frequently used as a global summary about complex human beings with a wide range of gifts, abilities, and needs. Challenges or limitations may be partially determined by the requirements of the environment in which people with ID live; the degree of disability may vary over time depending on the skills and supports the patient needs to function in his or her current environment. Adults with ID are living longer because of improved medical care, technology, and environmental conditions. They are also more likely to live in community-based settings instead of large institutions.

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Section: Given the High Rates Of Osteoporosis Documented Among Adultsmentioning

confidence: 99%

Screening Tests for Adults with Intellectual Disabilities

Wilkinson¹,

Culpepper²,

Cerreto³

2007

The Journal of the American Board of Family Medicine

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“…(Table 1) [Maino et al, 1990;Pueschel, 1995;Saenz, 1999;Smith, 2001]. The prevalence of strabismus has been reported to range from 9 to 69% among individuals with Down syndrome, compared with Ͻ1 to 10% in the general population and 4 to 45% in the overall population of individuals with ID [Cullen and Butler, 1963;Lyle et al, 1972;Markovits, 1975;Jaeger, 1980;Woodruff et al, 1980;NCHS, 1983;Levy, 1984;Shapiro and France, 1985;Jacobson, 1988;Caputo et al, 1989;Aitchison et al, 1990;Catalano, 1990;Cooley and Graham, 1991;Hestnes et al, 1991;Sacks et al, 1991;Pérez-Carpinell et al, 1994;Prasher, 1994;Roizen et al, 1994;Berk et al, 1996;da Cunha and Moreira, 1996;Maino et al, 1996;McCulloch et al, 1996;Block et al, 1997;Woodhouse et al, 1997van Allen et al, 1999;Buch et al, 2001;Merrick and Koslowe, 2001;Cregg et al, 2003;van Splunder et al, 2003bvan Splunder et al, , 2004Gormezano and Kaminski, 2005;Murphy et al, 2005]. In addition, the prevalence of cataracts, which tends to increase with age in the general population, increases to a greater extent with age for individuals with Down syndrome …”

Section: Vision Problems Among Specific Populationsmentioning

confidence: 99%

“…The article concludes with recommendations to improve the vision and oral health of individuals with between the ages of 45 and 64 years and 7% of those over 65 years in the general U.S. population have been reported to have vision problems, Kapell et al [1998], studying New York residents, found that 9 to 16% of 45 to 64 year olds with ID and 17 to 50% of 65 to 74 year olds with ID had vision problems. Other studies have reported that 18 to 99% of 50ϩ year olds with ID have vision problems [Day, 1987, Moss, 1991Evenhuis, 1995;van Schrojenstein Lantman-de Valk et al, 1997;Janicki and Dalton, 1998;Evenhuis et al, 2001b;Warburg, 2001b;Janicki et al, 2002;Kerr et al, 2003;van Splunder et al, 2003avan Splunder et al, , 2004.…”

mentioning

confidence: 97%

“…Similarly, while the overall population prevalence of strabismus outside the United States ranges from Ͻ1 to 10%, international researchers found the prevalence of strabismus among individuals with ID to range from 4 to 45% (Table 1) [Lyle et al, 1972;Bankes, 1974;Woodruff, 1977;Woodruff et al, 1980;Levy, 1984;Jacobson, 1988;Aitchison et al, 1990;Hestnes et al, 1991;McCulloch et al, 1996;Buch et al, 2001;van Splunder et al, 2003avan Splunder et al, , 2003bvan Splunder et al, , 2004Woodhouse et al, 2003]. The prevalence of cataracts (opacity of the lens of the eye, the capsule, or both) and keratoconus (swelling and scarring of the cornea) among individuals with ID also has been reported to be much higher than that in the general population (Table 1) [Lawson and Schoofs, 1971;Bankes, 1974;Markovits, 1975;Woodruff, 1977;Jaeger, 1980;NCHS, 1983;Levy, 1984;Kennedy et al, 1986;Day, 1987;Jacobson, 1988;Aitchison et al, 1990;Hestnes et al, 1991;Sacks et al, 1991;Evenhuis, 1995;Maino et al, 1996;McCulloch et al, 1996;Warburg, 2001b;Friedman et al, 2002;Congdon et al, 2003;Foran et al, 2003;Kerr et al, 2003;…”

mentioning

confidence: 99%

“…British administrative data suggest prevalence estimates of cataracts as high as 28% among individuals with ID [Kerr et al, 2003], while a study of individuals with ID 60 years of age and older found that 69% had cataracts [Evenhuis, 1995]. Similarly, prevalence estimates of keratoconus are higher among individuals with ID compared to the general population (1 to 19% versus Ͻ 1%, respectively), with the condition reported to be more common among males than females with ID [Levy, 1984;Kennedy et al, 1986;Jacobson, 1988;Hestnes et al, 1991;Maino et al, 1996;McCulloch et al, 1996;Warburg, 2001b;van Splunder et al, 2004]. These high prevalence estimates among individuals with ID may be due, in part, to the association between cataracts, keratoconus, and Down syndrome, as discussed below.…”

mentioning

confidence: 99%

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Vision and oral health needs of individuals with intellectual disability

Owens

Kerker

Zigler

et al. 2006

Ment. Retard. Dev. Disabil. Res. Rev.

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Over the past 20 years, there has been an increased emphasis on health promotion, including prevention activities related to vision and oral health, for the general population, but not for individuals with intellectual disability (ID). This review explores what is known about the prevalence of vision problems and oral health conditions among individuals with ID, presents a rationale for the increased prevalence of these conditions in the context of service utilization, and examines the limitations of the available research. Available data reveal a wide range of prevalence estimates for vision problems and oral health conditions, but all suggest that these conditions are more prevalent among individuals with ID compared with the general population, and disparities exist in the receipt of preventive and early treatment for these conditions for individuals with ID. Recommendations for health improvement in these areas include better health planning and monitoring through standardized population-based data collection and reporting and increased emphasis on health promotion activities and early treatment in the healthcare system.

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